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Original Article

Living with late deafness: Insight from between worlds

Viviendo con sordera tardía: introspección entre dos mundos

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Pages 442-448 | Received 06 Mar 2007, Published online: 07 Jul 2009
 

Abstract

The psychosocial impact of ‘late’ deafness in adults has received little research attention. The aim of this study was to examine the views of people with experience of late deafness living in the UK. Eight participants (six male; age range 33 to 60) were interviewed by a researcher who had undergone appropriate communication skills training. In-depth, face-to-face, semi-structured interviews were conducted and transcribed. Data were analysed using framework analysis to identify themes. Becoming deafened was a devastating experience for many participants who experienced severe psychological, social, and employment consequences. They no longer felt they belonged in the hearing world, and neither did they belong in the prelingually deaf world. Onset of deafness had left them in a twilight zone between worlds and had robbed them of their identity. Whilst the support received from health and social care professionals was mixed, all participants valued the peer support and training received on an intensive rehabilitation programme delivered by deafened people. Findings provide insight into deafened peoples’ psychosocial experiences and emphasize the need for support and advice.

Sumario

El impacto psicológico de la sordera “tardía” en adultos ha sido muy poco investigado. El objetivo de este estudio fue examinar los puntos de vista de personas que la han experimentado y que viven en el Reino Unido. Fueron entrevistados ocho participantes (seis hombres, de 33 a 60 años) por un investigador que recibió un entrenamiento apropiado de habilidades comunicativas. Se llevaron a cabo y se trascribieron entrevistas a fondo, semiestructuradas y frente a frente. Los datos se analizaron usando un esquema de análisis para identificar temas. Volverse sordo fue una experiencia devastadora para muchos participantes, quienes experimentaron severas consecuencias psicológicas, sociales y laborales. Ellos sintieron que no pertenecían al mundo oyente, pero tampoco al mundo de los sordos prelingüísticos. La iniciación de la sordera los dejó en una zona nebulosa entre dos mundos y les robó su identidad. Mientras que el apoyo recibido de profesionales sociales y de la salud fue ambivalente, todos los participantes valoraron el apoyo de sus pares y el entrenamiento recibido en un programa intensivo de rehabilitación proporcionado por ensordecidos. Los hallazgos favorecen la comprensión de las experiencias pisco sociales de personas ensordecidas y enfatiza la necesidad de apoyo y asesoría.

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