The results from a two-year case study of an information and communication technology support system for family caregivers

Abstract

Purpose: The aim was to better understand how information and communication technology (ICT) can provide support to elderly family caregivers caring for significant others suffering from dementia or stroke. Method: Ten households equipped with an ICT system, with a family caregiver and a spouse diagnosed with dementia or stroke, were followed and observed in a two-year case study. The family caregivers had regular meetings in groups organised by the municipal care of the elderly. Data from observations, semi-structured interviews, user data from the ICT system and data about the support provided by the municipality has been used to validate the findings. Results: The family caregivers socialised with users in the group as long as the users were stayed in the group. Meetings in the group were an important opportunity for exchanging experiences and to easing one”s mind. The ICT system did not reduce the municipality”s level of services to the participating families. The information built into the system has to be constantly updated to be of interest. Conclusions: An ICT support must be provided in a context of personal meetings and with a formal caregiver backing. This will empower informal or family caregivers. Such support must give the user the possibility to communicate and get access to the Internet.

Implications for Rehabilitation

• Benefits were obtained when informal caregivers met with a group of people with whom they share the same kind of experiences and were supported by a formal caregiver.

• Informal caregivers need more attention and recognition.

• ICT systems can help but must be current and maintain the users interest.

• Ageing in place
• Alzheimer’s disease
• caregiver
• dementia
• elderly
• stroke

Acknowledgements

The author wishes to thank all the families that participated in the case study for the way they invited him into their families’ inner circles and allowed him first hand experiences of their difficulties but also of their hopes and dreams for the future.