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Research Article

A study to evaluate the met and unmet needs of members belonging to Young Stroke groups affiliated with the Stroke Association

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Pages 1052-1056 | Published online: 07 Nov 2011

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Read on this site (13)

David Sapuppo, Julie Bernhardt, Lilian B. Carvalho, Leonid Churilov & Vincent Thijs. (2023) Self-evaluation of personal needs by community-living young stroke survivors using an online English language questionnaire. Disability and Rehabilitation 45:11, pages 1830-1835.
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Afsoon Hassani Mehraban, Abolghasem Fallahzadeh Abarghuei, Laleh Lajevardi & Aryan Shamili. (2022) The Effect of ICF-Core Set-Based Occupational Therapy Interventions on the Function and Satisfaction of Individuals with Chronic Stroke: A Randomized Clinical Trial. Occupational Therapy In Health Care 0:0, pages 1-19.
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Jessica Shipley, Julie Luker, Vincent Thijs & Julie Bernhardt. (2020) How can stroke care be improved for younger service users? A qualitative study on the unmet needs of younger adults in inpatient and outpatient stroke care in Australia. Disability and Rehabilitation 42:12, pages 1697-1704.
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Charlotte Chalmers, Janet Leathem, Simon Bennett, Harry McNaughton & Karim Mahawish. (2019) The efficacy of problem solving therapy to reduce post stroke emotional distress in younger (18–65) stroke survivors. Disability and Rehabilitation 41:7, pages 753-762.
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Gabrielle M. Harris & Janet Prvu Bettger. (2018) Parenting after stroke: a systematic review. Topics in Stroke Rehabilitation 25:5, pages 384-392.
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Melissa Cutler, Michelle L. A. Nelson, Maya Nikoloski & Kerry Kuluski. (2016) Mindful Connections: The Role of a Peer Support Group on the Psychosocial Adjustment for Adults Recovering From Brain Injury. Journal of Social Work in Disability & Rehabilitation 15:3-4, pages 260-284.
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Euan Sadler, Katie Daniel, Charles D. A. Wolfe & Christopher McKevitt. (2014) Navigating stroke care: the experiences of younger stroke survivors. Disability and Rehabilitation 36:22, pages 1911-1917.
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Karen Quinn, Craig D. Murray & Caroline Malone. (2014) The experience of couples when one partner has a stroke at a young age: an interpretative phenomenological analysis. Disability and Rehabilitation 36:20, pages 1670-1678.
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Melissa Muller, Susan Toth-Cohen & MJ Mulcahey. (2014) Development and Evaluation of a Hospital-Based Peer Support Group for Younger Individuals with Stroke. Occupational Therapy In Health Care 28:3, pages 277-295.
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I. G. L. van de Port, G. A. M. van den Bos, M. Voorendt, G. Kwakkel & E. Lindeman. (2007) Identification of risk factors related to perceived unmet demands in patients with chronic stroke. Disability and Rehabilitation 29:24, pages 1841-1846.
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Jennie Medin, Josefin Barajas & Kerstin Ekberg. (2006) Stroke patients' experiences of return to work. Disability and Rehabilitation 28:17, pages 1051-1060.
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Anders Möller & Erling Nyman. (2005) Why, what and how? – Questions for psychological research in medicine. Disability and Rehabilitation 27:11, pages 649-654.
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Articles from other publishers (34)

Dinah Amoah, Sarah Prior, Carey Mather, Matthew Schmidt & Marie-Louise Bird. (2023) Exploring the Unmet Needs of Young Adults with Stroke in Australia: Can Technology Help Meet Their Needs? A Qualitative Study. International Journal of Environmental Research and Public Health 20:15, pages 6450.
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Brigit M. Chesworth, Kulsum Patel, Judith Redfern, Caroline L. Watkins, Simon N. Rogers, Maree L. Hackett, Marion F. Walker & Catherine E. Lightbody. (2023) Development of the stroke patient concerns inventory: A modified Delphi study. Journal of Stroke and Cerebrovascular Diseases 32:6, pages 107053.
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Kirsti S. Roaldsen, Charlotte Walter, Johan Gäverth & Ing-Mari Dohrn. (2022) Between commitment and avoidance – working age stroke survivors’ perceptions of physical activity and sedentary behaviour: a qualitative study. BMC Neurology 22:1.
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Hye Jung Choi, Marissa LeBlanc, Tron Anders Moger, Morten Valberg, Geir Aamodt, Christian M. Page, Grethe S. Tell & Øyvind Næss. (2022) Stroke survival and the impact of geographic proximity to family members: A population-based cohort study. Social Science & Medicine 309, pages 115252.
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Aisha Holloway, Colin Chandler, Lissette Aviles Reinso, Catherine Clarissa, Arcellia Putri, HyeRi Choi, Jo‐Fan Pan, Udita Mitra, Jonathan Hewitt, Gillian Cluckie, Alison Smart, Helen Noble, Ruth Harris, Joanne Reid & Daniel M. Kelly. (2021) Young Adults Rehabilitation Needs and Experiences following Stroke (YARNS): A review of digital accounts to inform the development of age‐appropriate support and rehabilitation. Journal of Advanced Nursing 78:3, pages 869-882.
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Caitlin Kar Pui Chan, Temmy Lee Ting Lo, Adrian Ho Yin Wan, Pamela Pui Yu Leung, Marco Yiu Chung Pang & Rainbow Tin Hung Ho. (2021) A randomised controlled trial of expressive arts-based intervention for young stroke survivors. BMC Complementary Medicine and Therapies 21:1.
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Gabrielle Harris Walker, Rosa Gonzalez‐Guarda, Qing Yang, Shreyansh Shah & Janet Prvu Bettger. (2021) Socio‐ecological perspective on factors influencing acute recovery of younger stroke survivors: A mixed methods study. Journal of Advanced Nursing 77:6, pages 2860-2874.
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Bei-lei Lin, Yong-xia Mei, Wen-na Wang, Shan-shan Wang, Ying-shuang Li, Meng-ya Xu, Zhen-xiang Zhang & Yao Tong. (2021) Unmet care needs of community-dwelling stroke survivors: a systematic review of quantitative studies. BMJ Open 11:4, pages e045560.
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N.S.M. Zawawi, N.A. Aziz, R. Fisher, K. Ahmad & M.F. Walker. (2020) The Unmet Needs of Stroke Survivors and Stroke Caregivers: A Systematic Narrative Review. Journal of Stroke and Cerebrovascular Diseases 29:8, pages 104875.
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Louise Bakmann, Anne Norup & Birgitte Hysse Forchhammer. (2019) Hit in the Heart of Life: How Meeting Like-Minded Peers May Contribute to Psychosocial Recovery of Adolescents and Young Adults With Acquired Brain Injury. Frontiers in Neurology 10.
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Ting Chen, Bo Zhang, Yan Deng, Jing-Chun Fan, Liansheng Zhang & Fujian Song. (2019) Long-term unmet needs after stroke: systematic review of evidence from survey studies. BMJ Open 9:5, pages e028137.
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Adejoke Yetunde Onaolapo, Olakunle James Onaolapo & Thomas I Nathaniel. (2019) Cerebrovascular Disease in the Young Adult: Examining Melatonin’s Possible Multiple Roles. Journal of Experimental Neuroscience 13, pages 117906951982730.
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K. Ben Jeddou, F. Ben M’Barka, I. Boukhris, H. Arfaoui, H. Baccar, N. Khalfalah & Z. Ouhachi. (2018) Quels besoins d’information et d’éducation des patients traités par les anti-vitamines K ?. La Revue de Médecine Interne 39:7, pages 546-550.
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Karin Sundin, Susanna Pusa, Carin Jonsson, Britt-Inger Saveman & Ulrika Östlund. (2017) Envisioning the future as expressed within family health conversations by families of persons suffering from stroke. Scandinavian Journal of Caring Sciences.
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Muideen T. OlaiyaDominique A. CadilhacJoosup KimMark R. NelsonVelandai K. SrikanthNadine E. AndrewChristopher F. BladinRichard P. GerratySharyn M. FitzgeraldThanh PhanJudith FrayneAmanda G. Thrift. (2017) Long-term unmet needs and associated factors in stroke or TIA survivors. Neurology 89:1, pages 68-75.
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Dorothy M Leahy, Deirdre Desmond, Tara Coughlan, Des O’Neill & D Rónán Collins. (2014) Stroke in young women: An interpretative phenomenological analysis. Journal of Health Psychology 21:5, pages 669-678.
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Anna De Simoni, Andrew Shanks, Chantal Balasooriya-Smeekens & Jonathan Mant. (2016) Stroke survivors and their families receive information and support on an individual basis from an online forum: descriptive analysis of a population of 2348 patients and qualitative study of a sample of participants. BMJ Open 6:4, pages e010501.
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Michael J. McCarthy, Heidi J. Sucharew, Kathleen Alwell, Charles J. Moomaw, Daniel Woo, Matthew L. Flaherty, Pooja Khatri, Simona Ferioli, Opeolu Adeoye, Dawn O. Kleindorfer & Brett M. Kissela. (2015) Age, subjective stress, and depression after ischemic stroke. Journal of Behavioral Medicine 39:1, pages 55-64.
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Barbara Wolfenden & Marty Grace. (2015) Vulnerability and Post-Stroke Experiences of Working-Age Survivors During Recovery. SAGE Open 5:4, pages 215824401561287.
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Kwang-Hwa Chang, Yen-Nung Lin, Hua-Fang Liao, Chia-Feng Yen, Reuben Escorpizo, Tze-Hsun Yen & Tsan-Hon Liou. (2014) Environmental effects on WHODAS 2.0 among patients with stroke with a focus on ICF category e120. Quality of Life Research 23:6, pages 1823-1831.
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Maggie Lawrence & Sue Kinn. (2012) Determining the Needs, Priorities, and Desired Rehabilitation Outcomes of Young Adults Who Have Had a Stroke. Rehabilitation Research and Practice 2012, pages 1-9.
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Randi Martinsen, Marit Kirkevold & Unni Sveen. (2012) Younger Stroke Survivors' Experiences of Family Life in a Long-Term Perspective: A Narrative Hermeneutic Phenomenological Study. Nursing Research and Practice 2012, pages 1-11.
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Nadina B. Lincoln, Ian I. Kneebone, Jamie A. B. Macniven & Reg C. Morris. 2011. Psychological Management of Stroke. Psychological Management of Stroke 493 588 .
Thóra B. Hafsteinsdóttir, Martine Vergunst, Eline Lindeman & Marieke Schuurmans. (2011) Educational needs of patients with a stroke and their caregivers: A systematic review of the literature. Patient Education and Counseling 85:1, pages 14-25.
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Chun-Kai Liao, Tsan-Hon Liou, Chien-Hua Wu & Kwang-Hwa Chang. (2011) Comparison of Clinical Characteristics and Medical Resource Uses Between Young?and Elderly Patients With Ischemic Stroke. Journal of Experimental & Clinical Medicine 3:4, pages 171-175.
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Christopher McKevittNina FudgeJudith RedfernAnita SheldenkarSiobhan CrichtonAnthony R. RuddAnn ForsterJohn YoungIrwin NazarethLouise E. SilverPeter M. RothwellCharles D.A. Wolfe. (2011) Self-Reported Long-Term Needs After Stroke. Stroke 42:5, pages 1398-1403.
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Paula Kersten, Ann Ashburn, Steve George & Joseph Low. (2010) The Subjective Index for Physical and Social Outcome (SIPSO) in Stroke: investigation of its subscale structure. BMC Neurology 10:1.
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Maggie Lawrence. (2010) Young adults’ experience of stroke: a qualitative review of the literature. British Journal of Nursing 19:4, pages 241-248.
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Katie DanielCharles D.A. WolfeMarkus A. BuschChristopher McKevitt. (2009) What Are the Social Consequences of Stroke for Working-Aged Adults?. Stroke 40:6.
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Tamara T. Rubenzik & Chris T. Derk. (2009) Unmet Patient Needs in Systemic Sclerosis. JCR: Journal of Clinical Rheumatology 15:3, pages 106-110.
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Jenni Murray, John Young & Anne Forster. (2008) Review of longer-term problems after a disabling stroke. Reviews in Clinical Gerontology 17:04, pages 277.
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Sharon Dale Stone. (2007) Patient concerns posthaemorrhagic stroke: a study of the Internet narratives of patients with ruptured arteriovenous malformation. Journal of Clinical Nursing 16:2, pages 289-297.
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Mohsen Asadi-Lari & David Gray. (2005) Health needs assessment tools: Progress and potential. International Journal of Technology Assessment in Health Care 21:3, pages 288-297.
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Paula Kersten, Steve George, Joseph Low, Ann Ashburn & Lindsay McLellan. (2004) The Subjective Index of Physical and Social Outcome: its usefulness in a younger stroke population. International Journal of Rehabilitation Research 27:1, pages 59-63.
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