Theme 11 - Cognitive and Psychological Assessment and Support

Acknowledgements

We thank the family caregivers and professionals who participated. We also thank the Danish Foundation for Neuromuscular Diseases, the Institute of Public Health, Aarhus University, and the National Rehabilitation Center for Neuromuscular Diseases for financial support.

Acknowledgements

We are extremely grateful to all carers who gave their time to take part in this study. We could not have conducted this trial without the engagement and support from the 26 active HCPs across 11 sites in England and Wales, the Norwich CTU, Alex Howard from AAH Software, and the continuous support from the MND Association. Thank you.

Acknowledgements

We would like to thank the family caregivers for their participation in the study as well as Assoc. Prof. Charlotte Handberg for her advice. Funding for the study was received from Familien Hede Nielsens Fond, Aage and Johanne Louis-Hansens Fond as well as Dansk Selskab for ALS.

Acknowledgements

Special thanks to all the participants.

Acknowledgments

We would like to thank our participants, as the study would not have been possible without their time and wisdom.

Acknowledgements

We are grateful to the members of our scientific and patient advisory board (SAPAB), to our partners at Genetic ALS & FTD: End The Legacy, and to the genetic ALS community for their support.

Acknowledgement

We would like to thank participants for taking part in the study. Supported by NIH U19 AG063911, U24 AG072122, P30 AG 62677

Acknowledgements

We would like to thank the participants for taking part in the study. This study was funded by MND Scotland.

Acknowledgements

The authors would like to thank Karla Knapstein, Nicole Naumann, Sabine Meier Ballaman, Chantal Frei, Julie Wick, Melanie Nuoffer, Nina Huber, Natalie Heger, Susanne Steffen, Leonie Schmidlin, Aimée Winkenjohann, Nina Zach, Luana Palermo, Kerstin Klopfenstein, Aimée Winkenjohann, Cléo Juillerat, Valérie Jankowski and Olivia Dimitrijevic for help with patient recruitment and data collection.

Acknowledgments

We would like to thank patients for taking part in the study.