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Original Articles

Making sense of brain tumour: A qualitative investigation of personal and social processes of adjustment

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Pages 117-137 | Received 01 Aug 2010, Published online: 13 Dec 2010

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Read on this site (6)

Sabina Åke, Lena Hartelius, Asgeir S. Jakola & Malin Antonsson. (2023) Experiences of language and communication after brain-tumour treatment: A long-term follow-up after glioma surgery. Neuropsychological Rehabilitation 33:7, pages 1225-1261.
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Chelsea Nicol, Mark B Pinkham, Katarzyna Lion, Matthew Foote, Angela McBean, Mary Higgins, Elizabeth Conlon & Tamara Ownsworth. (2023) Individuals’ perceptions of health and well-being in the context of stereotactic radiosurgery for benign brain tumour: A longitudinal qualitative investigation. Neuropsychological Rehabilitation 0:0, pages 1-24.
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Lee Cubis, Tamara Ownsworth, Mark B. Pinkham, Matthew Foote, Heather Green & Suzanne Chambers. (2023) “Hey, I’m still here!”: Maintaining, managing and rebuilding social connections after brain tumour. Neuropsychological Rehabilitation 33:3, pages 454-479.
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Maria Grazia Maggio, Giuseppa Maresca, Maria Chiara Stagnitti, Smeralda Anchesi, Carmela Casella, Valentina Pajno, Rosaria De Luca, Alfredo Manuli & Rocco Salvatore Calabrò. (2022) Social cognition in patients with acquired brain lesions: An overview on an under-reported problem. Applied Neuropsychology: Adult 29:3, pages 419-431.
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Tamara Ownsworth, Lee Cubis, Tali Prasad, Matthew Foote, Melissa Kendall, Joanne Oram, Suzanne Chambers & Mark B. Pinkham. (2022) Feasibility and acceptability of a telehealth platform for delivering the Making Sense of Brain Tumour programme: A mixed-methods pilot study. Neuropsychological Rehabilitation 32:3, pages 378-406.
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Lee Cubis, Tamara Ownsworth, Mark B. Pinkham & Suzanne Chambers. (2018) The social trajectory of brain tumor: a qualitative metasynthesis. Disability and Rehabilitation 40:16, pages 1857-1869.
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Articles from other publishers (28)

Tamara Ownsworth, Suzanne Chambers, Stephanie Jones, Giverny Parker, Joanne F. Aitken, Matthew Foote, Louisa G. Gordon, David H. K. Shum, Julia Robertson, Elizabeth Conlon & Mark B. Pinkham. (2023) Evaluation of the telehealth making sense of brain tumor psychological support intervention for people with primary brain tumor and their caregivers: A randomized controlled trial. Psycho-Oncology.
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Ashlee R. Loughan, Morgan Reid, Kelcie D. Willis, Alexandria Davies, Rachel L. Boutté, Sarah Barrett & Karen Lo. (2022) The burden of a brain tumor: guiding patient centric care in neuro-oncology. Journal of Neuro-Oncology 157:3, pages 487-498.
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Milena Pertz, Uwe Schlegel & Patrizia Thoma. (2022) Sociocognitive Functioning and Psychosocial Burden in Patients with Brain Tumors. Cancers 14:3, pages 767.
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Marie Dahlberg, Ami Bylund, Petter Gustavsson, Teresa Herlestam Calero & Carolina Wannheden. (2022) What matters to persons living with brain tumors and their informal caregivers? An interview study of qualities in interpersonal relations. Social Science & Medicine 292, pages 114575.
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Ashlee R. Loughan, Kelcie Willis, Autumn Lanoye, Deborah Allen, Morgan Reid, Scott Ravyts, Rachel Boutte & Julia Brechbeil. 2022. Neurological Complications of Systemic Cancer and Antineoplastic Therapy. Neurological Complications of Systemic Cancer and Antineoplastic Therapy 611 634 .
Mary GrossmanMary Grossman. 2022. Promoting Healing and Resilience in People with Cancer: A Nursing Perspective. Promoting Healing and Resilience in People with Cancer: A Nursing Perspective 491 529 .
Tamara Ownsworth, Raymond J. Chan, Stephanie Jones, Julia Robertson & Mark B. Pinkham. (2020) Use of telehealth platforms for delivering supportive care to adults with primary brain tumors and their family caregivers: A systematic review. Psycho-Oncology 30:1, pages 16-26.
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Casey A. Jarvis, Michelle Lin, Li Ding, Alex Julian, Steven L. Giannotta, Gabriel Zada, William J. Mack & Frank J. Attenello. (2020) Comorbid depression associated with non-routine discharge following craniotomy for low-grade gliomas and benign tumors – a nationwide readmission database analysis. Acta Neurochirurgica 162:11, pages 2671-2681.
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Ben Rimmer, Lizzie Dutton, Joanne Lewis, Richéal Burns, Pamela Gallagher, Sophie Williams, Vera Araujo-Soares, Tracy Finch & Linda Sharp. (2020) Ways Ahead: developing a supported self-management programme for people living with low- and intermediate-grade gliomas - a protocol for a multi-method study. BMJ Open 10:7, pages e041465.
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Milena Pertz, Stoyan Popkirov, Uwe Schlegel & Patrizia Thoma. (2020) Research on cognitive and sociocognitive functions in patients with brain tumours: a bibliometric analysis and visualization of the scientific landscape. Neurological Sciences 41:6, pages 1437-1449.
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Milena Pertz, Annalena Okoniewski, Uwe Schlegel & Patrizia Thoma. (2020) Impairment of sociocognitive functions in patients with brain tumours. Neuroscience & Biobehavioral Reviews 108, pages 370-392.
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Ami Baba, Melissa D McCradden, Jessica Rabski & Michael D Cusimano. (2019) Determining the unmet needs of patients with intracranial meningioma—a qualitative assessment. Neuro-Oncology Practice.
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Tamara Ownsworth, Suzanne Chambers, Joanne F. Aitken, Matthew Foote, Mark B. Pinkham, Louisa G. Gordon, Gemma Lock, Brigid Hanley, Tracey Gardner, Stephanie Jones, Julia Robertson, David Shum & Elizabeth Conlon. (2019) Evaluation of a telehealth psychological support intervention for people with primary brain tumour and their family members: Study protocol for a randomised controlled trial. European Journal of Cancer Care 28:4.
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Tina Wang Vedelø, Jens Christian Hedemann Sørensen & Charlotte Delmar. (2019) ”Being Alone Surrounded by Healthcare Providers”—Exploring an Integrated Brain Cancer Pathway From a Patient Perspective: A Longitudinal Case Study. International Journal for Human Caring 23:1, pages 23-39.
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Marijke B. Coomans, Linda Dirven & Martin J. B. Taphoorn. 2019. Oncology of CNS Tumors. Oncology of CNS Tumors 769 786 .
Christina Amidei. (2018) Symptom-based interventions to promote quality survivorship. Neuro-Oncology 20:suppl_7, pages vii27-vii39.
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Tina Wang Vedelø, Jens Christian Hedemann Sørensen & Charlotte Delmar. (2018) Patients’ experiences and care needs during the diagnostic phase of an integrated brain cancer pathway: A case study. Journal of Clinical Nursing 27:15-16, pages 3044-3055.
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Danette Langbecker, Stuart Ekberg & Patsy Yates. (2017) Don’t need help, don’t want help, can’t get help: How patients with brain tumors account for not using rehabilitation, psychosocial and community services. Patient Education and Counseling 100:9, pages 1744-1750.
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Fabio Campanella, Alvisa Palese, Fabio Del Missier, Renzo Moreale, Tamara Ius, Tim Shallice, Franco Fabbro & Miran Skrap. (2017) Long-Term Cognitive Functioning and Psychological Well-Being in Surgically Treated Patients with Low-Grade Glioma. World Neurosurgery 103, pages 799-808.e9.
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Tamara Ownsworth. (2016) Coping with the Unthinkable: Psychosocial Advances in the Management of Primary Brain Tumour. Brain Impairment 17:3, pages 265-272.
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Anton Shkaruba, Hanna Skryhan & Viktar Kireyeu. (2015) Sense-making for anticipatory adaptation to heavy snowstorms in urban areas. Urban Climate 14, pages 636-649.
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Tamara Ownsworth, Suzanne Chambers, Ea Damborg, Leanne Casey, David G. Walker & David H. K. Shum. (2015) Evaluation of the making sense of brain tumor program: a randomized controlled trial of a home-based psychosocial intervention. Psycho-Oncology 24:5, pages 540-547.
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Stephanie Jones, Tamara Ownsworth & David H. K. Shum. (2015) Feasibility and Utility of Telephone-Based Psychological Support for People with Brain Tumor: A Single-Case Experimental Study. Frontiers in Oncology 5.
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Tamara Ownsworth, Elizabeth Goadby & Suzanne Kathleen Chambers. (2015) Support after Brain Tumor Means Different Things: Family Caregivers’ Experiences of Support and Relationship Changes. Frontiers in Oncology 5.
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Tamara Ownsworth, Toni Dwan, Suzanne Chambers, David G. Walker & David H.K. Shum. (2014) The moderating effect of estimated pre-morbid IQ on the relationship between neuropsychological status and subjective well-being after brain tumour. Journal of Psychosomatic Research 76:3, pages 257-260.
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Joakim Öhlén, Catarina Wallengren Gustafsson & Febe Friberg. (2013) Making Sense of Receiving Palliative Treatment. Cancer Nursing 36:4, pages 265-273.
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Petrea Cornwell, Bronwyn Dicks, Jennifer Fleming, Terry P. Haines & Sarah Olson. (2012) Care and support needs of patients and carers early post-discharge following treatment for non-malignant brain tumour: establishing a new reality. Supportive Care in Cancer 20:10, pages 2595-2610.
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E. Ford, S. Catt, A. Chalmers & L. Fallowfield. (2012) Systematic review of supportive care needs in patients with primary malignant brain tumors. Neuro-Oncology 14:4, pages 392-404.
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