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Articles

Unequal Universalism. The Short Circuit of Solidarity in European National Healthcare Systems

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ABSTRACT

The first National Health Service (NHS) was introduced in the United Kingdom providing free universal health care (UHC) at the point of use. Within decades, increasing European countries adopted the same intervention to improve the health of citizens on the entire life span. Today, several reasons put at risk (1) empirically, the sustainability and fairness of these systems, (2) theoretically, the same consistency of solidarity, as vulnerable patients struggle most to receive essential care. Preserving solidarity from the pressure of modern medicine and society needs to identify a fair and sustainable type of coverage at the same time. This paper aims (1) to describe the short circuit of solidarity in European NHSs; (2) to discuss alternative versions of UHC and support redistributive neo-universalism; (3) to promote the role of medical humanities in implementing this solution.

Disclosure Statement

No potential conflict of interest was reported by the author(s).

Notes

1 Beveridge, Social Insurance and Allied Services.

2 Ibid., 41.

3 Porter, The Cambridge Illustrated History of Medicine, 48, 310–311, 376.

4 Daniels, Just Health, 14–16; 145–147.

5 Tudor Hart, The inverse care law.

6 Watt, The inverse care law today.

7 Lawless et al., What does integrated care mean?; Fosti et al., Il Welfare e la Long Term Care in Europa.

8 European Commission, Defining Value in “Value-Based Healthcare”.

9 As of January 31, 2020, Great Britain no longer belongs to the European Union. However, the author believes that Brexit does not compromise the consistency of the paper analysis: first because Brexit did not change the local health care system; second because the data here mentioned are prior to that moment.

10 “Ssn. Sostenibilità e compatibilità: due concetti da distinguere con chiarezza.” Quotidiano Sanità, May 29, 2014; Italian Constitutional Court, Sentence n. 304/1994.

11 Organization for Economic Cooperation and Development (OECD), Health at a Glance: Europe 2016, 198–199.

12 World Bank, World Development Report.

13 Sen, Why health equity?

14 Davini, Il Prezzo della Salute.

15 Kluytmans et al., Early Assessment of Health Innovation.

16 Mangan, B. “Value-based procurement” MedTech News, May 23, 2018; Fondazione Gimbe, IV Rapporto sulla Sostenibilità del SSN.

17 European Commission, op.cit.

18 Rao et al., The overuse of diagnostic imaging; O’Sullivan et al., Temporal trends in use of tests in UK primary care.

19 O’Sullivan et al., Temporal trends in use of tests in UK primary care.

20 Fondazione Gimbe, IV Rapporto sulla Sostenibilità del SSN, III.

21 Straßner et al., Holistic care program for elderly patients; Kern et al., Fragmented ambulatory care; Kern et al., Healthcare fragmentation; Säfström et al., Continuity and utilization of health and community care; Kaboli et al., Use of complementary and alternative medicine.

22 Toth, Sovereigns under Siege.

23 OECD, Tackling Wasteful Spending on Health; McNulty et al., The English antibiotic awareness campaigns.

24 Porter, Breve ma veridica storia della medicina occidentale.

25 Muldoon, Pandemic of great expectations.

26 Smith, The NHS: Possibilities for the endgame.

27 Fondazione Gimbe, IV Rapporto sulla Sostenibilità del SSN, II, 3, 63

28 Boorse, Health as a Theoretical Concept.

29 WHO, Constitution of the WHO.

30 Fondazione Gimbe, III Rapporto sulla Sostenibilità del SSN.

31 Fondazione Gimbe, IV Rapporto sulla Sostenibilitò del SSN, II, 3, 63

32 Toth, op.cit.

33 Consorzio per la Ricerca Economica Applicata in Sanità (CREA), Unequal Universalism, 30.

34 Ibid.

35 OECD, Health at a Glance 2021, 13–14.

36 Lawless et al., op.cit.

38 Säfström et al., op. cit.

39 Bognar et al., The Ethics of Health Care Rationing; Daniels, op.cit.

40 Lawless, op.cit.; OECD, Reviews of Health Care Quality; Jani, Health inequalities and personalised care; NHS, What is a Personal Health Budget?.

41 Fosti et al., op.cit.

42 European Commission, op. cit.

43 Schramme, Theories of health justice.

44 Daniels, op. cit.

45 Ferrera, Per un neo-universalismo sostenibile; Zamagni, Equità, razionamento, diritto alle cure; Pennestrì, Il diritto alle cure fra solidarietà, equità e sostenibilità.

46 Pennestrì, Is Therapeutic Germline Editing Value-based Healthcare?.

47 Martha Nussbaum shares with Amartya Sen the idea that a just society has priority to protect the most relevant personal abilities, initially defined through an objective theory of the good life (Nussbaum, Non-relative virtues; Nussbaum et al., The Quality of Life, 46–48), and more recently revised from a more inclusive, multicultural perspective (Nussbaum, Giustizia sociale e dignità umana). See also Schramme, op. cit.

48 Schramme, op. cit.

49 Pennestrì, Procreazione eterologa medicalmente assistita in Italia.

50 Catastrophic out-of-pocket expenditure is a common reason why patients end up in choosing whether to eat or receive care (i.e., losing psychophysical function and job because of a road accident or a incurable cancer diagnosis).

51 Shares are generally calculated automatically by the provider based on ready-to-use indicators combined by the government; on the side of patients’ ability to pay, for instance, income and family composition; on the side of treatments’ value, patients’ age and chronic comorbidities.

52 Dworkin, Sovereign Virtue, 73; Stanford Encyclopedia of Philosophy, Justice and bad luck, Chapter 7.

53 WHO, Noncommunicable Diseases. http://www.who.int/mediacentre/factsheets/fs355/en/.

54 OECD, Health at a Glance 2021, 94.

55 Pillutla et al., Rationing elective surgery; Pennestrì, Dalla cura al prendersi cura.

57 EuNetHTA, HTA Core Model Domains. https://www.eunethta.eu/hta-core-model/.

58 The King’s Fund, Getting the most out of Proms, 54–55; Bognar et al., op. cit., 63.

59 Fondazione Gimbe, III Rapporto sulla sostenibilità del SSN, table revised by the author.

60 Bognar et al., op.cit.; Daniels, op.cit.; Daniels et al., Accountability for reasonableness: an update; Friedman, Beyond accountability for reasonableness.

61 Rumbold et al., Public Reasoning and Health-Care Priority Setting; Kieslich et al., Does accountability for reasonableness work?; Byskov et al., The accountability for reasonableness approach.

62 Daniels, op. cit.

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