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Original Article

Acceptance of Augmentative and Alternative Communication Technology by Persons with Amyotrophic Lateral Sclerosis

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Pages 113-122 | Published online: 12 Jul 2009

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Read on this site (19)

Allison Bean, Julia Zezinka, Carmen DiGiovine, Amy Miller Sonntag & Megan Case. (2023) A retrospective chart review of the patient population accessing augmentative & alternative communication at an urban assistive technology center. Assistive Technology 0:0, pages 1-7.
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Aaron Roel Porta, Jessica Garabal-Barbeira & Thais Pousada García. (2023) Impact on occupations and social participation derived from communication processes in people with amyotrophic lateral sclerosis. World Federation of Occupational Therapists Bulletin 79:2, pages 147-154.
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Betts Peters, Kerth O’Brien & Melanie Fried-Oken. (2022) A recent survey of augmentative and alternative communication use and service delivery experiences of people with amyotrophic lateral sclerosis in the United States. Disability and Rehabilitation: Assistive Technology 0:0, pages 1-14.
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Simon Judge, Steven Bloch & Christopher J. McDermott. (2019) Communication change in ALS: engaging people living with ALS and their partners in future research. Disability and Rehabilitation: Assistive Technology 14:7, pages 675-681.
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Imke Oosthuizen, Shakila Dada, Juan Bornman & Rajinder Koul. (2018) Message banking: Perceptions of persons with motor neuron disease, significant others and clinicians. International Journal of Speech-Language Pathology 20:7, pages 756-765.
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Esther Nathanson. (2017) Native voice, self-concept and the moral case for personalized voice technology. Disability and Rehabilitation 39:1, pages 73-81.
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. (2016) Reflections from Fellows of ISAAC. Augmentative and Alternative Communication 32:4, pages 233-240.
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Stephanie H. Felgoise, Vincenzo Zaccheo, Jason Duff & Zachary Simmons. (2016) Verbal communication impacts quality of life in patients with amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 17:3-4, pages 179-183.
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Andrew Geronimo, Helen E. Stephens, Steven J. Schiff & Zachary Simmons. (2015) Acceptance of brain-computer interfaces in amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 16:3-4, pages 258-264.
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Asieh Ahani, Karl Wiegand, Umut Orhan, Murat Akcakaya, Mohammad Moghadamfalahi, Hooman Nezamfar, Rupal Patel & Deniz Erdogmus. (2014) RSVP IconMessenger: icon-based brain-interfaced alternative and augmentative communication. Brain-Computer Interfaces 1:3-4, pages 192-203.
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Marco Caligari, Marco Godi, Simone Guglielmetti, Franco Franchignoni & Antonio Nardone. (2013) Eye tracking communication devices in amyotrophic lateral sclerosis: Impact on disability and quality of life. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 14:7-8, pages 546-552.
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Teresa Iacono, Katie Lyon, Hilary Johnson & Denise West. (2013) Experiences of adults with complex communication needs receiving and using low tech AAC: an Australian context. Disability and Rehabilitation: Assistive Technology 8:5, pages 392-401.
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Stephen N. Calculator. (2013) Parents’ Reports of Patterns of Use and Exposure to Practices Associated with AAC Acceptance by Individuals with Angelman Syndrome. Augmentative and Alternative Communication 29:2, pages 146-158.
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Sonja Körner, Michael Siniawski, Katja Kollewe, Klaus Jan Rath, Klaus Krampfl, Antonia Zapf, Reinhard Dengler & Susanne Petri. (2013) Speech therapy and communication device: Impact on quality of life and mood in patients with amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 14:1, pages 20-25.
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Cathy Binger, Laura Ball, Aimee Dietz, Jennifer Kent-Walsh, Joanne Lasker, Shelley Lund, Miechelle McKelvey & Wendy Quach. (2012) Personnel Roles in the AAC Assessment Process. Augmentative and Alternative Communication 28:4, pages 278-288.
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David R. Beukelman, Laura J. Ball & Susan Fager. (2008) An AAC Personnel Framework: Adults with Acquired Complex Communication Needs. Augmentative and Alternative Communication 24:3, pages 255-267.
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David R. Beukelman, Susan Fager, Laura Ball & Aimee Dietz. (2007) AAC for adults with acquired neurological conditions: A review. Augmentative and Alternative Communication 23:3, pages 230-242.
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Melanie Fried-Oken, Lynn Fox, Marie T. Rau, Jill Tullman, Glory Baker, Mary Hindal, Nancy Wile & Jau-Shin Lou. (2006) Purposes of AAC device use for persons with ALS as reported by caregivers. Augmentative and Alternative Communication 22:3, pages 209-221.
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Susan Fager$suffix/text()$suffix/text(), Karen Hux, David R. Beukelman & Renee Karantounis. (2006) Augmentative and Alternative Communication use and acceptance by adults with Traumatic Brain Injury. Augmentative and Alternative Communication 22:1, pages 37-47.
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Articles from other publishers (37)

Kevin M. Pitt, Sarah Brennan, Allison M. Sauerwein & Kristy Weissling. (2023) Preservice Training in Augmentative and Alternative Communication for Speech-Language Pathologists and Special Education Teachers: Prevalence and Preferences. Perspectives of the ASHA Special Interest Groups 8:6, pages 1456-1468.
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Sojung Kim & Yu-kyong Choe. (2023) Linking Clinic With Classroom in Intensive Focused Preservice Education on Augmentative and Alternative Communication. American Journal of Speech-Language Pathology 32:6, pages 2922-2939.
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Anna Huynh, Kerry Adams, Carolina Barnett-Tapia, Sanjay Kalra, Lorne Zinman & Yana Yunusova. (2023) Accessing and Receiving Speech-Language Pathology Services at the Multidisciplinary Amyotrophic Lateral Sclerosis Clinic: An Exploratory Qualitative Study of Patient Experiences and Needs. Journal of Speech, Language, and Hearing Research, pages 1-13.
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Yi Liu, Jun Suzurikawa & Kazuyuki Itoh. (2023) Quantitative Analysis of the Writing Performance of Persons with Neuromuscular Diseases using a Mouse-guided Writing Device. Quantitative Analysis of the Writing Performance of Persons with Neuromuscular Diseases using a Mouse-guided Writing Device.
Camille Paynter, Susan Mathers, Heidi Gregory, Adam P. Vogel & Madeline Cruice. (2022) The impact of communication on healthcare involvement for people living with motor neurone disease and their carers: A longitudinal qualitative study. International Journal of Language & Communication Disorders 57:6, pages 1318-1333.
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Nayera Tarek, Mariam Abo Mandour, Nada El-Madah, Reem Ali, Sara Yahia, Bassant Mohamed, Dina Mostafa & Sara El-Metwally. (2021) Morse glasses: an IoT communication system based on Morse code for users with speech impairments. Computing 104:4, pages 789-808.
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Suhee Kim & Sangeun Shin. (2022) Comparison between the Eyelink and the E-Tran Boards in Message Production of Healthy Adults. Communication Sciences & Disorders 27:1, pages 119-127.
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Paola Masiello. (2022) Technology to support autonomy in patients with Amyotrophic Lateral Sclerosis. Journal of Advanced Health Care, pages 47-52.
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Amy Roman, Carolyn Baylor, Lindsay Johnson & Maya Barton. (2021) Expanding Availability of Speech-Generating Device Evaluation and Treatment to People With Amyotrophic Lateral Sclerosis (pALS) Through Telepractice: Perspectives of pALS and Communication Partners. American Journal of Speech-Language Pathology 30:5, pages 2098-2114.
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Andres Eduardo Lorenzo Villalobos, Silvia Giusiano, Luca Musso, Claudio de’Sperati, Alessandra Riberi, Piotr Spalek, Andrea Calvo, Cristina Moglia & Silvestro Roatta. (2021) When assistive eye tracking fails: Communicating with a brainstem-stroke patient through the pupillary accommodative response – A case study. Biomedical Signal Processing and Control 67, pages 102515.
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Albert M. Cook, Janice M. Polgar & Pedro Encarnação. 2020. Assistive Technologies. Assistive Technologies 393 439 .
Cornelia Eicher, Jörn Kiselev, Kirsten Brukamp, Diana Kiemel, Susanne Spittel, André Maier, Thomas Meyer, Ursula Oleimeulen & Marius Greuèl. (2019) Experiences with assistive technologies and devices (ATD) in patients with amyotrophic lateral sclerosis (ALS) and their caregivers. Technology and Disability 31:4, pages 203-215.
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Michelle Westley, Dean Sutherland & H. Timothy Bunnell. (2019) Voice Banking to Support People Who Use Speech-Generating Devices: New Zealand Voice Donors' Perspectives. Perspectives of the ASHA Special Interest Groups 4:4, pages 593-600.
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Asieh Ahani, Mohammad Moghadamfalahi & Deniz Erdogmus. (2018) Language-Model Assisted and Icon-Based Communication Through a Brain–Computer Interface With Different Presentation Paradigms. IEEE Transactions on Neural Systems and Rehabilitation Engineering 26:9, pages 1835-1844.
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Jimin Lee & Michael Bell. (2018) Articulatory Range of Movement in Individuals With Dysarthria Secondary to Amyotrophic Lateral Sclerosis. American Journal of Speech-Language Pathology 27:3, pages 996-1009.
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Katharina Linse, Elisa Aust, Markus Joos & Andreas Hermann. (2018) Communication Matters—Pitfalls and Promise of Hightech Communication Devices in Palliative Care of Severely Physically Disabled Patients With Amyotrophic Lateral Sclerosis. Frontiers in Neurology 9.
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Giulio E. Lancioni, Nirbhay N. Singh, Mark F. O’Reilly, Vanessa A. Green, Larah Van der Meer, Gloria Alberti, Viviana Perilli, Adele Boccasini, Maria L. La Martire & Russell Lang. (2015) A Speech Generating Device for Persons with Intellectual and Sensory-Motor Disabilities. Journal of Developmental and Physical Disabilities 28:1, pages 85-98.
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Emanuele Pasqualotto, Tamara Matuz, Stefano Federici, Carolin A. Ruf, Mathias Bartl, Marta Olivetti Belardinelli, Niels Birbaumer & Sebastian Halder. (2015) Usability and Workload of Access Technology for People With Severe Motor Impairment. Neurorehabilitation and Neural Repair 29:10, pages 950-957.
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Jessica Caron & Janice Light. (2015) “My World Has Expanded Even Though I'm Stuck at Home”: Experiences of Individuals With Amyotrophic Lateral Sclerosis Who Use Augmentative and Alternative Communication and Social Media. American Journal of Speech-Language Pathology 24:4, pages 680-695.
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Melanie Fried-Oken, Aimee Mooney & Betts Peters. (2015) Supporting communication for patients with neurodegenerative disease. NeuroRehabilitation 37:1, pages 69-87.
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Jayanti Ray. (2014) Real-Life Challenges in Using Augmentative and Alternative Communication by Persons With Amyotrophic Lateral Sclerosis. Communication Disorders Quarterly 36:3, pages 187-192.
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Panying Rong, Yana Yunusova, Jun Wang & Jordan R. Green. (2015) Predicting Early Bulbar Decline in Amyotrophic Lateral Sclerosis: A Speech Subsystem Approach. Behavioural Neurology 2015, pages 1-11.
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Albert M. Cook & Janice M. Polgar. 2015. Assistive Technologies. Assistive Technologies 411 456 .
Andrea L. Smith, James W. Teener, Brian C. Callaghan, Jack Harrington & Wendy R. Uhlmann. (2014) Amyotrophic Lateral Sclerosis in a Patient with a Family History of Huntington Disease: Genetic Counseling Challenges. Journal of Genetic Counseling 23:5, pages 725-733.
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Stephen N. Calculator. (2013) Use and Acceptance of AAC Systems by Children with Angelman Syndrome. Journal of Applied Research in Intellectual Disabilities 26:6, pages 557-567.
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Miechelle McKelvey, David Beukelman, Norimune Kawai & David Evans. (2013) Nine Suggestions for the Professional Support of Persons With Amyotrophic Lateral Sclerosis as Recounted by Surviving Spouses: A Phenomenological Study. Perspectives on Augmentative and Alternative Communication 22:2, pages 120-124.
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Jenny Smith, Debi Adams & Colin W. Campbell. 2013. End of Life Care in Neurological Disease. End of Life Care in Neurological Disease 33 50 .
Laura J. Ball, Susan Fager & Melanie Fried-Oken. (2012) Augmentative and Alternative Communication for People with Progressive Neuromuscular Disease. Physical Medicine and Rehabilitation Clinics of North America 23:3, pages 689-699.
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Frances Layman, Cathryn Crowle & John Ravenscroft. 2012. Computers Helping People with Special Needs. Computers Helping People with Special Needs 353 360 .
David R. Beukelman, Jana Childes, Tom Carrell, Trisha Funk, Laura J. Ball & Gary L. Pattee. (2011) Perceived attention allocation of listeners who transcribe the speech of speakers with amyotrophic lateral sclerosis. Speech Communication 53:6, pages 801-806.
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David Beukelman, Susan Fager & Amy Nordness. (2011) Communication Support for People with ALS. Neurology Research International 2011, pages 1-6.
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Ben Bloom. (2010) A Case-Based Approach to Teaching Evidence-Based Practice and Motor Speech Disorders. Contemporary Issues in Communication Science and Disorders 37:Fall, pages 123-130.
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Kristy Weissling & Carrie Prentice. (2010) The Timing of Remediation and Compensation Rehabilitation Programs for Individuals With Acquired Brain Injuries: Opening the Conversation. Perspectives on Augmentative and Alternative Communication 19:3, pages 87-96.
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Chris Gibbons & Erin Beneteau. (2010) Functional Performance Using Eye Control and Single Switch Scanning by People With ALS. Perspectives on Augmentative and Alternative Communication 19:3, pages 64-69.
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Meg E. MorrisAlison Perry, Belinda Bilney, Andrea Curran, Karen Dodd, Joanne E. Wittwer & Gregory W. Dalton. (2016) Outcomes of Physical Therapy, Speech Pathology, and Occupational Therapy for People with Motor Neuron Disease: A Systematic Review. Neurorehabilitation and Neural Repair 20:3, pages 424-434.
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M. Guerrier. (2006) Quels sont les aspects éthiques des décisions de suppléance et de leur réversibilité ?. Revue Neurologique 162, pages 334-359.
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David R. Beukelman, Laura J. Ball & Gary L. Pattee. (2004) Intervention Decision-Making for Persons with Amyotrophic Lateral Sclerosis. The ASHA Leader 9:22, pages 4-5.
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