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Abstract
Purpose. This article offers a discussion about the use of focused ethnography and the community readiness model to study disability at the community level in cross-cultural or international settings. It describes lessons learned when applying these methods to inform community-based disability programming in remote, rural villages in Ladakh, India.
Methods. Data were collected from 30 persons with disabilities, family members and community leaders in four remote villages using interviews and participant observation. All interviews were analysed qualitatively using a mix of inductive and deductive techniques. Community readiness interviews were scored using anchored rating scales to determine level of ‘readiness’ to take action on meeting the needs of persons with disabilities. Following the initial assessment, community workshops were used to disseminate results and facilitate local engagement in planning and intervention.
Results. There were minor challenges and significant benefit in the application of these two approaches in Ladakh; outcomes included: a known level of community readiness that can be used to improve targeting of appropriate community-based intervention and assess change over time, identification of salient needs, barriers and facilitators for persons with disabilities and their families; and community-level engagement during and following the research.
Conclusions. Research models with participatory components like focused ethnography and community readiness hold significant promise for planning and evaluating community-based disability programmes.
Acknowledgements
The authors thank the respondents of this study who opened up their homes and welcomed us into their communities.