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Original Articles

“I won't be around forever”: Understanding the decision-making experiences of adults with severe TBI and their parents

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Pages 236-260 | Received 13 Aug 2014, Accepted 09 Feb 2015, Published online: 09 Mar 2015

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (11)

Tolu O. Oyesanya, Stephanie O. Ibemere, Callan Loflin, Victoria McReynolds, Brian Anaya, Michelle Huang, Rosa Gonzalez-Guarda, Timothy J. Strauman & Janet Prvu Bettger. (2023) “If you respect me, you are respecting my culture”: methods and recommendations for personalizing a TBI transitional care intervention. Brain Injury 37:8, pages 746-757.
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Christine Bigby, Jacinta Douglas, Elizabeth Smith, Terry Carney, Shih-Ning Then & Ilan Wiesel. (2022) Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences. Journal of Intellectual & Developmental Disability 47:2, pages 165-176.
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Michelle Browning, Christine Bigby & Jacinta Douglas. (2021) A process of decision-making support: Exploring supported decision-making practice in Canada. Journal of Intellectual & Developmental Disability 46:2, pages 138-149.
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Christine Bigby, Mary Whiteside & Jacinta Douglas. (2019) Providing support for decision making to adults with intellectual disability: Perspectives of family members and workers in disability support services. Journal of Intellectual & Developmental Disability 44:4, pages 396-409.
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Terry Carney, Shih-Ning Then, Christine Bigby, Ilan Wiesel, Jacinta Douglas & Elizabeth Smith. (2019) Realising ‘will, preferences and rights’: reconciling differences on best practice support for decision-making?. Griffith Law Review 28:4, pages 357-379.
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Joanna K. Fadyl, Alice Theadom, Alexis Channon & Kathryn M. McPherson. (2019) Recovery and adaptation after traumatic brain injury in New Zealand: Longitudinal qualitative findings over the first two years. Neuropsychological Rehabilitation 29:7, pages 1095-1112.
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Lucy Knox, Jacinta M. Douglas & Christine Bigby. (2017) “I’ve never been a yes person”: Decision-making participation and self-conceptualization after severe traumatic brain injury. Disability and Rehabilitation 39:22, pages 2250-2260.
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Lucy Knox, Jacinta M. Douglas & Christine Bigby. (2016) Becoming a decision-making supporter for someone with acquired cognitive disability following traumatic brain injury. Research and Practice in Intellectual and Developmental Disabilities 3:1, pages 12-21.
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Jacinta Douglas, Christine Bigby, Lucy Knox & Michelle Browning. (2015) Factors that Underpin the Delivery of Effective Decision-making Support for People with Cognitive Disability. Research and Practice in Intellectual and Developmental Disabilities 2:1, pages 37-44.
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Articles from other publishers (8)

Fangyun Zhao, Hajin Lim, Emily L. Morrow, Lyn S. Turkstra, Melissa C. Duff & Bilge Mutlu. (2022) Designing evidence-based support aids for social media access for individuals with moderate-severe traumatic brain injury: A preliminary acceptability study. Frontiers in Digital Health 4.
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Carolyn M. Murray, Scott Weeks, Gisela van Kessel, Michelle Guerin, Emma Watkins, Shylie Mackintosh, Caroline Fryer, Susan Hillier & Mandy Stanley. (2022) Perspectives of choice and control in daily life for people following brain injury: A qualitative systematic review and meta‐synthesis. Health Expectations 25:6, pages 2709-2725.
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Jaclene A. Zauszniewski, Christopher J. Burant, Richard J. Martin, John S. Sweetko & Evelina DiFranco. (2021) Caregivers’ Use of Personal and Social Resourcefulness: Differences by Care Recipient Condition. Western Journal of Nursing Research 44:3, pages 288-295.
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Mark Holloway & Caroline Ellis-Hill. (2022) Humanising health and social care: What do family members of people with a severe acquired brain injury value most in service provision. Brain Impairment 23:1, pages 134-142.
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Charlotte Jane Whiffin, Fergus Gracey & Caroline Ellis-Hill. (2021) The experience of families following traumatic brain injury in adult populations: A meta-synthesis of narrative structures. International Journal of Nursing Studies 123, pages 104043.
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Christine Bigby & Jacinta Douglas. 2021. Decision Making by Individuals with Intellectual and Developmental Disabilities. Decision Making by Individuals with Intellectual and Developmental Disabilities 65 94 .
Christine Bigby & Jacinta Douglas. 2020. Choice, Preference, and Disability. Choice, Preference, and Disability 45 66 .
Christine Bigby, Jacinta Douglas, Terry Carney, Shih-Ning Then, Ilan Wiesel & Elizabeth Smith. (2017) Delivering decision making support to people with cognitive disability - What has been learned from pilot programs in Australia from 2010 to 2015. Australian Journal of Social Issues 52:3, pages 222-240.
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