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The Official Journal of RESNA

Volume 33, 2021 - Issue 1

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Research Article

Communication skills among children with spinal muscular atrophy type 1: A parent survey

Laura J. Balla Center for Translational Science, Children’s National Health System, WashingtonDC, USA;b Department of Physical Medicine and Rehabilitation, Children’s National Health System, WashingtonDC, USACorrespondence[email protected]

https://orcid.org/0000-0003-2465-3279

, PhD, CCC-SLP

Stephen Chavezc Department of Nutrition, Children’s National Health System, WashingtonDC, USA

, PhD,

Geovanny Perezd Department of Pulmonology, Children’s National Health System, WashingtonDC, USA

https://orcid.org/0000-0003-2843-6837

, MD

Diana Bharucha-Goebele Department of Neurology, Children’s National Health System, WashingtonDC, USA

, MD,

Kathleen Smarte Department of Neurology, Children’s National Health System, WashingtonDC, USA

Katherine Kundratb Department of Physical Medicine and Rehabilitation, Children’s National Health System, WashingtonDC, USA

, DPT,

Lauren Carruthersb Department of Physical Medicine and Rehabilitation, Children’s National Health System, WashingtonDC, USA

, DPT,

Caitlin Bradyb Department of Physical Medicine and Rehabilitation, Children’s National Health System, WashingtonDC, USA

, APRN,

Meganne Leachf Department of Pediatrics, Oregon Health Science University, Portland, Oregon, USA

, APRN &

Sally Evansb Department of Physical Medicine and Rehabilitation, Children’s National Health System, WashingtonDC, USA

, MD show all

Citations (7)

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Articles from other publishers (7)

Michele Tosi, Francesca Cumbo, Michela Catteruccia, Adelina Carlesi, Irene Mizzoni, Giacomo De Luca, Claudio Cherchi, Renato Cutrera, Enrico Bertini & Adele D'Amico. (2023) Neurocognitive profile of a cohort of SMA type 1 pediatric patients and emotional aspects, resilience and coping strategies of their caregivers. European Journal of Paediatric Neurology 43, pages 36-43.
Crossref

Dian Marta Sari, Laurentia Cindy Gani Wijaya, Wintoro Duraman Roives Sitorus & Mia Milanti Dewi. (2022) Psychological burden in spinal muscular atrophy patients and their families: a systematic review. The Egyptian Journal of Neurology, Psychiatry and Neurosurgery 58:1.
Crossref

Yukako Yae, Kotaro Yuge, Toshiyuki Maeda, Fumio Ichinose, Muneaki Matsuo, Osamu Kobayashi, Kazuo Okanari, Yusei Baba, Chihiro Yonee, Shinsuke Maruyama, Minoru Shibata, Tatsuya Fujii, Madoka Chinen & Yushiro Yamashita. (2022) Exploratory evaluation of an eye-tracking system in patients with advanced spinal muscular atrophy type I receiving nusinersen. Frontiers in Neurology 13.
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Lotta Sjögreen & Lisa Bengtsson. (2022) Congenital or Early Developing Neuromuscular Diseases Affecting Feeding, Swallowing and Speech – A Review of the Literature from January 1998 to August 2021. Journal of Neuromuscular Diseases 9:5, pages 581-596.
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Grazia Zappa, Antonella LoMauro, Giovanni Baranello, Emilia Cavallo, Priscilla Corti, Chiara Mastella & Maria Antonella Costantino. (2021) Intellectual abilities, language comprehension, speech, and motor function in children with spinal muscular atrophy type 1. Journal of Neurodevelopmental Disorders 13:1.
Crossref

Riccardo Masson, Chiara Brusa, Mariacristina Scoto & Giovanni Baranello. (2021) Brain, cognition, and language development in spinal muscular atrophy type 1: a scoping review. Developmental Medicine & Child Neurology 63:5, pages 527-536.
Crossref

Roslyn Livingstone & Ginny Paleg. (2021) Enhancing Function, Fun and Participation with Assistive Devices, Adaptive Positioning, and Augmented Mobility for Young Children with Infantile-Onset Spinal Muscular Atrophy: A Scoping Review and Illustrative Case Report. Disabilities 1:1, pages 1-22.
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Communication skills among children with spinal muscular atrophy type 1: A parent survey

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Communication skills among children with spinal muscular atrophy type 1: A parent survey

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