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Original

SICKLE CELL DISEASE: A STIGMATIZING CONDITION THAT MAY LEAD TO DEPRESSION

, PhD, RN, AOCN, , PhD, RN, FAAN & , PhD, RN, FAAN
Pages 1081-1101 | Published online: 09 Jul 2009

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Matthew O. Olasupo, Dare A. Fagbenro, Boluwatife Oluwagbamila & Mobolaji G. Olasupo. (2023) Emotional reaction to pain as predictor of depression among selected Nigerians living with sickle cell disease in Ile-Ife. Psychology, Health & Medicine 28:4, pages 1030-1038.
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Robert M. Cronin, Jane S. Hankins, Jeannie Byrd, Brandi M. Pernell, Adetola Kassim, Patricia Adams-Graves, Alexis A. Thompson, Karen Kalinyak, Michael R. DeBaun & Marsha Treadwell. (2018) Modifying factors of the health belief model associated with missed clinic appointments among individuals with sickle cell disease. Hematology 23:9, pages 683-691.
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Alphanso Blake, Vikram Asnani, Robin R. Leger, June Harris, Victoria Odesina, Daileann L. Hemmings, Denise A. Morris, Jennifer Knight-Madden, Linda Wagner & Monika Rani Asnani. (2018) Stigma and illness uncertainty: adding to the burden of sickle cell disease. Hematology 23:2, pages 122-130.
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Marcella Smith & Regina T. Praetorius. (2015) The Challenges and Opportunities Associated with Sickle Cell Disease Prevention, Education, and Management. Social Work in Public Health 30:7, pages 592-612.
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Coretta Jenerette, Cheryl A. Brewer, Jamie Crandell & Kenneth I. Ataga. (2012) Preliminary Validity and Reliability of the Sickle Cell Disease Health-Related Stigma Scale. Issues in Mental Health Nursing 33:6, pages 363-369.
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Miriam H. Feliu, Chante Wellington, Regina D. Crawford, Mary Wood, Lekisha Edwards, Goldie Byrd & Christopher L. Edwards. (2011) Opioid Management and Dependency Among Adult Patients with Sickle Cell Disease. Hemoglobin 35:5-6, pages 485-494.
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Maria Lysandrou, Nives Quaye, Kristina Landes, Regina D. Crawford, Payal Desai, Susan Creary, Patrick M. Schnell & Robert M. Cronin. (2024) Evaluating self- vs interviewer-administered screening for depression in sickle cell disease. Blood Advances 8:3, pages 699-702.
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Deepa Bhat, Bontha V. Babu, Shaily B. Surti, Manoranjan Ranjit, Jatin Sarmah, Parikipandla Sridevi & Yogita Sharma. (2023) Stigma of sickle cell disease among Indian tribal population: A multi-centric qualitative study. Journal of the National Medical Association 115:6, pages 556-565.
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Ming Chen, Kenneth I. Ataga, Jane S. Hankins, Min Zhang, Justin D. Gatwood, Jim Y. Wan & James E. Bailey. (2023) Age-related differences in risks and outcomes of 30-day readmission in adults with sickle cell disease. Annals of Hematology 102:9, pages 2329-2342.
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Kelly M. Harris, Liliana Preiss, Taniya Varughese, Anna Bauer, Cecelia L. Calhoun, Marsha Treadwell, Rita Masese, Jane S. Hankins, Faiz Ahmed Hussain, Jeffrey Glassberg, Cathy L. Melvin, Robert Gibson & Allison A. King. (2023) Examining Mental Health, Education, Employment, and Pain in Sickle Cell Disease. JAMA Network Open 6:5, pages e2314070.
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Cara Nikolajski, Julia O'Brien, Emily Nardo, Eva Szigethy & Charles Jonassaint. (2023) Tailoring a Digital Mental Health Program for Patients With Sickle Cell Disease: Qualitative Study. JMIR Mental Health 10, pages e44216.
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Charles R. Jonassaint, Julia O’Brien, Emily Nardo, Robert Feldman, Michael Stanton, Laura DeCastro & Kaleab Z. Abebe. (2022) Prevalence of Substance Use Disorders in Sickle Cell Disease Compared to Other Chronic Conditions: a Population-Based Study of Black American Adults. Journal of General Internal Medicine 38:5, pages 1214-1223.
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Wally R. Smith, Donna K. McClish, Viktor E. Bovbjerg & Harjot K. Singh. (2022) Development and validation of the sickle cell stress scale‐adult. European Journal of Haematology 109:3, pages 215-225.
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Ana Trpchevska, Jennifer Longoria, Victoria Okhomina, Darcy Raches, Brian Potter, Guolian Kang, Andrew M Heitzer & Jane S Hankins. (2022) Adaptive Functioning in Children and Adolescents With Sickle Cell Disease. Journal of Pediatric Psychology 47:8, pages 939-951.
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Nadine S. Matthie, Dora L. Clayton-Jones & Coretta M. Jenerette. (2022) “Into the Lion’s Den”: COVID-19 Experiences of Black Adults with Sickle Cell Disease. Qualitative Health Research 32:8-9, pages 1328-1341.
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M Alsalman, A Alhabrati, A Alkuwaiti, N Alramadhan, N AlMurayhil, A Althafar & A Alsaad. (2022) Depression among patient with sickle cell disease: Prevalence and prediction. Nigerian Journal of Clinical Practice 25:8, pages 1274.
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Osita Ezenwosu, Barth Chukwu, Ifeyinwa Ezenwosu, Ndubuisi Uwaezuoke, Christopher Eke, Maria Udorah, Chinedu Idoko, Anthony Ikefuna & Ifeoma Emodi. (2021) Clinical depression in children and adolescents with sickle cell anaemia: influencing factors in a resource-limited setting. BMC Pediatrics 21:1.
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Stacy Desine, Lena Eskin, Vence L. Bonham & Laura M. Koehly. (2021) Social support networks of adults with sickle cell disease. Journal of Genetic Counseling 30:5, pages 1418-1427.
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Ifigenia Mougianis, Lindsey L Cohen, Sarah Martin, Caitlin Shneider & Meredith Bishop. (2020) Racism and Health-Related Quality of Life in Pediatric Sickle Cell Disease: Roles of Depression and Support. Journal of Pediatric Psychology 45:8, pages 858-866.
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Henry K. Onyeaka, Uwandu Queeneth, Wahida Rashid, Naveed Ahmad, Shanthini Kuduva Rajan, Paul Rahul Jaladi & Rikinkumar S. Patel. (2019) Impact of Depression in Sickle Cell Disease Hospitalization-Related Outcomes: An Analysis of the National Inpatient Sample (NIS). Medicina 55:7, pages 385.
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Mona A. Robbins, Lakeya S. McGill, Breanna M. Holloway & Shawn M. Bediako. (2019) Sickle Cell Disease, More Than Just Pain: The Mediating Role of Psychological Symptoms. Southern Medical Journal 112:5, pages 253-258.
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Sarah R. Martin, Lindsey L. Cohen, Ifigenia Mougianis, Anya Griffin, Soumitri Sil & Carlton Dampier. (2018) Stigma and Pain in Adolescents Hospitalized for Sickle Cell Vasoocclusive Pain Episodes. The Clinical Journal of Pain 34:5, pages 438-444.
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Robin R. Leger, Linda D. Wagner & Victoria Odesina. (2018) Stigma in adults with sickle cell disease and family members: Scale development and pilot study in the USA and Nigeria. International Journal of Africa Nursing Sciences 9, pages 23-29.
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Vincent A. Adzika, Franklin N. Glozah, Desmond Ayim-Aboagye & Collins S. K. Ahorlu. (2017) Socio-demographic characteristics and psychosocial consequences of sickle cell disease: the case of patients in a public hospital in Ghana. Journal of Health, Population and Nutrition 36:1.
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Soheir S. Adam, Charlene M. FlahiffShital Kamble, Marilyn J. TelenShelby D. Reed & Laura M. De Castro. (2017) Depression, quality of life, and medical resource utilization in sickle cell disease. Blood Advances 1:23, pages 1983-1992.
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Denise Hibbert, Ahmad E. Aboshaiqah, Kathy A. Sienko, Debra Forestell, Adel W. Harb, Shadia A. Yousuf, Patricia W. Kelley, Patricia F. Brennan, Laura Serrant & Alison Leary. (2017) Advancing Nursing Practice: The Emergence of the Role of Advanced Practice Nurse in Saudi Arabia. Annals of Saudi Medicine 37:1, pages 72-78.
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Kimberly M. Wesley, Mimi Zhao, Yvonne Carroll & Jerlym S. Porter. (2016) Caregiver Perspectives of Stigma Associated With Sickle Cell Disease in Adolescents. Journal of Pediatric Nursing 31:1, pages 55-63.
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Arthur M. Nezu, Kelly S. McClure & Christine M. Nezu. 2015. Treating Depression. Treating Depression 24 51 .
Titilope A. Adeyemo, Oyesola O. Ojewunmi, Ijeoma N. Diaku‐Akinwumi, Oluwaseyi C. Ayinde & Alani S. Akanmu. (2015) Health related quality of life and perception of stigmatisation in adolescents living with sickle cell disease in Nigeria: A cross sectional study. Pediatric Blood & Cancer 62:7, pages 1245-1251.
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Rita N. Lukoo, René M. Ngiyulu, Gilbert L. Mananga, Jean-Lambert Gini-Ehungu, Pépé M. Ekulu, Pierre M. Tshibassu & Michel N. Aloni. (2015) Depression in Children Suffering From Sickle Cell Anemia. Journal of Pediatric Hematology/Oncology 37:1, pages 20-24.
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Stefani O'Connor, Deborah Hanes, Amy Lindsey, Mary Weiss, Lorie Petty & Janine Overcash. (2014) Attitudes Among Healthcare Providers and Patients Diagnosed With Sickle Cell Disease. Clinical Journal of Oncology Nursing 18:6, pages 675-680.
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Marsha J. Treadwell, Kathryn Hassell, Roger Levine & San Keller. (2014) Adult Sickle Cell Quality-of-Life Measurement Information System (ASCQ-Me). The Clinical Journal of Pain 30:10, pages 902-914.
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Tal Katz & Jeffery C. Schatz. (2014) Overlapping Biological Mechanisms Underlying Sickle Cell Disease, Stress, and Depression. Harvard Review of Psychiatry 22:4, pages 205-215.
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Moji Anderson & Monika Asnani. (2013) “You Just Have to Live With It”. Qualitative Health Research 23:5, pages 655-664.
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Alexander Moffett & Lainie Friedman Ross. (2011) A pilot study to determine whether health care professionals perceive stigma in heterozygote carrier identification and disclosure decisions. American Journal of Medical Genetics Part A 155:8, pages 1897-1905.
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Shawn M. BediakoEnrique W. NeblettJrJr. (2010) Optimism and Perceived Stress in Sickle-Cell Disease: The Role of an Afrocultural Social Ethos. Journal of Black Psychology 37:2, pages 234-253.
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Felipe José Nascimento Barreto & Rosana Cipolotti. (2011) Sintomas depressivos em crianças e adolescentes com anemia falciforme. Jornal Brasileiro de Psiquiatria 60:4, pages 277-283.
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Monika R Asnani, Raphael Fraser, Norma A Lewis & Marvin E Reid. (2010) Depression and loneliness in Jamaicans with sickle cell disease. BMC Psychiatry 10:1.
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Coretta M. Jenerette & Cheryl Brewer. (2010) Health-Related Stigma in Young Adults With Sickle Cell Disease. Journal of the National Medical Association 102:11, pages 1050-1055.
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Christopher L. Edwards, Marquisha Green, Chanté C. Wellington, Malik Muhammad, Mary Wood, Miriam Feliu, Lekisha Edwards, LaBarron Hill, John J. SollersIIIIII, Crystal Barksdale, Elwood L. Robinson, Camela S. McDougald, Mary Abrams, Keith E. Whitfield, Goldie Byrd, Bob Hubbard, Monique Cola, Laura DeCastro & Janice McNeil. (2009) Depression, Suicidal Ideation, and Attempts in Black Patients With Sickle Cell Disease. Journal of the National Medical Association 101:11, pages 1090-1095.
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Lamia P. Barakat, D. Colette Nicolaou, Emily A. O’Hara & Sarah Levin Allen. 2009. Behavioral Approaches to Chronic Disease in Adolescence. Behavioral Approaches to Chronic Disease in Adolescence 253 267 .
Madeleine Becker, David J. Axelrod, Olu Oyesanmi, Dimitri D. Markov & Elisabeth J. Shakin Kunkel. (2007) Hematologic Problems in Psychosomatic Medicine. Psychiatric Clinics of North America 30:4, pages 739-759.
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