Being in- or out-of-sync: Couples' adaptation to change in multiple sclerosis

Abstract

Purpose. To examine how couples adapt to the challenges of multiple sclerosis (MS) and to identify possible risk factors for relational stress.

Method. Semi-structured interviews were conducted with eight couples to explore how participants defined and identified the strengths and challenges in their relationship, negotiated role changes and received external support. Conceptual frameworks on how families adapt to chronic illness guided within and across case analyses. We identified patterns in the couples' current responses to the demands and stressors of MS.

Results. Two patterns of adaptation to MS were identified as being ‘in-sync’ or ‘out-of-sync’. Characteristics of the four couples currently in-sync included having a relapsing-remitting type of MS, which proceeded at a pace that enabled both partners to maintain their social roles and identity, and a collaborative problem solving style. The four couples currently out-of-sync had a rapid progression of MS, loss of employment before retirement age, differences in personal styles that shifted from being complementary to oppositional in the face of increased demands and struggles with parenting adolescent children.

Conclusions. Clinicians can use these data to assess possible relational strain in couples with MS and identify families who might benefit from referrals to family therapy or other relational support.

Keywords:

• Multiple sclerosis
• relationships
• coping
• stress

Acknowledgements

The contents of this article were developed under a grant from the United States Department of Education, NIDRR grant number H133B031129. However, those contents do not necessarily represent the policy of the Department of Education, and you should not assume endorsement by the US Federal Government.