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Scandinavian Journal of Occupational Therapy Volume 16, 2009 - Issue 1
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Original article

Relatives’ experiences of family members’ eating difficulties

Annica E.M. Johansson Department of Community Medicine and Rehabilitation, Occupational Therapy, Umeå University, Umeå, Sweden; Centre for Research and Development, Uppsala University, County Council of Gävleborg, Sweden
&
Ulla Johansson Centre for Research and Development, Uppsala University, County Council of Gävleborg, Sweden
Pages 25-32 | Received 21 Feb 2008, Published online: 12 Jul 2009

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Marianne E. Klinke, Margaret E. Wilson, Thora B. Hafsteinsdóttir & Helga Jónsdóttir. (2013) Recognizing new perspectives in eating difficulties following stroke: a concept analysis. Disability and Rehabilitation 35:17, pages 1491-1500.
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Petra Wagman, Carita Håkansson, Christian Jacobsson, Torbjörn Falkmer & Anita Björklund. (2012) What is considered important for life balance? Similarities and differences among some working adults. Scandinavian Journal of Occupational Therapy 19:4, pages 377-384.
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Petra Wagman, Carita Håkansson & Anita Björklund. (2012) Occupational balance as used in occupational therapy: A concept analysis. Scandinavian Journal of Occupational Therapy 19:4, pages 322-327.
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Articles from other publishers (24)

Flora M. M. Poon, Elizabeth C. Ward & Clare L. Burns. (2023) Identifying prioritised actions for improving dysphagia services in Singapore: Insights from concept mapping with patients and caregivers. International Journal of Language & Communication Disorders.
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Emma Koster, Zuleikha Wadhwaniya & Ashwini M. Namasivayam-MacDonald. (2023) Preliminary Study of the Effects of a Dysphagia Support Group on Quality of Life. American Journal of Speech-Language Pathology 32:4, pages 1466-1488.
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Alex Makhnevich, Allison Marziliano, Kristen Porreca, Valeria Gromova, Michael A. Diefenbach & Liron Sinvani. (2023) Oropharyngeal Dysphagia in Hospitalized Older Adults With Dementia: A Mixed-Methods Study of Care Partners. American Journal of Speech-Language Pathology 32:1, pages 234-245.
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Harshitha Jain & Mansi Jagtap. (2021) Development of Quality of Life Due to Dysphagia Questionnaire for Caregivers of Individuals with Dysphagia (QOLC-M). Indian Journal of Otolaryngology and Head & Neck Surgery 74:S3, pages 5645-5656.
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Anna Robinson, Kirstie Coxon, Jackie McRae & Melania Calestani. (2022) Family carers’ experiences of dysphagia after a stroke: An exploratory study of spouses living in a large metropolitan city. International Journal of Language & Communication Disorders 57:5, pages 924-936.
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Samantha E. Shune, Deanna Linville & Ashwini Namasivayam-MacDonald. (2022) Integrating Family-Centered Care Into Chronic Dysphagia Management: A Tutorial. Perspectives of the ASHA Special Interest Groups 7:3, pages 795-806.
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Rebecca Smith, Lucy Bryant & Bronwyn Hemsley. (2022) Dysphagia and Quality of Life, Participation, and Inclusion Experiences and Outcomes for Adults and Children With Dysphagia: A Scoping Review. Perspectives of the ASHA Special Interest Groups 7:1, pages 181-196.
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Cameron Davis, Ashwini M. Namasivayam-MacDonald & Samantha E. Shune. (2021) Contributors to Poststroke Dysphagia-Related Caregiver Burden. American Journal of Speech-Language Pathology 30:3, pages 1061-1073.
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Yvette M. McCoy. (2021) Retraction: Servicing the Senior Swallow: A Family-Centered Private Practice Model of Service Delivery. Perspectives of the ASHA Special Interest Groups 6:1, pages 171-174.
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Sabrina Stängle, Daniel Büche, Christian Häuptle & André Fringer. (2021) Experiences, Personal Attitudes, and Professional Stances of Swiss Health Care Professionals Toward Voluntary Stopping of Eating and Drinking to Hasten Death: A Cross-Sectional Study. Journal of Pain and Symptom Management 61:2, pages 270-278.e11.
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Simone R. Howells, Petrea L. Cornwell, Elizabeth C. Ward & Pim Kuipers. (2020) Living with Dysphagia in the Community: Caregivers “do whatever it takes.”. Dysphagia 36:1, pages 108-119.
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Samantha E. Shune, Barbara Resnick, Steven H. Zarit & Ashwini M. Namasivayam-MacDonald. (2020) Creation and Initial Validation of the Caregiver Analysis of Reported Experiences with Swallowing Disorders (CARES) Screening Tool. American Journal of Speech-Language Pathology 29:4, pages 2131-2144.
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Samantha E. Shune & Ashwini Namasivayam-MacDonald. (2020) Dysphagia-Related Caregiver Burden: Moving Beyond the Physiological Impairment. Perspectives of the ASHA Special Interest Groups 5:5, pages 1282-1289.
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Ashwini M. Namasivayam-MacDonald & Samantha E. Shune. (2020) The influence of swallowing impairments as an independent risk factor for burden among caregivers of aging parents: A cross-sectional study. Geriatric Nursing 41:2, pages 81-88.
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Samantha E. Shune & Ashwini M. Namasivayam-MacDonald. (2019) Swallowing Impairments Increase Emotional Burden in Spousal Caregivers of Older Adults. Journal of Applied Gerontology 39:2, pages 172-180.
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Sabrina Stängle, Wilfried Schnepp & André Fringer. (2019) The need to distinguish between different forms of oral nutrition refusal and different forms of voluntary stopping of eating and drinking. Palliative Care and Social Practice 13, pages 117822421987573.
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Ashwini Namasivayam-MacDonald & Samantha Shune. (2018) The Burden of Dysphagia on Family Caregivers of the Elderly: A Systematic Review. Geriatrics 3:2, pages 30.
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Annette Kjaersgaard & Hanne Kaae Kristensen. (2017) Brain Injury and Severe Eating Difficulties at Admission—Patient Perspective Nine to Fifteen Months after Discharge: A Pilot Study. Brain Sciences 7:12, pages 96.
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Nicole Pizzorni. 2019. Dysphagia. Dysphagia 873 886 .
Kori A. LaDonna, Wilma J. Koopman, Susan L. Ray & Shannon L. Venance. (2016) Hard to Swallow. Journal of Neuroscience Nursing 48:1, pages 42-51.
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Joanne Patterson. (2015) Value of Qualitative Research in Dysphagia in the Head and Neck Cancer Patient Population- the Caregiver's Perspective/Experience. Perspectives on Swallowing and Swallowing Disorders (Dysphagia) 24:3, pages 107-114.
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Viktoria Wallin, Ida Carlander, Per-Olof Sandman, Britt-Marie Ternestedt & Cecilia Håkanson. (2014) Maintaining ordinariness around food: partners’ experiences of everyday life with a dying person. Journal of Clinical Nursing 23:19-20, pages 2748-2756.
Crossref
N Miller & J Patterson. (2013) Dysphagia: implications for older people. Reviews in Clinical Gerontology 24:1, pages 41-57.
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J. M. Patterson, T. Rapley, P. N. Carding, J. A. Wilson & E. McColl. (2012) Head and neck cancer and dysphagia; caring for carers. Psycho-Oncology 22:8, pages 1815-1820.
Crossref

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