Abstract
Objective: The aim of this study was to identify consumer priorities for research on depression and bipolar disorder in Australia.
Method: Australian consumers with personal experience of depression or bipolar disorder were surveyed online about research priorities for their condition using a questionnaire developed from an earlier qualitative phase of the SCOPE for Research project. Participants were asked to rate the importance of a number of broad research areas, specific research topics, target groups and settings in which to conduct research. These ratings were then compared to the content of relevant Australian research published between 1997 and 2006.
Results: Consumers rated research into the management and treatment of depression and bipolar disorder of highest priority. Further, consumers rated those at risk of a mood disorder as the most important target groups for research and prioritized research conducted in health settings such as community mental health services ahead of research in other settings. There was some concordance between consumers’ ratings of the broad topic areas and settings in which to conduct research and the amount of published research on these topic areas and settings. However, there was little published research on the highest ranked consumer-rated specific topics and target groups for research.
Conclusions: Overall, there were substantial differences between the priorities of consumers and the recent research output, suggesting gaps in the Australian research base on mood disorders. The results of this study should be used to inform future research to ensure that it is guided by the priorities of the ultimate beneficiaries of the research, mental health consumers.
Acknowledgements
We gratefully acknowledge the time and effort of the participants in the SCOPE for Research project. We also acknowledge beyondblue: the national depression initiative for distributing the invitation to participate.
Declaration of interest: M.B. was supported by an Australian Rotary Health Ian Scott PhD Scholarship. K.G. was supported by a National Health and Medical Research Council (NHMRC) Fellowship, number 525413. H.C. was supported by a NHMRC Fellowship, number 525411. L.B. was supported by an NHMRC Capacity Building Grant, number 418020. The authors alone are responsible for the content and writing of the paper.