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Corrine Dickinson, Jeanie Sheffield, Catherine Mak, Roslyn N. Boyd & Koa Whittingham. (2023) When a baby is diagnosed at high risk of cerebral palsy: understanding and meeting parent need. Disability and Rehabilitation 45:24, pages 4016-4024.
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Jeffrey McCrossin & Lucyna M. Lach. (2023) Measuring family outcomes in parenting programs for children with neurodisabilities: a scoping review. Journal of Family Social Work 26:2, pages 68-101.
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Jeffrey McCrossin, Lucyna Lach & Patrick McGrath. (2023) Content analysis of parent training programs for children with neurodisabilities and mental health or behavioral problems: a scoping review. Disability and Rehabilitation 45:1, pages 154-169.
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Ramesh Lamsal & Wendy J. Ungar. (2021) Impact of growing up with a sibling with a neurodevelopmental disorder on the quality of life of an unaffected sibling: a scoping review. Disability and Rehabilitation 43:4, pages 586-594.
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Carolyn E. Schwartz, Roland B. Stark, Wesley Michael & Bruce D. Rapkin. (2020) Understanding haemophilia caregiver burden: does appraisal buffer the impact of haemophilia on caregivers over time?. Psychology & Health 35:12, pages 1516-1530.
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Michelle Phoenix, Susan M. Jack, Peter L. Rosenbaum & Cheryl Missiuna. (2020) Parents' attendance, participation and engagement in children’s developmental rehabilitation services: Part 1. Contextualizing the journey to child health and happiness. Disability and Rehabilitation 42:15, pages 2141-2150.
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Genevieve Currie & Joanna Szabo. (2020) Social isolation and exclusion: the parents' experience of caring for children with rare neurodevelopmental disorders. International Journal of Qualitative Studies on Health and Well-being 15:1.
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Maria Cusinato, Vincenzo Calvo, Gianni Bisogno, Elisabetta Viscardi, Marta Pillon, Enrico Opocher, Giuseppe Basso & Maria Montanaro. (2017) Attachment orientations and psychological adjustment of parents of children with cancer: A matched-group comparison. Journal of Psychosocial Oncology 35:6, pages 726-740.
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Nico Vonneilich, Daniel Lüdecke & Christopher Kofahl. (2016) The impact of care on family and health-related quality of life of parents with chronically ill and disabled children. Disability and Rehabilitation 38:8, pages 761-767.
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JohnG. Orme, DonnaJ. Cherry & TaylorE. Krcek. (2013) Who Is Willing to Foster Children With Disabilities?. Journal of Public Child Welfare 7:5, pages 566-585.
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Annette Majnemer, Michael Shevell, Mary Law, Chantal Poulin & Peter Rosenbaum. (2012) Indicators of distress in families of children with cerebral palsy. Disability and Rehabilitation 34:14, pages 1202-1207.
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Alice Garrood, Gretchen Bjornstad, Aleksandra Borek, Annette Gillett, Jenny Lloyd, Sarah Brand, Mark Tarrant, Susan Ball, Annie Hawton, Annabel McDonald, Mary Fredlund, Fleur Boyle, Vashti Berry, Stuart Logan & Christopher Morris. (2023) Healthy Parent Carers: Acceptability and practicability of online delivery and learning through implementation by delivery partner organisations. Health Expectations 26:5, pages 2050-2063.
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Gretchen Bjornstad, Beth Cuffe-Fuller, Obioha C. Ukoumunne, Mary Fredlund, Annabel McDonald, Kath Wilkinson, Jenny Lloyd, Annie Hawton, Vashti Berry, Mark Tarrant, Aleksandra Borek, Katharine Fitzpatrick, Annette Gillett, Shelley Rhodes, Stuart Logan & Christopher Morris. (2021) Healthy Parent Carers: feasibility randomised controlled trial of a peer-led group-based health promotion intervention for parent carers of disabled children. Pilot and Feasibility Studies 7:1.
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Livio Provenzi, Serena Grumi, Elisa Rinaldi & Lorenzo Giusti. (2021) The porridge-like framework: A multidimensional guidance to support parents of children with developmental disabilities. Research in Developmental Disabilities 117, pages 104048.
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Matthew Joseph Russell, Craig William Michael Scott, Kara Murias, W. Ben Gibbard, Xinjie Cui, Suzanne Tough & Jennifer D. Zwicker. (2021) Cross-ministry data on service use and limitations faced by children in special education. Disability and Health Journal 14:4, pages 101118.
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Michelle Kowanda, Lindsey Cartner, Catherine Kentros, Alexa R. Geltzeiler, Kaitlyn E. Singer, W. Curtis Weaver, Christopher D. Lehman, Simone Smith, Rebecca Sheedy Smith, Lauren Kasparson Walsh, Katharine Diehl, Natalie Nagpal, Elizabeth Brooks, Caroline M. Mebane, Ashley L. Wilson, Alison R. Marvin, L. Casey White, J. Kiely Law, William Jensen, Amy M. Daniels, Jennifer Tjernagel, LeeAnne Green Snyder, Cora M. Taylor & Wendy K. Chung. (2021) Availability of Services and Caregiver Burden: Supporting Individuals With Neurogenetic Conditions During the COVID-19 Pandemic. Journal of Child Neurology 36:9, pages 760-767.
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Anna Zinkevich, Johanna Sophie Lubasch, Sarah Anna Katharina Uthoff, Jens Boenisch, Stefanie Kalén Sachse, Tobias Bernasconi & Lena Ansmann. (2021) Caregiver burden and proxy-reported outcomes of people without natural speech: a cross-sectional survey study. BMJ Open 11:8, pages e048789.
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Jenny Lloyd, Gretchen Bjornstad, Aleksandra Borek, Beth Cuffe-Fuller, Mary Fredlund, Annabel McDonald, Mark Tarrant, Vashti Berry, Kath Wilkinson, Siobhan Mitchell, Annette Gillett, Stuart Logan & Christopher Morris. (2021) Healthy Parent Carers programme: mixed methods process evaluation and refinement of a health promotion intervention. BMJ Open 11:8, pages e045570.
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