Citations (41)
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Krista Keilty & Cathy Daniels. (2018) Section 13: The published experience and outcomes of family caregivers when a child is on home mechanical ventilation. Canadian Journal of Respiratory, Critical Care, and Sleep Medicine 2:sup1, pages 88-93.
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Reshma Amin, Ian MacLusky, David Zielinski, Robert Adderley, Franco Carnevale, Jackie Chiang, Aurore Côté, Cathy Daniels, Patrick Daigneault, Christine Harrison, Sherri Katz, Krista Keilty, Carina Majaesic, Theo J. Moraes, April Price, Dhenuka Radhakrishnan, Adam Rapoport, Sheldon Spier, Surendran Thavagnanam, Manisha Witmans & Canadian Thoracic Society. (2017) Pediatric home mechanical ventilation: A Canadian Thoracic Society clinical practice guideline executive summary. Canadian Journal of Respiratory, Critical Care, and Sleep Medicine 1:1, pages 7-36.
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Valerie Boebel Toly & Carol M. Musil. (2015) Factors Related to Depressive Symptoms in Mothers of Technology-Dependent Children. Issues in Mental Health Nursing 36:7, pages 518-527.
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Kelly Trowbridge & Lisa Mische-Lawson. (2014) Families With Children With Medical Complexity and Self-Management of Care: A Systematic Review of the Literature. Social Work in Health Care 53:7, pages 640-658.
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Sharon I. Sarvey. (2008) Living with a Machine: The Experience of the Child Who is Ventilator Dependent. Issues in Mental Health Nursing 29:2, pages 179-196.
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Articles from other publishers (36)
Marco Zampoli, Jane Booth, Diane M. Gray & Aneesa Vanker. (2023) Home ventilation in low resource settings: Learning to do more, with less. Pediatric Pulmonology.
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Natalie Pitch, Anam Shahil, Samantha Mekhuri, Munazzah Ambreen, Stephanie Chu, Krista Keilty, Eyal Cohen, Julia Orkin & Reshma Amin. (2023) Caring for children with new medical technology at home: parental perspectives. BMJ Paediatrics Open 7:1, pages e002062.
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Valerie Boebel Toly, Jaclene A. Zauszniewski, Ming Wang, Katie N. Russell, Kristie Ross & Carol M. Musil. (2023) Efficacy of a Resourcefulness Intervention to Enhance the Physical and Mental Health of Parents Caring for Technology-dependent Children at Home: A Randomized Controlled Trial. Journal of Pediatric Health Care.
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Tugba Ramasli Gursoy, Tugba Sismanlar Eyuboglu, Ayse Tana Aslan, Sevgi Pekcan, Eda Zeynep Buyukkaya, Melih Hangul, Mehmet Kose, Isıl Irem Budakoglu & Sebnem Soysal. (2022) The associations between the clinical course of children with tracheostomy and their mothers' depression, burnout, burden, and self‐esteem. Journal of Clinical Nursing 32:13-14, pages 3412-3420.
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Valerie Boebel Toly, Marisa Fiala & Sharon Cohen. (2023) Postal Delivery of Sleep Monitoring Devices: Research Implications. Clinical Nursing Research 32:4, pages 699-704.
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Renee D. Boss. (2023) Palliative care for NICU survivors with chronic critical illness. Seminars in Fetal and Neonatal Medicine, pages 101446.
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Valerie Boebel Toly, Jaclene A. Zauszniewski, Jiao Yu, Abdus Sattar, Bethany Rusincovitch & Carol M. Musil. (2021) Resourcefulness Intervention Efficacy for Parent Caregivers of Technology-Dependent Children: A Randomized Trial. Western Journal of Nursing Research 44:3, pages 296-306.
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Akemi Matsuzawa, Junichi Arai, Yuko Shiroki & Akemi Hirasawa. (2022) Healthcare for children depend on medical technology and parental quality of life in Japan. Pediatrics International 64:1.
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Chris Feudtner, Russell T. Nye, Jackelyn Y. Boyden, Katherine E. Schwartz, Emilie R. Korn, Aaron G. Dewitt, Amy T. Waldman, Lisa A. Schwartz, Yuming A. Shen, Michael Manocchia, Rui Xiao, Blyth T. Lord & Douglas L. Hill. (2021) Association Between Children With Life-Threatening Conditions and Their Parents’ and Siblings’ Mental and Physical Health. JAMA Network Open 4:12, pages e2137250.
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Mayukh Rahman, Juliette Jeffreys & John Massie. (2021)
A narrative review of the experience and
decision‐making
for children on home mechanical ventilation
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Renee D. Boss, Carrie M. Henderson, Jessica C. Raisanen, Nicholas A. Jabre, Kelly Shipman & Benjamin S. Wilfond. (2021) Family Experiences Deciding For and Against Pediatric Home Ventilation. The Journal of Pediatrics 229, pages 223-231.
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Almala Pinar Ergenekon, Cansu Yilmaz Yegit, Muruvvet Cenk, Nilay Bas Ikizoglu, Emine Atag, Yasemin Gokdemir, Ela Erdem Eralp & Bulent Karadag. (2020) Depression and anxiety in mothers of home ventilated children before and during COVID‐19 pandemic. Pediatric Pulmonology 56:1, pages 264-270.
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Johannes Boettcher, Jonas Denecke, Claus Barkmann & Silke Wiegand-Grefe. (2020) Quality of Life and Mental Health in Mothers and Fathers Caring for Children and Adolescents with Rare Diseases Requiring Long-Term Mechanical Ventilation. International Journal of Environmental Research and Public Health 17:23, pages 8975.
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Lynn Shesser, Darcy Brodecki & Ruth Lebet. (2020) Family Perceptions of Quality of Life for Pediatric Home Ventilator Patients. Home Health Care Management & Practice 32:3, pages 148-155.
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Rahul Verma, Yasna Mehdian, Neel Sheth, Kathy Netten, Jean Vinette, Ashley Edwards, Joanna Polyviou, Julia Orkin & Reshma Amin. (2020) Screening for caregiver psychosocial risk in children with medical complexity: a cross-sectional study. BMJ Paediatrics Open 4:1, pages e000671.
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Jackelyn Y. BoydenDouglas L. HillKaren W. CarrollWynne E. MorrisonVictoria A. MillerChris Feudtner. (2020) The Association of Perceived Social Support with Anxiety over Time in Parents of Children with Serious Illnesses. Journal of Palliative Medicine 23:4, pages 527-534.
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Renee D. Boss, Jessica C. Raisanen, Kathryn Detwiler, Karen Fratantoni, Susan M. Huff, Kathryn Neubauer & Pamela K. Donohue. (2019) Lived Experience of Pediatric Home Health Care Among Families of Children With Medical Complexity. Clinical Pediatrics 59:2, pages 178-187.
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Yoke Hwee Chan, Carmen Zhi-Ruo Lim, Dianne Bautista, Rahul Malhotra & Truls Østbye. (2019) The Health and Well-Being of Caregivers of Technologically Dependent Children. Global Pediatric Health 6, pages 2333794X1882300.
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Rafael González, Amaya Bustinza, Sarah N. Fernandez, Miriam García, Silvia Rodriguez, Ma Ángeles García-Teresa, Mirella Gaboli, Silvia García, Olaia Sardón, Diego García, Antonio Salcedo, Antonio Rodríguez, Ma Carmen Luna, Arturo Hernández, Catalina González, Alberto Medina, Estela Pérez, Alicia Callejón, Juan D. Toledo, Mercedes Herranz & Jesús López-Herce. (2017) Quality of life in home-ventilated children and their families. European Journal of Pediatrics 176:10, pages 1307-1317.
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Seigo Suzuki, Iori Sato, Shun Emoto & Kiyoko Kamibeppu. (2017) Physio-psychological Burdens and Social Restrictions on Parents of Children With Technology Dependency are Associated With Care Coordination by Nurses. Journal of Pediatric Nursing 36, pages 124-131.
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Kaori Nishigaki, Yutaka Kanamori, Mari Ikeda, Masahiko Sugiyama, Hideko Minowa & Kiyoko Kamibeppu. (2016) Changes in Mothers' Psychosocial Perceptions of Technology-dependent Children and Adolescents at Home in Japan: Acknowledgement of Children's Autonomy. Asian Nursing Research 10:2, pages 100-105.
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Laura M. Sterni, Joseph M. Collaco, Christopher D. Baker, John L. Carroll, Girish D. Sharma, Jan L. Brozek, Jonathan D. Finder, Veda L. Ackerman, Raanan Arens, Deborah S. Boroughs, Jodi Carter, Karen L. Daigle, Joan Dougherty, David Gozal, Katharine Kevill, Richard M. Kravitz, Tony Kriseman, Ian MacLusky, Katherine Rivera-Spoljaric, Alvaro J. Tori, Thomas Ferkol & Ann C. Halbower. (2016) An Official American Thoracic Society Clinical Practice Guideline: Pediatric Chronic Home Invasive Ventilation. American Journal of Respiratory and Critical Care Medicine 193:8, pages e16-e35.
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Alexandre Lapillonne, Antoine Regnault, Véronique Gournay, Jean-Bernard Gouyon, Khadra Benmedjahed, Daniela Anghelescu, Benoit Arnould & Guy Moriette. (2013) Development of a questionnaire to assess the impact on parents of their infant’s bronchiolitis hospitalization. BMC Health Services Research 13:1.
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Valerie Boebel Toly, Carol M. Musil & John C. Carl. (2011) A longitudinal study of families with technology‐dependent children. Research in Nursing & Health 35:1, pages 40-54.
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Karen R. Fauman, Kenneth J. Pituch, Yong Y. Han, Matthew F. Niedner, Janella Reske & Ann Marie LeVine. (2011) Predictors of Depressive Symptoms in Parents of Chronically Ill Children Admitted to the Pediatric Intensive Care Unit. American Journal of Hospice and Palliative Medicine® 28:8, pages 556-563.
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CLARE DELANY, MERLE SPRIGGS, CRAIG L FRY & LYNN GILLAM. (2010) The Unique Nature of Clinical Ethics in Allied Health Pediatrics: Implications for Ethics Education. Cambridge Quarterly of Healthcare Ethics 19:4, pages 471-480.
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