Glioblastoma: assessment of the readability and reliability of online information

Abstract

Introduction

Glioblastoma Multiforme (GBM) represents one of the most common and most aggressive forms of brain tumours with a poor prognosis. There is often uncertainty around diagnosis and prognosis amongst patients diagnosed with cancer. Most patients rely on internet to access health-related information. The aim of this study was to assess the readability and reliability of online information on GBM.

Methods

The terms ‘Glioblastoma’ and ‘GBM’ were used to search Google and the first 50 websites identified were screened. For each website, the quality of each website was assessed using the DISCERN instrument, the Journal of the American Medical Association (JAMA) benchmark criteria and the Health on the Net Foundation code certification (HON-code). The readability was assessed using the Flesch Reading Ease Score (FRE), the Flesch-Kincaid grade level (FKGL) and the Gunning Fog Index (GFI). The relevant patient information by 4 International patient information websites were also assessed.

Results

Following screening, 31 websites met the inclusion criteria with only four websites displaying the HON-code (12.9%). The median DISCERN score was 43 (range: 17–70) corresponding to ‘fair’ quality, and the median JAMA benchmark criteria score was 1. Display of the HON-code certificate or the publication date was associated with higher quality websites. The median FRE score corresponded to ‘difficult’ to read (34.4). The median GFI score (15.9) and FKGL score (13.3) corresponded to a ‘college’ level of education reading ability. The Cancer Australia online information was the most readable website while Cancer Research UK had the highest quality information.

Conclusion

The readability and reliability of online information relating to GBM is inadequate. Health professionals need to provide or guide patients to information that is both readable and reliable.

Keywords:

• Glioblastoma
• GBM
• patient information
• online information

Disclosure statement

Authors have no known conflict of interest.