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Research Article

Dementia: The family caregiver's perspective

Pages 125-132 | Published online: 06 Jul 2009
 

Abstract

The personal account of a daughter is presented, who, over a period of fifteen years, has cared for her mother with multi-infarct dementia at home. Family caregivers need a diagnosis and information to help them to understand and deal with the ongoing changes which take place in the person they know. The GP is a vital point of reference. Caregivers need to know about how to obtain services. They need support. Problems arise in the way services are delivered. There needs to be greater understanding of what causes anxiety to caregivers and of the stress which they experience which may affect their health. Relief is essential but must be given in a way that is not counter-productive. Training is needed to equip care workers to deliver services more effectively. Good management is essential. A dementia specific team which could undertake all the tasks fulfilled by domiciliary care agencies would provide consistency and reduce wear and tear on family caregivers.

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