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Review

Informal primary carers of stroke survivors living at home–challenges, satisfactions and coping: A systematic review of qualitative studies

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Pages 337-351 | Accepted 01 Mar 2008, Published online: 07 Jul 2009

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Barbara J. Lutz, Anna M. Kucharska-Newton, Sara B. Jones, Matthew A. Psioda, Sabina B. Gesell, Sylvia W. Coleman, Anna M. Johnson, Meghan D Radman, Samantha Levy, Janet Prvu Bettger, Janet K Freburger, Aileen Chou, Joan Celestino, Wayne D. Rosamond, Cheryl D. Bushnell & Pamela W. Duncan. (2023) Familial caregiving following stroke: findings from the comprehensive post-acute stroke services (COMPASS) pragmatic cluster-randomized transitional care study. Topics in Stroke Rehabilitation 30:5, pages 436-447.
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Victrine Tseung, Susan B. Jaglal, Nancy M. Salbach, Karen Yoshida & Jill I. Cameron. (2021) Key informants' perspectives on implementing caregiver programs in an organized system of stroke care. Disability and Rehabilitation 43:8, pages 1145-1152.
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Tianma Xu, Kate O’Loughlin, Lindy Clemson, Natasha A. Lannin, Catherine Dean & Gerald Koh. (2019) Developing a falls prevention program for community-dwelling stroke survivors in Singapore: client and caregiver perspectives. Disability and Rehabilitation 41:9, pages 1044-1054.
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Charlotte Ytterberg, Lena von Koch & Anette Erikson. (2019) Abandoned to the strains of daily life: a qualitative study of the long-term experiences in partners to persons after a mild to moderate stroke. Disability and Rehabilitation 41:6, pages 649-655.
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Synne G. Pedersen, Audny Anke, Lena Aadal, Hanne Pallesen, Siri Moe & Cathrine Arntzen. (2019) Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis. International Journal of Qualitative Studies on Health and Well-being 14:1.
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Muditha Wagachchige Muthucumarana, Kerstin Samarasinghe & Carina Elgán. (2018) Caring for stroke survivors: experiences of family caregivers in Sri Lanka – a qualitative study. Topics in Stroke Rehabilitation 25:6, pages 397-402.
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Ton Satink, Edith H.C. Cup, Bert J.M. de Swart & Maria W.G. Nijhuis-van der Sanden. (2018) The perspectives of spouses of stroke survivors on self-management – a focus group study. Disability and Rehabilitation 40:2, pages 176-184.
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Rachel Graf, Jennifer LeLaurin, Magda Schmitzberger, I. Magaly Freytes, Tatiana Orozco, Stuti Dang & Constance R. Uphold. (2017) The stroke caregiving trajectory in relation to caregiver depressive symptoms, burden, and intervention outcomes. Topics in Stroke Rehabilitation 24:7, pages 488-495.
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Carole Pound & Nan Greenwood. (2016) The human dimensions of post-stroke homecare: experiences of older carers from diverse ethnic groups. Disability and Rehabilitation 38:20, pages 1987-1999.
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Tamilyn Bakas, Nenette M. Jessup, Susan M. McLennon, Barbara Habermann, Michael T. Weaver & Gwendolyn Morrison. (2016) Tracking patterns of needs during a telephone follow-up programme for family caregivers of persons with stroke. Disability and Rehabilitation 38:18, pages 1780-1790.
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Lichun Willa Liu & Susan A. McDaniel. (2015) Family Caregiving for Immigrant Seniors Living With Heart Disease and Stroke: Chinese Canadian Perspective. Health Care for Women International 36:12, pages 1327-1345.
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Yasemin Parlak Demir, Nilay Çömük Balci, Nezehat Özgül Ünlüer, Naime Uluğ, Esra Dogru, Muhammed Kilinç, Sibel Aksu Yildirim & Öznur Yilmaz. (2015) Three different points of view in stroke rehabilitation: patient, caregiver, and physiotherapist. Topics in Stroke Rehabilitation 22:5, pages 377-385.
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Gillian Hewitt, Sarah Sims, Nan Greenwood, Fiona Jones, Fiona Ross & Ruth Harris. (2015) Interprofessional teamwork in stroke care: Is it visible or important to patients and carers?. Journal of Interprofessional Care 29:4, pages 331-339.
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Ton Satink, Edith H. C. Cup, Bert J. M. de Swart & Maria W. G. Nijhuis-van der Sanden. (2015) How is self-management perceived by community living people after a stroke? A focus group study. Disability and Rehabilitation 37:3, pages 223-230.
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Isabella Van Dongen, Staffan Josephsson & Lisa Ekstam. (2014) Changes in daily occupations and the meaning of work for three women caring for relatives post-stroke. Scandinavian Journal of Occupational Therapy 21:5, pages 348-358.
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Kiah L. Evans, Jeannine Millsteed, Janet E. Richmond, Marita Falkmer, Torbjorn Falkmer & Sonya J. Girdler. (2014) The complexity of role balance: Support for the Model of Juggling Occupations. Scandinavian Journal of Occupational Therapy 21:5, pages 334-347.
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Grace Warner & Robin Stadnyk. (2014) What is the Evidence and Context for Implementing Family-Centered Care for Older Adults?. Physical & Occupational Therapy In Geriatrics 32:3, pages 255-270.
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Sophie Sarre, Cara Redlich, Anthea Tinker, Euan Sadler, Ajay Bhalla & Christopher McKevitt. (2014) A systematic review of qualitative studies on adjusting after stroke: lessons for the study of resilience. Disability and Rehabilitation 36:9, pages 716-726.
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Karen Quinn, Craig Murray & Caroline Malone. (2014) Spousal experiences of coping with and adapting to caregiving for a partner who has a stroke: a meta-synthesis of qualitative research. Disability and Rehabilitation 36:3, pages 185-198.
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Debra Parker Oliver, DavidL. Albright, Karla Washington, Elaine Wittenberg-Lyles, Ashley Gage, Megan Mooney & George Demiris. (2013) Hospice Caregiver Depression: The Evidence Surrounding the Greatest Pain of All. Journal of Social Work in End-of-Life & Palliative Care 9:4, pages 256-271.
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Louise Gustafsson & Kerryn Bootle. (2013) Client and carer experience of transition home from inpatient stroke rehabilitation. Disability and Rehabilitation 35:16, pages 1380-1386.
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Meghann Grawburg, Tami Howe, Linda Worrall & Nerina Scarinci. (2012) A systematic review of the positive outcomes for family members of people with aphasia. Evidence-Based Communication Assessment and Intervention 6:3, pages 135-149.
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Ann Mackenzie & Nan Greenwood. (2012) Positive experiences of caregiving in stroke: a systematic review. Disability and Rehabilitation 34:17, pages 1413-1422.
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Amy Howells, Reg Morris & Cressida Darwin. (2012) A Questionnaire to Assess Carers’ Experience of Stroke Rehabilitation. Topics in Stroke Rehabilitation 19:3, pages 256-267.
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Mary Catherine Reed, Victorine Wood, Rachel Harrington & Jane Paterson. (2012) Developing stroke rehabilitation and community services: a meta-synthesis of qualitative literature. Disability and Rehabilitation 34:7, pages 553-563.
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Lin Perry & Sandy Middleton. (2011) An investigation of family carers' needs following stroke survivors' discharge from acute hospital care in Australia. Disability and Rehabilitation 33:19-20, pages 1890-1900.
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Cathy Bulley, Jane Shiels, Katie Wilkie & Lisa Salisbury. (2010) Carer experiences of life after stroke – a qualitative analysis. Disability and Rehabilitation 32:17, pages 1406-1413.
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Nan Greenwood, Ann Mackenzie, Geoffrey Cloud & Nikki Wilson. (2010) Loss of autonomy, control and independence when caring: A qualitative study of informal carers of stroke survivors in the first three months after discharge. Disability and Rehabilitation 32:2, pages 125-133.
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