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Immunological Investigations
A Journal of Molecular and Cellular Immunology
Volume 46, 2017 - Issue 4
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Original Articles

Measurement of Health-Related Quality of Life in Primary Antibody-Deficient Patients

Bahar AtaeiniaResearch Center for Immunodeficiencies, Pediatrics Center of Excellence, Children’s Medical Center, Tehran University of Medical Sciences, Tehran, Iran;Students’ Scientific Research Center (SSRC), Tehran University of Medical Sciences, Tehran, Iran
,
Ali MontazeriIranian Institute for Health Sciences Research, Tehran, Iran
,
Marzieh TavakolResearch Center for Immunodeficiencies, Pediatrics Center of Excellence, Children’s Medical Center, Tehran University of Medical Sciences, Tehran, Iran;Department of Allergy and Clinical Immunology, Shahid Bahonar Hospital, Alborz University of Medical Sciences, Karaj, Iran
,
Gholamreza AziziResearch Center for Immunodeficiencies, Pediatrics Center of Excellence, Children’s Medical Center, Tehran University of Medical Sciences, Tehran, Iran;Department of Laboratory Medicine, Imam Hassan Mojtaba Hospital, Alborz University of Medical Sciences, Karaj, Iran
,
Fatemeh KiaeeResearch Center for Immunodeficiencies, Pediatrics Center of Excellence, Children’s Medical Center, Tehran University of Medical Sciences, Tehran, Iran
,
Naiimeh TavakoliniaResearch Center for Immunodeficiencies, Pediatrics Center of Excellence, Children’s Medical Center, Tehran University of Medical Sciences, Tehran, Iran
,
Babak NegahdariSchool of Advanced Technologies in Medicine, Department of Medical Biotechnology, Tehran University of Medical Sciences, Tehran, Iran
,
Javad MohammadiDepartment of Biomedical Engineering, Faculty of New Sciences and Technologies, University of Tehran, Tehran, Iran
,
Hassan AbolhassaniResearch Center for Immunodeficiencies, Pediatrics Center of Excellence, Children’s Medical Center, Tehran University of Medical Sciences, Tehran, Iran;Division of Clinical Immunology, Department of Laboratory Medicine, Karolinska Institutet at the Karolinska University Hospital Huddinge, Stockholm, Sweden
,
Nima RezaeiResearch Center for Immunodeficiencies, Pediatrics Center of Excellence, Children’s Medical Center, Tehran University of Medical Sciences, Tehran, Iran;Molecular Immunology Research Center, Pediatrics Center of Excellence, Children’s Medical Center, Tehran University of Medical Sciences, Tehran, Iran
&
Asghar AghamohammadiResearch Center for Immunodeficiencies, Pediatrics Center of Excellence, Children’s Medical Center, Tehran University of Medical Sciences, Tehran, IranCorrespondence[email protected]
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Pages 329-340 | Published online: 30 Mar 2017

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Roozbeh Sanaei, Nima Rezaei, Asghar Aghamohammadi, Ali-Akbar Delbandi, Parsova Tavasolian & Nader Tajik. (2019) Disturbed Transcription of TLRs’ Negative Regulators and Cytokines Secretion among TLR4- and 9-Activated PBMCs of Agammaglobulinemic Patients. Immunological Investigations 48:8, pages 860-874.
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Ruwaydah Ahmed Meelad, Intan Juliana Abd Hamid, Zarina Thasneem Zainudeen, Ilie Fadzilah Hashim, Muhd Nur Akmal Azizuddin, Ernest Mangantig, Fahisham Taib, Norsarwany Mohamad, Intan Hakimah Ismail, Amir Hamzah Abdul Latiff & Lokman Mohd Noh. (2023) Health-Related Quality of Life of Patients and Families with Primary Immunodeficiency in Malaysia: a Cross-Sectional Study. Journal of Clinical Immunology 43:5, pages 999-1006.
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Bruno Ivo De AlmeidaTammy L. SmithAlen DelicLawanda EsquibelJonathan GalliLeah MillsapM. Mateo Paz SoldánMelissa M. Cortez, John RoseJohn E. Greenlee, Adi V. GundlapalliHarry R. HillKa-Ho WongStacey L. Clardy. (2023) Neurologic Manifestations of Common Variable Immunodeficiency. Neurology Neuroimmunology & Neuroinflammation 10:3.
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Saliha Esenboğa, Ayşegül Akarsu, Hacer Neslihan Bildik, Deniz Çağdaş & İlhan Tezcan. (2022) Evaluation of Health Status and Quality of Life in Patients Using Intravenous and Subcutaneous Forms of Immunoglobulin Replacement. Journal of Ankara University Faculty of Medicine 75:1, pages 77-83.
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John T. Anderson, Juthaporn Cowan, Antonio Condino-Neto, Donald Levy & Subhransu Prusty. (2022) Health-related quality of life in primary immunodeficiencies: Impact of delayed diagnosis and treatment burden. Clinical Immunology 236, pages 108931.
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Per Wågström, Åsa Nilsdotter-Augustinsson, Mats Nilsson, Janne Björkander, Charlotte Dahle & Sofia Nyström. (2022) Fatigue Is Common in Immunoglobulin G Subclass Deficiency and Correlates With Inflammatory Response and Need for Immunoglobulin Replacement Therapy. Frontiers in Immunology 12.
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Bharat Kumar, Samuel Zetumer, Melissa Swee, Ellen L Keyser Endelman, Manish Suneja & Benjamin Davis. (2022) Reducing Delays in Diagnosing Primary Immunodeficiency Through the Development and Implementation of a Clinical Decision Support Tool: Protocol for a Quality Improvement Project. JMIR Research Protocols 11:1, pages e32635.
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Georgina Jones, Eva Brown Hajdukova, Esmee Hanna, Rosie Duncan, Brendan Gough, Jane Hughes, Debbie Hughes, Fran Ashworth, Johan Prevot, Jose Drabwell, Leire Solis, Nizar Mahlaoui & Anna Shrimpton. (2021) It’s long-term, well it’s for life basically: Understanding and exploring the burden of immunoglobulin treatment in patients with primary immunodeficiency disorders. Qualitative Research in Medicine and Healthcare 4:3.
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Rhea A. Bansal, Susan Tadros & Amolak S. Bansal. (2020) The presence of overlapping quality of life symptoms in primary antibody deficiency (PAD) and chronic fatigue syndrome (CFS). Allergy, Asthma & Clinical Immunology 16:1.
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Saida Ridao-Manonellas, Anna Fábregas-Bofill, Gloria Núñez-Rueda, Míriam González-Amores, Marina García-Prat, Laura López-Seguer, Jacques G. Rivière, Andrea Martín-Nalda, Natalia Mendoza-Palomar, Susana Melendo-Pérez & Pere Soler-Palacín. (2020) Health-Related Quality of Life and Multidimensional Fatigue Scale in Children with Primary Immunodeficiencies. Journal of Clinical Immunology 40:4, pages 602-609.
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Jintana B. Andersen, Knut Midttun & Kristin J. B. Feragen. (2019) Measuring quality of life of primary antibody deficiency patients using a disease-specific health-related quality of life questionnaire for common variable immunodeficiency (CVID_QoL). Journal of Patient-Reported Outcomes 3:1.
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Dmitrii Peshko, Ekaterina Kulbachinskaya, Ilya Korsunskiy, Elena Kondrikova, Federica Pulvirenti, Isabella Quinti, Oleg Blyuss, Audrey Dunn Galvin & Daniel Munblit. (2019) Health-Related Quality of Life in Children and Adults with Primary Immunodeficiencies: A Systematic Review and Meta-Analysis. The Journal of Allergy and Clinical Immunology: In Practice 7:6, pages 1929-1957.e5.
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Ana Luisa Abrahão Dias, Raquel Gomes da Silva, Fernanda Gonçalves Pereira Cunha, André Moreno Morcillo, Irene Lorand‐Metze, Maria Marluce dos Santos Vilela & Adriana Gut Lopes Riccetto. (2019) Managing costs in primary immunodeficiency: minimal immunophenotyping and three national references. APMIS 127:4, pages 228-235.
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Federica Pulvirenti, Francesco Cinetto, Antonio Pecoraro, Maria Carrabba, Ludovica Crescenzi, Raffaella Neri, Livia Bonanni, Giovanna Fabio, Carlo Agostini, Giuseppe Spadaro, Stefano Tabolli, Albert Farrugia, Isabella Quinti & Cinzia Milito. (2019) Health-Related Quality of Life in Patients with CVID Under Different Schedules of Immunoglobulin Administration: Prospective Multicenter Study. Journal of Clinical Immunology 39:2, pages 159-170.
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Lisanne M. A. Janssen, Paul Bassett, Thomas Macken, Jolanda van Esch, Hans Pruijt, Arnoud Knoops, Markus Sköld, Antony Parker, Jolanda de Vries & Esther de Vries. (2018) Mild Hypogammaglobulinemia Can Be a Serious Condition. Frontiers in Immunology 9.
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Ulrich Baumann, John M. Routes, Pere Soler-Palacín & Stephen Jolles. (2018) The Lung in Primary Immunodeficiencies: New Concepts in Infection and Inflammation. Frontiers in Immunology 9.
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