Development of a group-based self-management programme for individuals with chronic fatigue syndrome: a pilot study

Abstract

Objective: The aim of the study was to develop a group-based self-management programme for individuals with chronic fatigue syndrome (CFS) by using the participants’ experiences with the initial version of the programme, which intends to promote coping with the illness in a primary healthcare setting. Methods: An initial programme was developed, based on self-efficacy theory and the concepts of client-centred practice and empowerment. Subsequently, the programme was tested and further developed by drawing on the participants’ experiences with the programme. Focus-group interviews were applied. The interviews were analysed using thematic analysis. Results: The initial programme was found to be feasible, although several modifications regarding the content and practical organization of the programme were proposed. Conclusion: In line with the participants’ experiences, the final self-management programme was developed, which includes short presentations of eight topics, exchange of experiences among participants, goal-setting, construction of action plans, and relaxation exercises, in addition to a meeting for relatives. The programme will be provided in eight biweekly sessions and be led by juxtaposed peer counsellors and occupational therapists. The effects of the final programme will be evaluated in a randomized controlled trial.

Key words:

• self-efficacy
• qualitative research
• patient education
• empowerment
• coping
• complex interventions
• client-centred practice

Acknowledgements

The authors would like to thank the participants who shared their experiences for this study. They also would like to thank Anne Lund, PhD at the Department of Occupational Therapy, Prosthetics and Orthotics, Oslo and Akershus University College of Applied Sciences, Oslo, Norway for her valuable comments on the manuscript. This study was funded by the Norwegian Foundation for Health and Rehabilitation, grant number: 2010/2/0201.

Declaration of interest: The authors report no conflicts of interest. The authors alone are responsible for the content and writing of the paper.