The Home Program Evaluation Questionnaire – HoPE-Q – for Infants with Hemiplegic Cerebral Palsy: Development and Psychometric Properties

Abstract

To develop and examine the psychometric properties of the Home Program Evaluation Questionnaire (HoPE-Q), a novel tool designed to assess the effectiveness of home treatment programs for infants with hemiplegia. The HoPE-Q includes a pre- and a postintervention version and items that relate to Child’s Function, Parents’ Competence, and their Expectations and Satisfaction from the program. The research was performed in three stages. The first stage consisted of item construction and content validity, followed by the analyses of the tool’s reliability and construct validity. The final stage involved the examination of the tool’s sensitivity to determine its suitability as an outcome measure of the effectiveness of home programs for infants with hemiplegia. Results showed moderate-to-high internal consistency (α = 0.65–0.85) and high test–retest reliability in Child’s Function and Parents’ Competence (r = 0.75, r = 0.76) respectively (p = 0.01). Evidence for Construct Validity, was demonstrated by significant group difference in the Child’s Function (t_(74)=-12.3, p ≤ 0.001) and Parents’ Competence (t_{(68) = −}3.7, p = 0.01), and high sensitivity to change after treatment was presented in Child’s Function (F_(32,1) = 49.38) and Parents Competence (F_{(32,1) =} 26.72) (p ≤ 0.001). Preliminary data support the validity and reliability of the HoPE-Q as well as its suitability as an outcome measure, thereby providing a means of examining the effectiveness of home intervention programs for infants with hemiplegia.

KEYWORDS::

• Family-centered practice
• hemiplegic cerebral palsy
• home program
• infants
• questionnaire

Acknowledgment

We sincerely thank the families who participated in this study.

Disclosure statement

The authors declare no conflict of interest.