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Research Article

Informal caregiving in multiple sclerosis patients: data from the Madrid demyelinating disease group study

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Pages 1057-1064 | Published online: 07 Nov 2011

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Afolasade Fakolade, Amy Latimer-Cheung, Trisha Parsons & Marcia Finlayson. (2019) A concerns report survey of physical activity support needs of people with moderate-to-severe MS disability and family caregivers. Disability and Rehabilitation 41:24, pages 2888-2899.
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Lauren Penwell-Waines, Marie-Christine Rutter Goodworth, Rhonda S. Casillas, Rebecca Rahn & Lara Stepleman. (2016) Perceptions of caregiver distress, health behaviors, and provider health-promoting communication and their relationship to stress management in MS caregivers. Health Communication 31:4, pages 478-484.
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Daniel R. du Plooy & Chrisma Pretorius. (2014) The caregiver experience: a South African perspective on caring for people with multiple sclerosis. Journal of Psychology in Africa 24:4, pages 361-369.
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Robert Buchanan, Dagmar Radin, Bonnie J. Chakravorty & Tuula Tyry. (2010) Perceptions of informal care givers: Health and support services provided to people with multiple sclerosis. Disability and Rehabilitation 32:6, pages 500-510.
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Marta Aymerich, Imma Guillamón & Albert J Jovell. (2009) Health-related quality of life assessment in people with multiple sclerosis and their family caregivers. A multicenter study in Catalonia (Southern Europe). Patient Preference and Adherence 3, pages 311-321.
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Robert J. Buchanan, Dagmar Radin, Bonnie J. Chakravorty & Tuula Tyry. (2009) Informal care giving to more disabled people with multiple sclerosis. Disability and Rehabilitation 31:15, pages 1244-1256.
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D. Sapountzi-Krepia, V. Raftopoulos, M. Sgantzos, A. Dimitriadou, I. Ntourou & G. Sapkas. (2006) Informal in-hospital care in a rehabilitation setting in Greece: An estimation of the nursing staff required for substituting this care. Disability and Rehabilitation 28:1, pages 3-11.
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Articles from other publishers (47)

Monica Cueli Arce, Miguel Santibañez, Carmen Sarabia, Paula Paras‐Bravo, Marta Gomez & Ana Rosa Alconero‐Camarero. (2022) Transcultural adaptation of the revised caregiving appraisal scale (RCAS) in the Spanish population. International Journal of Older People Nursing 18:1.
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María Cuerda-Ballester, Antonio Bustos, Maribel Arrollo-Calvillo, Belén Proaño, Amalia Correcher-Calap & Jose Enrique de la Rubia Ortí. (2022) Influence of sex on functional capacity, and muscle strength and fine motor skills of upper limbs in patients with multiple sclerosis. Revista Científica de la Sociedad de Enfermería Neurológica (English ed.).
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María Cuerda-Ballester, Antonio Bustos, Maribel Arrollo-Calvillo, Belén Proaño, Amalia Correcher-Calap & Jose Enrique de la Rubia Ortí. (2022) Influencia del sexo en la capacidad funcional, y fuerza muscular y motricidad fina de miembros superiores en pacientes con esclerosis múltiple. Revista Científica de la Sociedad Española de Enfermería Neurológica.
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Roshanth Rajachandrakumar & Marcia Finlayson. (2021) Multiple sclerosis caregiving: A systematic scoping review to map current state of knowledge. Health & Social Care in the Community 30:4.
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María Florencia Tartaglini, Carolina Feldberg, Paula Daniela Hermida, Silvina Lidia Heisecke, Carol Dillon, Silvia Deborah Ofman, Macarena Liliana Nuñez & Verónica Somale. (2020) Escala de sobrecarga del cuidador de Zarit: análisis de sus propiedades psicométricas en cuidadores familiares residentes en Buenos Aires, Argentina. Neurología Argentina 12:1, pages 27-35.
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Félix Bravo-González & Arturo Álvarez-Roldán. (2019) Esclerosis múltiple, pérdida de funcionalidad y género. Gaceta Sanitaria 33:2, pages 177-184.
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Joel Olayiwola Faronbi, Howard K. Butcher & Adenike Ayobola Olaogun. (2019) Burden and Coping Ability of Individuals Caring for Chronically Ill Older Adults in Nigeria: A Mixed Methods Study. Journal of Gerontological Nursing 45:1, pages 39-46.
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Joel Olayiwola Faronbi & Adenike Ayobola Olaogun. (2017) The influence of caregivers’ burden on the quality of life for caregivers of older adults with chronic illness in Nigeria. International Psychogeriatrics 29:7, pages 1085-1093.
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José Meca-Lallana, Mar Mendibe, Rocío Hernández-Clares, Ana Belén Caminero, Javier Mallada-Frechin, Pablo Dávila-Gonzalez, Moisés Garcés-Redondo, Montserrat Gómez, Jorge Millán-Pascual, Gerardo Soriano-Hernández & María del Campo Amigo-Jorrín. (2016) Predictors of burden and depression among caregivers of relapsing-remitting MS patients in Spain: MS Feeling study. Neurodegenerative Disease Management 6:4, pages 277-287.
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Gillian G. Leibach, Marilyn Stern, Adriana Aguayo Arelis, Miguel Angel Macias Islas & Brenda Viridiana Rábago Barajas. (2016) Mental Health and Health-Related Quality of Life in Multiple Sclerosis Caregivers in Mexico. International Journal of MS Care 18:1, pages 19-26.
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Tamara McKenzie, Mary Elizabeth Quig, Tuula Tyry, Ruth Ann Marrie, Gary Cutter, Edward Shearin, Kamau Johnson & James Simsarian. (2015) Care Partners and Multiple Sclerosis. International Journal of MS Care 17:6, pages 253-260.
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Mar?a Crespo & Ma Teresa Rivas. (2015) La evaluaci?n de la carga del cuidador: una revisi?n m?s all? de la escala de Zarit. Cl?nica y Salud 26:1, pages 9-16.
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Andrés Labiano-Fontcuberta, Alex J. Mitchell, Sara Moreno-García & Julián Benito-León. (2015) Anxiety and depressive symptoms in caregivers of multiple sclerosis patients: The role of information processing speed impairment. Journal of the Neurological Sciences 349:1-2, pages 220-225.
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E. Bayen, C. Papeix, P. Pradat-Diehl, C. Lubetzki & M. E. Joël. (2015) Patterns of Objective and Subjective Burden of Informal Caregivers in Multiple Sclerosis. Behavioural Neurology 2015, pages 1-10.
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Andrés Labiano-Fontcuberta, Alex J Mitchell, Sara Moreno-García & Julián Benito-León. (2014) Cognitive impairment in patients with multiple sclerosis predicts worse caregiver’s health-related quality of life. Multiple Sclerosis Journal 20:13, pages 1769-1779.
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Jens Peter Reese, Gabriele Wienemann, Axel John, Alexandra Linnemann, Monika Balzer-Geldsetzer, Ulrich Otto Mueller, Christian Eienbröker, Björn Tackenberg & Richard Dodel. (2013) Preference-based Health status in a German outpatient cohort with multiple sclerosis. Health and Quality of Life Outcomes 11:1.
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Beatriz Pozuelo-Moyano, Juli?n Benito-Le?n, Alex J. Mitchell & Jes?s Hern?ndez-Gallego. (2013) A Systematic Review of Randomized, Double-Blind, Placebo-Controlled Trials Examining the Clinical Efficacy of Vitamin D in Multiple Sclerosis. Neuroepidemiology 40:3, pages 147-153.
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J. Benito‐León, A. J. Mitchell, J. Rivera‐Navarro & J. M. Morales‐González. (2012) Impaired health‐related quality of life predicts progression of disability in multiple sclerosis. European Journal of Neurology 20:1, pages 79-86.
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R. Litta. 2013. Aspetti psicologici nella sclerosi multipla. Aspetti psicologici nella sclerosi multipla 165 172 .
Shaloo Gupta, Amir Goren, Amy L. Phillips & Michelle Stewart. (2012) Self-Reported Burden Among Caregivers of Patients with Multiple Sclerosis. International Journal of MS Care 14:4, pages 179-187.
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A. Giordano, G. Ferrari, D. Radice, G. Randi, L. Bisanti & A. Solari. (2012) Health‐related quality of life and depressive symptoms in significant others of people with multiple sclerosis: a community study. European Journal of Neurology 19:6, pages 847-854.
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MerriKay Oleen-Burkey, Jane Castelli-Haley, Maureen J. Lage & Kenneth P. Johnson. (2012) Burden of a Multiple Sclerosis Relapse. The Patient: Patient-Centered Outcomes Research 5:1, pages 57-69.
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David Castro Costa, Maria José Sá & José M. Calheiros. (2012) The effect of social support on the quality of life of patients with multiple sclerosis. Arquivos de Neuro-Psiquiatria 70:2, pages 108-113.
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Andreas A. Argyriou, Panagiotis Karanasios, Amalia A. Ifanti, Gregoris Iconomou, Konstantinos Assimakopoulos, Alexandra Makridou, Fotini Giannakopoulou & Nicolaos Makris. (2011) Quality of life and emotional burden of primary caregivers: a case–control study of multiple sclerosis patients in Greece. Quality of Life Research 20:10, pages 1663-1668.
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Andreas A. Argyriou, Panagiotis Karanasios, Konstantinos Assimakopoulos, Gregoris Iconomou, Alexandra Makridou, Foteini Giannakopoulou & Nicolaos Makris. (2011) Assessing the Quality of Sleep in Greek Primary Caregivers of Patients With Secondary Progressive Multiple Sclerosis: A Cross-Sectional Study. Journal of Pain and Symptom Management 42:4, pages 541-547.
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Julián Benito-León, Jesús Rivera-Navarro, Angel Luis Guerrero, Virginia de las Heras, José Balseiro, Elena Rodríguez, Mireia Belló & Pablo Martínez-Martín. (2011) The CAREQOL-MS was a useful instrument to measure caregiver quality of life in multiple sclerosis. Journal of Clinical Epidemiology 64:6, pages 675-686.
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Andreas A. Argyriou, Gregoris Iconomou, Amalia A. Ifanti, Panagiotis Karanasios, Konstantinos Assimakopoulos, Alexandra Makridou, Foteini Giannakopoulou & Nicolaos Makris. (2011) Religiosity and its relation to quality of life in primary caregivers of patients with multiple sclerosis: a case study in Greece. Journal of Neurology 258:6, pages 1114-1119.
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Michele Peters. 2011. Quality of Life Measurement in Neurodegenerative and Related Conditions. Quality of Life Measurement in Neurodegenerative and Related Conditions 114 138 .
Juli?n Benito-Le?n. (2011) Multiple Sclerosis: Is Prevalence Rising and if So Why. Neuroepidemiology 37:3-4, pages 236-237.
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Juli?n Benito-Le?n. (2011) Physical Activity in Multiple Sclerosis: The Missing Prescription. Neuroepidemiology 36:3, pages 192-193.
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Juli?n Benito-Le?n. (2011) Are the Prevalence and Incidence of Multiple Sclerosis Changing?. Neuroepidemiology 36:3, pages 148-149.
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J. Benito-León, D. Pisa, R. Alonso, P. Calleja, M. Díaz-Sánchez & L. Carrasco. (2010) Association between multiple sclerosis and Candida species: evidence from a case-control study. European Journal of Clinical Microbiology & Infectious Diseases 29:9, pages 1139-1145.
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Samar AounRuth McConigleyAmy AbernethyDavid C. Currow. (2010) Caregivers of People with Neurodegenerative Diseases: Profile and Unmet Needs from a Population-Based Survey in South Australia. Journal of Palliative Medicine 13:6, pages 653-661.
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Robert J. Buchanan, Dagmar Radin, Chunfeng Huang & Li Zhu. (2010) Caregiver perceptions associated with risk of nursing home admission for people with multiple sclerosis. Disability and Health Journal 3:2, pages 117-124.
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J. Rivera-NavarroJ. Benito-León, C. Oreja-Guevara, J. Pardo, W. Bowakim Dib, E. Orts & M. Belló. (2009) Burden and health-related quality of life of Spanish caregivers of persons with multiple sclerosis. Multiple Sclerosis Journal 15:11, pages 1347-1355.
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Margarita Corry & Alison While. (2009) The needs of carers of people with multiple sclerosis: a literature review. Scandinavian Journal of Caring Sciences 23:3, pages 569-588.
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A Bogosian, R Moss-Morris, L Yardley & L Dennison. (2009) Experiences of partners of people in the early stages of multiple sclerosis. Multiple Sclerosis Journal 15:7, pages 876-884.
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Marcia Finlayson, Jennifer Dahl Garcia & Katharine L. Preissner. (2009) Retracted: Development of an education programme for caregivers of people aging with multiple sclerosis . Occupational Therapy International 16:2, pages i-xv.
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Kimberly J. Whalen & Susan W. Buchholz. (2009) The reliability, validity and feasibility of tools used to screen for caregiver burden: a systematic review. JBI Library of Systematic Reviews 7:32, pages 1373-1430.
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Kimberly J. Whalen & Susan W. Buchholz. (2009) The reliability, validity and feasibility of tools used to screen for caregiver burden: a systematic review. JBI Database of Systematic Reviews and Implementation Reports 7:32, pages 1373-1430.
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Asmahan F Alshubaili, Jude U Ohaeri, Abdel W Awadalla & Asser A Mabrouk. (2008) Family caregiver quality of life in multiple sclerosis among Kuwaitis: a controlled study. BMC Health Services Research 8:1.
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Despina Sapountzi-Krepia, Vasilios Raftopoulos, Maria Psychogiou, Evanthia Sakellari, Anastasios Toris, Anargyros Vrettos & Panagiotis Arsenos. (2008) Dimensions of informal care in Greece: the family's contribution to the care of patients hospitalized in an oncology hospital. Journal of Clinical Nursing 17:10, pages 1287-1294.
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Marcia Finlayson, Jennifer Dahl Garcia & Katharine Preissner. (2008) Development of an educational programme for caregivers of people aging with multiple sclerosis. Occupational Therapy International 15:1, pages 4-17.
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Ewa Wressle, Christina Engstrand & Ann-Kathrine Gran?rus. (2007) Living with Parkinson's disease: Elderly patients? and relatives? perspective on daily living. Australian Occupational Therapy Journal 54:2, pages 131-139.
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Alex J Mitchell, Julián Benito-León, José-Manuel Morales González & Jesús Rivera-Navarro. (2005) Quality of life and its assessment in multiple sclerosis: integrating physical and psychological components of wellbeing. The Lancet Neurology 4:9, pages 556-566.
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José Manuel Morales-González, Jesús Rivera-Navarro, Julian Benito-León & Alex J Mitchell. (2016) Letter to the editor. Multiple Sclerosis Journal 10:6, pages 717-717.
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J M Morales-Gonzáles, J Benito-León, J Rivera-Navarro & A J Mitchell. (2016) A systematic approach to analyse health-related quality of life in multiple sclerosis: the GEDMA study. Multiple Sclerosis Journal 10:1, pages 47-54.
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