Prader-Willi syndrome: Quality of life issues in home, school and community

Abstract

Psycho-social aspects of Prader-Willi syndrome (PWS) can have a profound effect on individual and family well-being, and often become home, school and community concerns. Quality of life considerations for parents and people with PWS are implicit in all aspects of syndrome management. Current quality of life research is reviewed and suggestions made for future research directions.