Aknowledgements
We would like to thank all the physicians who are implicated in this family follow-up, including, Pr David Laharie, Dr Thomas Bachelet, Dr Antoine Soulage, Dr Alain Schiano, Dr Isabelle Hamy-Marthan and Dr Marc Simon. We would like to thank Dr David Lawrence for his assistance in English writing.
Disclosure statement
No potential conflict of interest was reported by the author(s).