Psychological and psychotherapeutic approaches for people with motor neuron disease: A qualitative study

Abstract

The aim of the study was to review current psychological and psychotherapeutic approaches for people with MND used by therapists in Ireland and to gain an insight into approaches used elsewhere. We used a qualitative study collecting data from eight therapists in Ireland and two therapists in the UK and Italy using semi-structured interviews and analysed the results using principles of grounded theory. Therapists’ approaches included supporting the person in the ‘here and now’ by providing a ‘fine focus’ on what they can still do, re-affirming the person in their ability to have an active role in their life and supporting the person in exploring their emotions. The desired outcome was to provide the person with space to talk, express feelings and be able to self-direct. In conclusion, there is no consensus about a specific approach, due to the complexity of the disease and the variety of presentations. Different approaches may be required during disease progression. The findings indicate that therapists would benefit from having experience of MND, the limitations in mobility, communication and cognitive processing.

Key words::

• Motor neuron disease
• psychology
• psychotherapy and palliative care

Acknowledgements

The authors thank all the participants and the support of Professor Orla Hardiman, her team, and the Irish Motor Neurone Disease Association in recruitment of participants.

Declaration of interest: The authors report no conflicts of interest. The authors alone are responsible for the content and writing of the paper.