Citations (71)
Keep up to date with the latest research on this topic with citation updates for this article.
Read on this site (5)
Eyal Cohen, Péter Szentkúti, Erzsébet Horváth-Puhó, Hilary K Brown, Sonia M Grandi, Henrik Toft Sørensen & Joel G Ray. (2022) Interpregnancy Weight Change Among Mothers of a Child with a Major Congenital Anomaly: A Danish Nationwide Cohort Study. Clinical Epidemiology 14, pages 425-436.
Read now
Read now
Clare Delany, Angela Richards, Helen Stewart & Lauren Kosta. (2017) Five challenges to ethical communication for interprofessional paediatric practice: A social work perspective. Journal of Interprofessional Care 31:4, pages 505-511.
Read now
Read now
Patricia A. Kuster & Lina K. Badr. (2006) MENTAL HEALTH OF MOTHERS CARING FOR VENTILATOR-ASSISTED CHILDREN AT HOME. Issues in Mental Health Nursing 27:8, pages 817-835.
Read now
Read now
M. Loretta Secco, D. Askin, C. T. Yu, Jennifer Garinger, Carole Mulaire-Cloutier, Lisa Scharf, Lisa Schwartzman, Debra Konyk & Maurice A. Feldman. (2006) Factors Affecting Parenting Stress Among Biologically Vulnerable Toddlers. Issues in Comprehensive Pediatric Nursing 29:3, pages 131-156.
Read now
Read now
Janice Haley & Clark Ratliffe. (2006) Application of the Integrative Harmony Paradigm and Model. Issues in Comprehensive Pediatric Nursing 29:1, pages 53-68.
Read now
Read now
Articles from other publishers (66)
Nicole Welke, Joanne Lagatta, Steven Leuthner & Krishna Acharya. (2024) Three-Year Post-Neonatal Intensive Care Unit Health Care Utilization Among Infants with Congenital Anomalies. The Journal of Pediatrics 265, pages 113779.
Crossref
Crossref
Jessica Teicher, Clara Moore, Kayla Esser, Natalie Weiser, Danielle Arje, Eyal Cohen & Julia Orkin. (2022) The Experience of Parental Caregiving for Children With Medical Complexity. Clinical Pediatrics 62:6, pages 633-644.
Crossref
Crossref
Emmanuel Aryee, James M. PerrinSandra ClancyCaitlin MerrillMarjorie CurranNicolas M. Oreskovic. (2023) Mental Health of Caregivers of Children with Medical Complexity During COVID-19. Journal of Developmental & Behavioral Pediatrics 44:3, pages e212-e217.
Crossref
Crossref
Lora Batson, Pamela K. Donohue, Renee D. Boss & Rebecca R. Seltzer. (2022) Family challenges in personal transportation of children with medical complexity. Journal of Pediatric Rehabilitation Medicine 15:4, pages 655-665.
Crossref
Crossref
Edward L. Schor & Amy Fine. (2022) Anticipatory Social Supports for Children With Chronic Conditions and Their Families. Clinical Pediatrics 61:11, pages 737-740.
Crossref
Crossref
Sophie Boursange & Marcela Gargiulo. (2022) Mise au point sur le concept de surcharge parentale. Contraste N° 56:2, pages 11-34.
Crossref
Crossref
Cor-Jan van der Perk, Liz van de Riet, Mattijs Alsem, Johannes B. van Goudoever & Jolanda Maaskant. (2022) Prognostic factors influencing parental empowerment after discharge of their hospitalized child: A cross-sectional study. Journal of Pediatric Nursing 66, pages e145-e151.
Crossref
Crossref
Christina Belza, Catherine Patterson, Emily Ghent, Yaron Avitzur, Wendy J. Ungar, Darcy Fehlings, Robyn Stremler & Paul W. Wales. (2022) “Line care governs our entire world”: Understanding the experience of caregivers of children with intestinal failure receiving long‐term parenteral nutrition. Journal of Parenteral and Enteral Nutrition 46:7, pages 1602-1613.
Crossref
Crossref
Karen LeGrow, Eyal Cohen & Sherry Espin. (2022) Mother–nurse decision making practices for children with complex health care needs receiving homecare services: A qualitative descriptive study. Child: Care, Health and Development 48:4, pages 605-612.
Crossref
Crossref
Krishna Acharya, Erin Rholl, Kathryn Malin, Margaret Malnory, Jonathan Leuthner, Steven R. Leuthner & Joanne Lagatta. (2022) Parent Health-Related Quality of Life for Infants with Congenital Anomalies Receiving Neonatal Intensive Care. The Journal of Pediatrics 245, pages 39-46.e2.
Crossref
Crossref
Sarah R. McCarthy, Elizabeth H. Golembiewski, Derek L. Gravholt, Jennifer E. Clark, Jeannie Clark, Caree Fischer, Hannah Mulholland, Kristina Babcock, Victor M. Montori & Amie Jones. (2022) Documentation of Psychosocial Distress and Its Antecedents in Children with Rare or Life-Limiting Chronic Conditions. Children 9:5, pages 664.
Crossref
Crossref
Whiwon Lee, Stephanie Luca, Gregory Costain, Meaghan Snell, Maria Marano, Meredith Curtis, Kourtney Dunsmore, Danielle Veenma, Susan Walker, Ronald D. Cohn, Christian R. Marshall, Eyal Cohen, M. Stephen Meyn, Julia Orkin & Robin Z. Hayeems. (2021) Genome sequencing among children with medical complexity: What constitutes value from parents’ perspective?. Journal of Genetic Counseling 31:2, pages 523-533.
Crossref
Crossref
Vanessa N. MadrigalDouglas L. HillJustine ShultsChris Feudtner. (2022) Trust in Physicians, Anxiety and Depression, and Decision-Making Preferences among Parents of Children with Serious Illness. Journal of Palliative Medicine 25:3, pages 428-436.
Crossref
Crossref
Karen LeGrow, Eyal Cohen & Sherry Espin. (2022) Relational Aspects of Parent and Home Health Care Provider Care Practices for Children With Complex Care Needs Receiving Health Care Services in the Home: A Narrative Review. Academic Pediatrics 22:2, pages 196-202.
Crossref
Crossref
Sherri Adams, Madison Beatty, Clara Moore, Arti Desai, Leah Bartlett, Erin Culbert, Eyal Cohen, Jennifer Stinson & Julia Orkin. (2021) Perspectives on team communication challenges in caring for children with medical complexity. BMC Health Services Research 21:1.
Crossref
Crossref
Selcuk Uzuner, Gizem Durcan, Sezgin Sahin, Kayhan Bahali, Kenan Barut, Ali Guven Kilicoglu, Amra Adrovic, Ayhan Bilgic & Ozgur Kasapcopur. (2021) Caregiver burden and related factors in caregivers of patients with childhood-onset systemic lupus erythematosus. Clinical Rheumatology 40:12, pages 5025-5032.
Crossref
Crossref
Chris Feudtner, Russell T. Nye, Jackelyn Y. Boyden, Katherine E. Schwartz, Emilie R. Korn, Aaron G. Dewitt, Amy T. Waldman, Lisa A. Schwartz, Yuming A. Shen, Michael Manocchia, Rui Xiao, Blyth T. Lord & Douglas L. Hill. (2021) Association Between Children With Life-Threatening Conditions and Their Parents’ and Siblings’ Mental and Physical Health. JAMA Network Open 4:12, pages e2137250.
Crossref
Crossref
Kara Grace Hounsell, Clara Moore, Arielle Zahavi, Danielle Arje, Natalie Weiser, Kayla Esser, Kathy Netten, Joanna Soscia, Eyal Cohen & Julia Orkin. (2021) The Experience of Housing Needs Among Families Caring for Children With Medical Complexity. Pediatrics 148:1.
Crossref
Crossref
Anne E. FullerErzsébet Horváth-PuhóJoel G. Ray, Vera EhrensteinHenrik Toft Sørensen & Eyal Cohen. (2021) Mortality Among Parents of Children With Major Congenital Anomalies. Pediatrics 147:5.
Crossref
Crossref
Sophie Boursange. 2020. Handicap et génétique. Handicap et génétique
175
193
.
Kristin A. Long & Melissa A. Alderfer. 2020. Encyclopedia of Behavioral Medicine. Encyclopedia of Behavioral Medicine
1340
1343
.
Nora Fayed, Astrid Guttmann, Allison Chiu, Meghan Gardecki, Julia Orkin, Jemila S Hamid, Nathalie Major, Audrey Lim & Eyal Cohen. (2018) Family‐provider consensus outcomes for children with medical complexity. Developmental Medicine & Child Neurology 61:9, pages 1093-1100.
Crossref
Crossref
Eyal Cohen, Erzsébet Horváth-Puhó, Joel G. Ray, Lars Pedersen, Vera Ehrenstein, Nancy Adler, Simone Vigod, Arnold Milstein & Henrik Toft Sørensen. (2018) Cardiovascular Disease Among Women Who Gave Birth to an Infant With a Major Congenital Anomaly. JAMA Network Open 1:5, pages e182320.
Crossref
Crossref
Amanda Fonash. (2018) The Role of the Medical Social Worker in a Pediatric Aero-Digestive Program. Current Problems in Pediatric and Adolescent Health Care 48:4, pages 111-112.
Crossref
Crossref
P. Lazzarin, B. Schiavon, L. Brugnaro & F. Benini. (2017) Parents spend an average of nine hours a day providing palliative care for children at home and need to maintain an average of five life‐saving devices. Acta Paediatrica 107:2, pages 289-293.
Crossref
Crossref
Francisco José Climent Alcalá, Marta García Fernández de Villalta, Luis Escosa García, Aroa Rodríguez Alonso & Luis Adolfo Albajara Velasco. (2018) Unidad de niños con patología crónica compleja. Un modelo necesario en nuestros hospitales. Anales de Pediatría 88:1, pages 12-18.
Crossref
Crossref
Francisco José Climent Alcalá, Marta García Fernández de Villalta, Luis Escosa García, Aroa Rodríguez Alonso & Luis Adolfo Albajara Velasco. (2018) Children's medically complex diseases unit. A model required in all our hospitals. Anales de Pediatría (English Edition) 88:1, pages 12-18.
Crossref
Crossref
H. Edelstein, J. Schippke, S. Sheffe & S. Kingsnorth. (2016) Children with medical complexity: a scoping review of interventions to support caregiver stress. Child: Care, Health and Development 43:3, pages 323-333.
Crossref
Crossref
Kaori Nishigaki, Yutaka Kanamori, Mari Ikeda, Masahiko Sugiyama, Hideko Minowa & Kiyoko Kamibeppu. (2016) Changes in Mothers' Psychosocial Perceptions of Technology-dependent Children and Adolescents at Home in Japan: Acknowledgement of Children's Autonomy. Asian Nursing Research 10:2, pages 100-105.
Crossref
Crossref
Andrew F. BeckMegan M. TschudyTumaini R. CokerKamila B. Mistry, Joanne E. CoxBenjamin A. Gitterman, Lisa J. ChamberlainAimee M. GraceMichael K. HolePerri E. KlassKatherine S. LobachChristine T. MaDipesh NavsariaKimberly D. Northrip, Matthew D. Sadof, Anita N. ShahArthur H. Fierman. (2016) Determinants of Health and Pediatric Primary Care Practices. Pediatrics 137:3.
Crossref
Crossref
Brenda A. Senger, Linda D. Ward, Celestina Barbosa-Leiker & Ruth C. Bindler. (2016) Stress and coping of parents caring for a child with mitochondrial disease. Applied Nursing Research 29, pages 195-201.
Crossref
Crossref
Samuel W. Logan, Heather A. Feldner, James C. Galloway & Hsiang-Han Huang. (2016) Modified Ride-on Car Use by Children With Complex Medical Needs. Pediatric Physical Therapy 28:1, pages 100-107.
Crossref
Crossref
Rebecca Okashah, Kelly Schoch, Stephen R. Hooper, Vandana Shashi & Nancy Callanan. (2014) Parental Communication and Experiences and Knowledge of Adolescent Siblings of Children with 22q11.2 Deletion Syndrome. Journal of Genetic Counseling 24:5, pages 752-759.
Crossref
Crossref
Pei-Ching Liu, Bih-Shya Gau & Chao-Chia Hung. (2015) Development and Psychometric Testing of a Chinese Version of the Caregiver Burden Index for Parents of Children With Allergies. Journal of Pediatric Nursing 30:1, pages 208-218.
Crossref
Crossref
Maman Joyce Dogba, Frank Rauch, Erin Douglas & Christophe Bedos. (2014) Impact of three genetic musculoskeletal diseases: a comparative synthesis of achondroplasia, Duchenne muscular dystrophy and osteogenesis imperfecta. Health and Quality of Life Outcomes 12:1.
Crossref
Crossref
Semra Topuz, Özlem Ülger, Bülent Elbasan, Hatice Yakut & Yavuz Ayhan. (2014) Türkiye’de farkli engellere sahip çocuklarin annelerinin yaşam kalitesinin ve psikososyal destek ihtiyaçlarinin araştirilmasi: pilot çalişmaInvestigation of the quality of life and psychosocial support needs of the mothers having children with different disabilities in turkey: a pilot study. Türk Fizyoterapi ve Rehabilitasyon Dergisi/Turkish Journal of Physiotherapy and Rehabilitation 25:2.
Crossref
Crossref
Kipyn Miller. (2013) Care Coordination Impacts on Access to Care for Children with Special Health Care Needs Enrolled in Medicaid and CHIP. Maternal and Child Health Journal 18:4, pages 864-872.
Crossref
Crossref
Debra Zand, Katherine Pierce, Nicole Thomson, M. Baig, Cristiana Teodorescu, Sohail Nibras & Rolanda Maxim. (2014) Social Competence in Infants and Toddlers with Special Health Care Needs: The Roles of Parental Knowledge, Expectations, Attunement, and Attitudes toward Child Independence. Children 1:1, pages 5-20.
Crossref
Crossref
Roberta S. Rehm. (2013) Nursing's contribution to research about parenting children with complex chronic conditions: An?integrative?review, 2002 to 2012. Nursing Outlook 61:5, pages 266-290.
Crossref
Crossref
Kalliopi Sofou. (2013) Mitochondrial Disease. Journal of Child Neurology 28:5, pages 663-667.
Crossref
Crossref
Eyal Cohen, Nicole Yantzi, Jun Guan, Kelvin Lam & Astrid Guttmann. (2013) Residential movement patterns of families of young children with chronic conditions in Ontario, Canada: a population-based cohort study. International Journal for Equity in Health 12:1, pages 62.
Crossref
Crossref
David G. Rosenthal, Nicole Learned, Ying-Hua Liu & Michael Weitzman. (2012) Characteristics of Fathers with Depressive Symptoms. Maternal and Child Health Journal 17:1, pages 119-128.
Crossref
Crossref
Eyal CohenJay G. Berry, Ximena CamachoGeoff AndersonWalter Wodchis & Astrid Guttmann. (2012) Patterns and Costs of Health Care Use of Children With Medical Complexity. Pediatrics 130:6, pages e1463-e1470.
Crossref
Crossref
Tamara D. Simon, Sanjay Mahant & Eyal Cohen. (2012) Pediatric Hospital Medicine and Children with Medical Complexity: Past, Present, and Future. Current Problems in Pediatric and Adolescent Health Care 42:5, pages 113-119.
Crossref
Crossref
Owen Barr. (2012) Supporting the families of learning-disabled children. Independent Nurse 2012:4.
Crossref
Crossref
Valerie Boebel Toly, Carol M. Musil & John C. Carl. (2011) A longitudinal study of families with technology‐dependent children. Research in Nursing & Health 35:1, pages 40-54.
Crossref
Crossref
Elaine Sigalet, Karen Benzies & Shelley R Bouchal. (2011) Caregivers of children with special health needs work the healthcare professional relationship to enhance perceptions of competence. Journal of Nursing and Healthcare of Chronic Illness 3:4, pages 436-444.
Crossref
Crossref
Eyal CohenDennis Z. KuoRishi AgrawalJay G. BerrySanti K. M. BhagatTamara D. Simon & Rajendu Srivastava. (2011) Children With Medical Complexity: An Emerging Population for Clinical and Research Initiatives. Pediatrics 127:3, pages 529-538.
Crossref
Crossref
Évelyne Bouteyre . (2010) La résilience face aux tracas quotidiens vécus par les parents d'enfant malade ou handicapé. Bulletin de psychologie Numéro 510:6, pages 423-428.
Crossref
Crossref
E. Cohen, J. N. Friedman, S. Mahant, S. Adams, V. Jovcevska & P. Rosenbaum. (2010) The impact of a complex care clinic in a children's hospital. Child: Care, Health and Development 36:4, pages 574-582.
Crossref
Crossref
Kyung Ran Kim, Eun Lee, Kee Namkoong, Young Mock Lee, Joon Soo Lee & Heung Dong Kim. (2010) Caregiver's Burden and Quality of Life in?Mitochondrial Disease. Pediatric Neurology 42:4, pages 271-276.
Crossref
Crossref
Elizabeth Larson. (2010) Psychological Well-Being and Meaning-Making When Caregiving for Children with Disabilities: Growth through Difficult Times or Sinking Inward. OTJR: Occupation, Participation and Health 30:2, pages 78-86.
Crossref
Crossref
Elizabeth Larson. (2009) Identifying indicators of well‐being for caregivers of children with disabilities. Occupational Therapy International 17:1, pages 29-39.
Crossref
Crossref
Shervin S. Churchill, Nanci L. Villareale, Teresa A. Monaghan, Virginia L. Sharp & Gail M. Kieckhefer. (2008) Parents of Children with Special Health Care Needs Who have Better Coping Skills have Fewer Depressive Symptoms. Maternal and Child Health Journal 14:1, pages 47-57.
Crossref
Crossref
Janice M. Haley. (2008) A Transcultural Strengths Assessment Interview Guide for Parent Caregivers. Home Health Care Management & Practice 21:2, pages 90-98.
Crossref
Crossref
Corinne van Scheppingen, Ant T. Lettinga, José C. Duipmans, Karel G. B. Maathuis & Marcel F. Jonkman. (2008) The Main Problems of Parents of a Child With Epidermolysis Bullosa. Qualitative Health Research 18:4, pages 545-556.
Crossref
Crossref
Lori S. Lauver. (2008) Parenting Foster Children With Chronic Illness and Complex Medical Needs. Journal of Family Nursing 14:1, pages 74-96.
Crossref
Crossref
Sherri L. Adams & Sanjay Mahant. 2007. Comprehensive Pediatric Hospital Medicine. Comprehensive Pediatric Hospital Medicine
1185
1187
.
Katherine Wang, Alan Barnard & Margarette Somerville. 2007. Technology and Nursing. Technology and Nursing
60
72
.
Marion F. Winkler, Vicki M. Ross, Ubolrat Piamjariyakul, Byron Gajewski & Carol E. Smith. (2006) Technology Dependence in Home Care: Impact on Patients and Their Family Caregivers. Nutrition in Clinical Practice 21:6, pages 544-556.
Crossref
Crossref
Roberta S. Rehm & Joan F. Bradley. (2006) Social Interactions at School of Children Who Are Medically Fragile and Developmentally Delayed. Journal of Pediatric Nursing 21:4, pages 299-307.
Crossref
Crossref
Evelyn B. Enrione, Barbara Thomlison & Aviva Rubin. (2005) Medical and Psychosocial Experiences of Family Caregivers With Children Fed Enterally at Home. Journal of Parenteral and Enteral Nutrition 29:6, pages 413-419.
Crossref
Crossref
Roberta S. Rehm & Joan F. Bradley. (2016) Normalization in Families Raising a Child Who Is Medically Fragile/Technology Dependent and Developmentally Delayed. Qualitative Health Research 15:6, pages 807-820.
Crossref
Crossref
Whitney Boling. (2005) The Health of Chronically Ill Children. Family & Community Health 28:2, pages 176-183.
Crossref
Crossref
Roberta S. Rehm & Joan F. Bradley. (2016) The Search for Social Safety and Comfort in Families Raising Children With Complex Chronic Conditions. Journal of Family Nursing 11:1, pages 59-78.
Crossref
Crossref
Janice HaleyRosanne C. Harrigan. (2016) Voicing the Strengths of Pacific Island Parent Caregivers of Children Who are Medically Fragile. Journal of Transcultural Nursing 15:3, pages 184-194.
Crossref
Crossref