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Original Article

The personal experience of carers of stroke survivors: an interpretative phenomenological analysis

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Pages 1000-1011 | Accepted 01 Mar 2004, Published online: 07 Jul 2009

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (21)

Judy Purton, Julius Sim & Susan M. Hunter. (2021) The experience of upper-limb dysfunction after stroke: a phenomenological study. Disability and Rehabilitation 43:23, pages 3377-3386.
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Michele Verdonck, Maeve Nolan & Gill Chard. (2018) Taking back a little of what you have lost: the meaning of using an Environmental Control System (ECS) for people with high cervical spinal cord injury. Disability and Rehabilitation: Assistive Technology 13:8, pages 785-790.
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Serda Em, Mehtap Bozkurt, Mehmet Caglayan, Figen Ceylan Cevik, Cemal Kaya, Pelin Oktayoglu & Kemal Nas. (2017) Psychological health of caregivers and association with functional status of stroke patients. Topics in Stroke Rehabilitation 24:5, pages 323-329.
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Carole Pound & Nan Greenwood. (2016) The human dimensions of post-stroke homecare: experiences of older carers from diverse ethnic groups. Disability and Rehabilitation 38:20, pages 1987-1999.
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Isabella Van Dongen, Staffan Josephsson & Lisa Ekstam. (2014) Changes in daily occupations and the meaning of work for three women caring for relatives post-stroke. Scandinavian Journal of Occupational Therapy 21:5, pages 348-358.
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Karina Louise Williams, Val Morrison & Catherine A. Robinson. (2014) Exploring caregiving experiences: caregiver coping and making sense of illness. Aging & Mental Health 18:5, pages 600-609.
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Karen Quinn, Craig Murray & Caroline Malone. (2014) Spousal experiences of coping with and adapting to caregiving for a partner who has a stroke: a meta-synthesis of qualitative research. Disability and Rehabilitation 36:3, pages 185-198.
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Leah Tomkins & Virginia Eatough. (2013) Meanings and Manifestations of Care: A Celebration of Hermeneutic Multiplicity in Heidegger. The Humanistic Psychologist 41:1, pages 4-24.
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Amy Howells, Reg Morris & Cressida Darwin. (2012) A Questionnaire to Assess Carers’ Experience of Stroke Rehabilitation. Topics in Stroke Rehabilitation 19:3, pages 256-267.
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Robyne Garrett, Maarten A. Immink & Susan Hillier. (2011) Becoming connected: the lived experience of yoga participation after stroke. Disability and Rehabilitation 33:25-26, pages 2404-2415.
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C. Bowen, A. MacLehose & J.G. Beaumont. (2011) Advanced multiple sclerosis and the psychosocial impact on families. Psychology & Health 26:1, pages 113-127.
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Adele Dickson, Grainne O’Brien, Richard Ward, David Allan & Ronan O’Carroll. (2010) The impact of assuming the primary caregiver role following traumatic spinal cord injury: An interpretative phenomenological analysis of the spouse's experience. Psychology & Health 25:9, pages 1101-1120.
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Guylaine Le Dorze, Véronique Tremblay & Claire Croteau. (2009) A qualitative longitudinal case study of a daughter's adaptation process to her father's aphasia and stroke. Aphasiology 23:4, pages 483-502.
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Emma Royal, Frances Ann Reynolds & Henry Houlden. (2009) What are the experiences of adults returning to work following recovery from Guillain-Barré syndrome? An interpretative phenomenological analysis. Disability and Rehabilitation 31:22, pages 1817-1827.
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Karin Buschenfeld, Reg Morris & Sally Lockwood. (2009) The experience of partners of young stroke survivors. Disability and Rehabilitation 31:20, pages 1643-1651.
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Susan E. Doble, Cindy Shearer, Julie Lall-Phillips & Stan Jones. (2009) Relation between post-stroke satisfaction with time use, perceived social support and depressive symptoms. Disability and Rehabilitation 31:6, pages 476-483.
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Joanna M. Brocki & Alison J. Wearden. (2006) A critical evaluation of the use of interpretative phenomenological analysis (IPA) in health psychology. Psychology & Health 21:1, pages 87-108.
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Peter Appelros, Ingegerd Nydevik & Andreas Terent. (2006) Living setting and utilisation of ADL assistance one year after a stroke with special reference to gender differences. Disability and Rehabilitation 28:1, pages 43-49.
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Articles from other publishers (37)

Elton H. Lobo, Anne Frølich, Mohamed Abdelrazek, Lene J. Rasmussen, John Grundy, Patricia M. Livingston, Sheikh Mohammed Shariful Islam & Finn Kensing. (2023) Information, involvement, self-care and support—The needs of caregivers of people with stroke: A grounded theory approach. PLOS ONE 18:1, pages e0281198.
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Delphine Kallai, Virginie März, Philippe de Timary & Jan De Mol. (2023) Mental Health Nurses’ Social Representations of People Who Experience Mental Illness: A Story of Paradoxes. Global Qualitative Nursing Research 10.
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Gabriella T. Ponzini, Brenna Kirk, Sarah E. Segear, Elizabeth A. Claydon, Elizabeth B. Engler-Chiurazzi & Shari A. Steinman. (2022) Addressing Uncertainty in Informal Familial Caregivers of Stroke Survivors: A Systematic Meta-Ethnography. International Journal of Environmental Research and Public Health 19:17, pages 11116.
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Jianting Zhao, Zhilei Zeng, Jianping Yu, Jianhua Xu, Ping Chen, Yujun Chen, Jing Li & Yulong Ma. (2021) Effect of main family caregiver’s anxiety and depression on mortality of patients with moderate-severe stroke. Scientific Reports 11:1.
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Elton H. Lobo, Anne Frølich, Finn Kensing, Lene J. Rasmussen, Patricia M. Livingston, John Grundy & Mohamed Abdelrazek. (2020) mHealth applications to support caregiver needs and engagement during stroke recovery: A content review. Research in Nursing & Health 44:1, pages 213-225.
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Louise Mole, Bridie Kent, Rebecca Abbott & Mary Hickson. (2019) Family carers’ experiences of nutritional care for people living with dementia at home: An interpretative phenomenological analysis. Dementia 20:1, pages 231-246.
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Val Morrison & Karina Williams. (2020) Gaining Longitudinal Accounts of Carers' Experiences Using IPA and Photograph Elicitation. Frontiers in Psychology 11.
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Kitty Maria Suddick, Vinette Cross, Pirjo Vuoskoski, Graham Stew & Kathleen T. Galvin. (2019) The acute stroke unit as a meaningful space: The lived experience of healthcare practitioners. Health & Place 57, pages 12-21.
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Rebecca Smith, Caroline Burgess & Isaac Sorinola. (2018) The effect of a dysfunctional upper limb on community-dwelling stroke survivors and their carers: An interpretative phenomenological analysis. Physiotherapy Research International 23:4, pages e1726.
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Fidel López-Espuela, Teresa González-Gil, Javier Amarilla-Donoso, Sergio Cordovilla-Guardia, Juan Carlos Portilla-Cuenca & Ignacio Casado-Naranjo. (2018) Critical points in the experience of spouse caregivers of patients who have suffered a stroke. A phenomenological interpretive study. PLOS ONE 13:4, pages e0195190.
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P. Antoine & J.A. Smith. (2017) Saisir l’expérience : présentation de l’analyse phénoménologique interprétative comme méthodologie qualitative en psychologie. Psychologie Française 62:4, pages 373-385.
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Julie Luker, Carolyn Murray, Elizabeth Lynch, Susanne Bernhardsson, Michelle Shannon & Julie Bernhardt. (2017) Carers' Experiences, Needs, and Preferences During Inpatient Stroke Rehabilitation: A Systematic Review of Qualitative Studies. Archives of Physical Medicine and Rehabilitation 98:9, pages 1852-1862.e13.
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Patrick Kitzman, Keisha Hudson, Violet Sylvia, Frances Feltner & Johnnie Lovins. (2016) Care Coordination for Community Transitions for Individuals Post-stroke Returning to Low-Resource Rural Communities. Journal of Community Health 42:3, pages 565-572.
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Eeeseung Byun & Lois K. Evans. (2014) Concept Analysis of Burden in Caregivers of Stroke Survivors During the Early Poststroke Period. Clinical Nursing Research 24:5, pages 468-486.
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Priscilla Burnham Riosa, Michèle Preyde & Mary Lynn Porto. (2015) Transitioning to Adult Mental Health Services. Journal of Adolescent Research 30:4, pages 446-476.
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Sarah EP Munce, Fiona Webster, Michael G Fehlings, Sharon E Straus, Eunice Jang & Susan B Jaglal. (2014) Perceived facilitators and barriers to self-management in individuals with traumatic spinal cord injury: a qualitative descriptive study. BMC Neurology 14:1.
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Margaret Mary Cowan. (2014) The lived experiences of the Sikh population of south east England when caring for a dying relative at home. International Journal of Palliative Nursing 20:4, pages 179-186.
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Maki Iitsuka & Michiyo Mizuno. (2014) Investigation of the Reliability and Validity of the Japanese Version of the Managing Uncertainty in Illness Scale-Family Member Form. Journal of Japan Academy of Nursing Science 34:1, pages 245-254.
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Megan M. Danzl, Elizabeth G. Hunter, Sarah Campbell, Violet Sylvia, Janice Kuperstein, Katherine Maddy & Anne Harrison. (2013) “Living With a Ball and Chain”: The Experience of Stroke for Individuals and Their Caregivers in Rural Appalachian Kentucky. The Journal of Rural Health 29:4, pages 368-382.
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Rosanne Cecil, Kate Thompson, Kader Parahoo & Eilis McCaughan. (2013) Towards an understanding of the lives of families affected by stroke: a qualitative study of home carers. Journal of Advanced Nursing 69:8, pages 1761-1770.
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Nadina B. Lincoln, Ian I. Kneebone, Jamie A. B. Macniven & Reg C. Morris. 2011. Psychological Management of Stroke. Psychological Management of Stroke 493 588 .
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Stephanie W. S. Louie, Pal K. K. Liu & David W. K. Man. (2009) Stress of Caregivers in Caring for People With Stroke. Topics in Geriatric Rehabilitation 25:3, pages 191-197.
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Omar A KowlessarKevin P Corbett. (2009) The lived experience of mental health service users in a UK community rehabilitation scheme. International Journal of Therapy and Rehabilitation 16:2, pages 85-95.
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