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Research Papers

‘We need to be the centrepiece’: Adults with cerebral palsy and complex communication needs discuss the roles and needs of family carers in hospital

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Pages 1759-1771 | Accepted 01 Aug 2007, Published online: 07 Jul 2009

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Read on this site (7)

Natasha Spassiani, Megan Sarah Abou Chacra & Yona Lunsky. (2017) “Why Are You Here? Can’t You Cope at Home?” The Psychiatric Crisis of People With Intellectual Disabilities and the Community’s Response. Journal of Mental Health Research in Intellectual Disabilities 10:2, pages 74-92.
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Leigha Jane Dark, Lindy Clemson & Susan Balandin. (2016) Communication changes experienced by adults with cerebral palsy as they age. International Journal of Speech-Language Pathology 18:6, pages 521-532.
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Bronwyn Hemsley, Susan Balandin, Justine Joan Sheppard, Andrew Georgiou & Sophie Hill. (2015) A call for dysphagia-related safety incident research in people with developmental disabilities. Journal of Intellectual & Developmental Disability 40:1, pages 99-103.
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Bronwyn Hemsley, Melissa Kuek, Kaely Bastock, Nerina Scarinci & Bronwyn Davidson. (2013) Parents and children with cerebral palsy discuss communication needs in hospital. Developmental Neurorehabilitation 16:6, pages 363-374.
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Susan Balandin & Monique Hines. (2011) The involvement of people with lifelong disability and communication impairment in lecturing to speech-language pathology students. International Journal of Speech-Language Pathology 13:5, pages 436-445.
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Susan Balandin. (2011) Participation by adults with lifelong disability: More than a trip to the bowling alley. International Journal of Speech-Language Pathology 13:3, pages 207-217.
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Articles from other publishers (22)

Morgane Gilliand, Béatrice Perrenoud, Thierry Lecerf, Magali Serex, Anne Breaud & Philip Larkin. (2023) Behavioral pain indicators for adults with an intellectual disability: a scoping review protocol. JBI Evidence Synthesis 21:1, pages 254-263.
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Carolyn Baylor, Cait Brown, Tracy M. Mroz & Michael Burns. (2022) Understanding How Older Adults with Communication Difficulties Access Health Services: What We Can Learn from the National Health and Aging Trends Study (NHATS). Seminars in Speech and Language 43:03, pages 176-197.
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Manjula Manikandan, Claire Kerr, Grace Lavelle, Michael Walsh, Aisling Walsh & Jennifer M Ryan. (2021) Health service use among adults with cerebral palsy: a mixed‐methods systematic review. Developmental Medicine & Child Neurology 64:4, pages 429-446.
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Helen Mach, Carolyn Baylor, Michael Burns & Kathryn Yorkston. (2021) Training students from rehabilitation professions on communicating with patients with communication disorders. PM&R 14:1, pages 58-67.
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Ariane Bernier Emch, Morgane Gilland & Béatrice Perrenoud. (2021) La perception des personnes présentant une déficience intellectuelle de la communication offerte par les soignants lors d’une hospitalisationPerception of People With an Intellectual Disability of Caregiver’s Communication During Hospitalization. Revue francophone de la déficience intellectuelle 31, pages 1.
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Mary Jo Cooley Hidecker. 2020. Cerebral Palsy. Cerebral Palsy 2431 2441 .
Carolyn Baylor, Michael Burns, Karen McDonough, Helen Mach & Kathryn Yorkston. (2019) Teaching Medical Students Skills for Effective Communication With Patients Who Have Communication Disorders. American Journal of Speech-Language Pathology 28:1, pages 155-164.
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Mary Jo Cooley Hidecker. 2019. Cerebral Palsy. Cerebral Palsy 1 11 .
Michael I. Burns, Carolyn Baylor, Brian J. Dudgeon, Helene Starks & Kathryn Yorkston. (2017) Health Care Provider Accommodations for Patients With Communication Disorders. Topics in Language Disorders 37:4, pages 311-333.
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Rebecca S. Koszalinski, Ruth M. Tappen, Tracey Melhuish & Valarie Grumme. (2017) Evaluation of a Novel Communication Application From Nurses’ Perspectives. CIN: Computers, Informatics, Nursing 35:6, pages 300-306.
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Cigdem Yuksel & Vesile Unver. (2016) Use of Simulated Patient Method to Teach Communication With Deaf Patients in the Emergency Department. Clinical Simulation in Nursing 12:7, pages 281-289.
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Bridget Sharpe & Bronwyn Hemsley. (2016) Improving nurse–patient communication with patients with communication impairments: hospital nurses' views on the feasibility of using mobile communication technologies. Applied Nursing Research 30, pages 228-236.
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Bronwyn Hemsley, Andrew Georgiou, Sophie Hill, Megan Rollo, Joanne Steel & Susan Balandin. (2016) An integrative review of patient safety in studies on the care and safety of patients with communication disabilities in hospital. Patient Education and Counseling 99:4, pages 501-511.
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Michael Burns, Carolyn Baylor, Brian J. Dudgeon, Helene Starks & Kathryn Yorkston. (2015) Asking the Stakeholders: Perspectives of Individuals With Aphasia, Their Family Members, and Physicians Regarding Communication in Medical Interactions. American Journal of Speech-Language Pathology 24:3, pages 341-357.
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Rebecca S. Koszalinski, Ruth M. Tappen & David Viggiano. (2015) Evaluation of Speak for Myself with Patients Who Are Voiceless. Rehabilitation Nursing 40:4, pages 235-242.
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Megan A. Morris, Marla L. Clayman, Kaitlin J. Peters, Aaron L. Leppin & Annie LeBlanc. (2015) Patient-centered communication strategies for patients with aphasia: Discrepancies between what patients want and what physicians do. Disability and Health Journal 8:2, pages 208-215.
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Megan A. Morris, Kathryn Yorkston & Marla L. Clayman. (2014) Improving Communication in the Primary Care Setting: Perspectives of Patients with Speech Disabilities. The Patient - Patient-Centered Outcomes Research 7:4, pages 397-401.
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Åsa Audulv, Tanya Packer & Joan Versnel. (2014) Identifying gaps in knowledge: A map of the qualitative literature concerning life with a neurological condition. Chronic Illness 10:3, pages 192-243.
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Bronwyn Hemsley, Susan Balandin & Linda Worrall. (2011) Nursing the patient with complex communication needs: time as a barrier and a facilitator to successful communication in hospital. Journal of Advanced Nursing 68:1, pages 116-126.
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Bronwyn Hemsley, Susan Balandin & Linda Worrall. (2011) Nursing the Patient With Developmental Disability in Hospital. Qualitative Health Research 21:12, pages 1632-1642.
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Bronwyn Hemsley, Susan Balandin & Linda Worrall. (2011) The “Big 5” and beyond: Nurses, paid carers, and adults with developmental disability discuss communication needs in hospital. Applied Nursing Research 24:4, pages e51-e58.
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Bronwyn Hemsley, Susan Balandin & Leanne Togher. (2007) Family Caregivers Discuss Roles and Needs in Supporting Adults with Cerebral Palsy and Complex Communication Needs in the Hospital Setting. Journal of Developmental and Physical Disabilities 20:3, pages 257-274.
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