“Thoughts Can Kill You”: Characterization of Mental Health Symptoms by Ugandan Grandparent–Caregivers in the HIV/AIDS Era

Abstract

Studies of caregiving provided to HIV/AIDS orphans by sub-Saharan African grandparents have found that it has physical, financial, and emotional consequences. Our study extended this research by identifying and characterizing the symptoms experienced by Ugandan grandparent– caregivers, particularly as related to the caregiving role, loss and grief. Grounded theory methodology was used to conduct and analyze audio-recorded, semi-structured interviews with 32 grandparents. Findings revealed a cluster of biopsychosocial distress symptoms, especially anguish (driven by traumatic anxiety and disbelief), depression, and somatic symptoms that were linked primarily to psychological distress. The impact of cultural practices and beliefs on these symptoms was also identified. Results have implications for public health, research, and policy changes needed to alleviate symptoms of biopsychosocial distress among Uganda grandparent-caregivers.

Notes

1 Assessment Instrument for Mental Health Systems.

Additional information

Funding

This research is funded in part by the Substance Abuse and Mental Health Services Administration Grant # 5T06SM060559-03.