Shared decision-making in neonatology: an utopia or an attainable goal?

Abstract

Medical decision making is sometimes considered as a relatively simple process in which a decision may be made by the physician, by the patient, or by both patient and physician working together.

There are three main models of decision making – paternalism, patient informed choice, and shared decision-making (SDM), having each one of these drawbacks and limitations.

Historically, the most adopted one was the paternalism (strongly ‘Doctor knows best’), where the professional made the decision based on what he/she considered to be as the patient's best interest, not necessarily contemplating patient's will and wishes.

Currently, at the antipodes, the patient informed choice, where the patient makes his/her decision based on information received from the physician with no possible interference of professional's own preferences, seems to be the preferred relationship standard.

SDM represents an intermediate approach between the two above-mentioned opposite models, being a medical process that involves actively the doctor and the patient who both bring their own facts and preferences to reach an agreement on the decision on if, when and how to treat a disease.

This model, being characterized by elements pertaining to both the others, is gaining popularity in several medical and surgical scenarios whenever a competent patient is able to actively participate into the decisional process.

On this basis can this model be implemented also in a Neonatology Intensive Care Unit where little patients are – by nature – incompetent, being the diagnostic/therapeutic choices taken by parents? We focused on this complex item considering four possible different scenarios and it seems to us that it could be possible to introduce such an approach, providing that parents empowerment, a good physician's communication skill and consideration of all cultural, religious, economic, and ethic values of every single actor have been fairly taking into account.

Keywords:

• Shared decision-making
• paternalism
• patient informed choice
• family centered care
• communication skills

Declaration of interest: The authors report no conflicts of interest. The authors alone are responsible for the content and writing of the paper.