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Articles

Quality of life of patients with amyotrophic lateral sclerosis

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Pages 621-628 | Received 16 Jun 2011, Accepted 15 Dec 2011, Published online: 07 Feb 2012

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Tino Prell, Otto W. Witte, Anne Gunkel & Julian Grosskreutz. (2020) Cognitive deficits have only limited influence on health-related quality of life in amyotrophic lateral sclerosis. Aging & Mental Health 24:12, pages 1963-1967.
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Carolyn Anne Young, John Ealing, Christopher McDermott, Tim Williams, Ammar Al-Chalabi, Tahir Majeed, Georgina Burke, Ashwin Pinto, David Dick, Kevin Talbot, Timothy Harrower, Jannette Walsh, Siddharthan Chandran, C. Oliver Hanemann, Roger Mills & Alan Tennant. (2019) The relationships between symptoms, disability, perceived health and quality of life in amyotrophic lateral sclerosis/motor neuron disease. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 20:5-6, pages 317-327.
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Louise Sofia Madsen, Jørgen Jeppesen & Charlotte Handberg. (2019) “Understanding my ALS”. Experiences and reflections of persons with amyotrophic lateral sclerosis and relatives on participation in peer group rehabilitation. Disability and Rehabilitation 41:12, pages 1410-1418.
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Laurence Regan, Nancy J. Preston, Fiona J. R. Eccles & Jane Simpson. (2019) The views of adults with neurodegenerative diseases on end-of-life care: a metasynthesis. Aging & Mental Health 23:2, pages 149-157.
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Astrid I.W.A. Janssens, Marijke Ruytings, Ammar Al-Chalabi, Adriano Chio, Orla Hardiman, Christopher J. Mcdermott, Thomas Meyer, Gabriele Mora, Philip Van Damme, Leonard H. Van Den Berg, Kris Vanhaecht, Andrea S. Winkler & Walter Sermeus. (2016) A mapping review of international guidance on the management and care of amyotrophic lateral sclerosis (ALS). Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 17:5-6, pages 325-336.
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Meredith Bock, Y-Nhy Duong, Anthony Kim, Isabel Allen, Jennifer Murphy & Catherine Lomen-Hoerth. (2016) Cognitive-behavioral changes in amyotrophic lateral sclerosis: Screening prevalence and impact on patients and caregivers. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 17:5-6, pages 366-373.
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Anna Marconi, Gaia Gragnano, Christian Lunetta, Ramona Gatto, Viviana Fabiani, Aurora Tagliaferri, Gabriella Rossi, Valeria Sansone & Francesco Pagnini. (2016) The experience of meditation for people with amyotrophic lateral sclerosis and their caregivers – a qualitative analysis. Psychology, Health & Medicine 21:6, pages 762-768.
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Fang Cui, Wenjia Zhu, Zhibin Zhou, Yuting Ren, Yifan Li, Mao Li, Yunyun Huo & Xusheng Huang. (2015) Frequency and risk factor analysis of cognitive and anxiety-depressive disorders in patients with amyotrophic lateral sclerosis/motor neuron disease. Neuropsychiatric Disease and Treatment 11, pages 2847-2854.
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Matthew Gladman & Lorne Zinman. (2015) The economic impact of amyotrophic lateral sclerosis: a systematic review. Expert Review of Pharmacoeconomics & Outcomes Research 15:3, pages 439-450.
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Georg S. Nübling, Eva Mie, Ricarda M. Bauer, Mira Hensler, Stefan Lorenzl, Alexander Hapfelmeier, Debra E. Irwin, Gian Domenico Borasio & Andrea S. Winkler. (2014) Increased prevalence of bladder and intestinal dysfunction in amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 15:3-4, pages 174-179.
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. (2013) THEME 1 MULTIDISCIPLINARY CARE AND QUALITY OF LIFE. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 14:sup2, pages 64-83.
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Faryal Zahir, Alicia Hanman, Nazmehr Yazdani, Sabrina La Rosa, Gemma Sleik, Brooke Sullivan, Ava Mehdipour, Selina Malouka & Ayse Kuspinar. (2023) Assessing the psychometric properties of quality of life measures in individuals with amyotrophic lateral sclerosis: a systematic review. Quality of Life Research 32:9, pages 2447-2462.
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Elisa Aust, Katharina Linse, Sven-Thomas Graupner, Markus Joos, Daniel Liebscher, Julian Grosskreutz, Johannes Prudlo, Thomas Meyer, René Günther, Sebastian Pannasch & Andreas Hermann. (2022) Quality of life and mental health in the locked-in-state—differences between patients with amyotrophic lateral sclerosis and their next of kin. Journal of Neurology 269:11, pages 5910-5925.
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Ran An, Yuan Wu, Yi Li, Xin Li, Shaolong Ai, Yanming Xu & Chengqi He. (2022) Pain-Related Factors and Their Impact on Quality of Life in Chinese Patients With Amyotrophic Lateral Sclerosis. Frontiers in Neuroscience 16.
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Berthe A.M. Makizodila, Johanna H.E. Wijdeven, Johannes J. Soet, Maurits K.A. Selms & Catherine M.C. Volgenant. (2021) Oral hygiene in patients with motor neuron disease requires attention: A cross‐sectional survey study. Special Care in Dentistry 42:1, pages 9-14.
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Ylva Åkerblom, Lena Zetterberg, Birgitta Jakobsson Larsson, Dag Nyholm, Ingela Nygren & Pernilla Åsenlöf. (2021) Pain, disease severity and associations with individual quality of life in patients with motor neuron diseases. BMC Palliative Care 20:1.
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Francesco Tramonti. (2020) Time to rethink the whole thing: The cul‐de‐sac of psychotherapy outcome research . Journal of Evaluation in Clinical Practice 27:5, pages 1184-1186.
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Maisa Vitória Gayoso, Flávia Seullner Domingues, Marcondes Cavalcante França Junior, Stephanie H. Felgoise, Acary Souza Bulle Oliveira & Guilherme Antonio Moreira de Barros. (2019) Cross-cultural adaptation and validation for the Brazilian population of the instrument Amyotrophic Lateral Sclerosis-Specific Quality of Life–Short Form (ALSSQOL-SF). Quality of Life Research 29:3, pages 805-813.
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Rhiannon Edge, Roger Mills, Alan Tennant, Peter J. Diggle & Carolyn A. Young. (2019) Do pain, anxiety and depression influence quality of life for people with amyotrophic lateral sclerosis/motor neuron disease? A national study reconciling previous conflicting literature. Journal of Neurology 267:3, pages 607-615.
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Tino Prell, Nayana Gaur, Beatrice Stubendorff, Annekathrin Rödiger, Otto W. Witte & Julian Grosskreutz. (2019) Disease progression impacts health-related quality of life in amyotrophic lateral sclerosis. Journal of the Neurological Sciences 397, pages 92-95.
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Cornelia Eicher, Jörn Kiselev, Kirsten Brukamp, Diana Kiemel, Susanne Spittel, André Maier, Ursula Oleimeulen & Marius Greuèl. 2019. Universal Access in Human-Computer Interaction. Theory, Methods and Tools. Universal Access in Human-Computer Interaction. Theory, Methods and Tools 57 68 .
Nerea Gallardo, María Arantzamendi & Ana Carvajal. (2018) Revisión narrativa sobre la calidad de vida relacionada con la salud en personas con esclerosis lateral amiotrófica. Medicina Paliativa 25:2, pages 105-113.
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B. Jakobsson Larsson, A. G. Ozanne, K. Nordin & I. Nygren. (2017) A prospective study of quality of life in amyotrophic lateral sclerosis patients. Acta Neurologica Scandinavica 136:6, pages 631-638.
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M.-H. Soriani & C. Desnuelle. (2017) Care management in amyotrophic lateral sclerosis. Revue Neurologique 173:5, pages 288-299.
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Pablo Martinez‐Martin. (2016) What is quality of life and how do we measure it? Relevance to Parkinson's disease and movement disorders. Movement Disorders 32:3, pages 382-392.
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Annerieke C. van Groenestijn, Esther T. Kruitwagen-van Reenen, Johanna M. A. Visser-Meily, Leonard H. van den Berg & Carin D. Schröder. (2016) Associations between psychological factors and health-related quality of life and global quality of life in patients with ALS: a systematic review. Health and Quality of Life Outcomes 14:1.
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Petter Sandstedt, Sverker Johansson, Charlotte Ytterberg, Caroline Ingre, Lotta Widén Holmqvist & Marie Kierkegaard. (2016) Predictors of health-related quality of life in people with amyotrophic lateral sclerosis. Journal of the Neurological Sciences 370, pages 269-273.
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A. M. Giovannetti, E. Pietrolongo, A. Giordano, V. Cimino, A. Campanella, G. Morone, A. Fusco, A. Lugaresi, P. Confalonieri, F. Patti, M. G. Grasso, M. Ponzio, S. Veronese & A. Solari. (2016) Individualized quality of life of severely affected multiple sclerosis patients: practicability and value in comparison with standard inventories. Quality of Life Research 25:11, pages 2755-2763.
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Hosein Shamshiri, Farzad Fatehi, Roya Abolfazli, Mohammad Hossein Harirchian, Behnaz Sedighi, Babak Zamani, Ali Roudbari, Nazanin Razazian, Fatemeh Khamseh & Shahriar Nafissi. (2016) Trends of quality of life changes in amyotrophic lateral sclerosis patients. Journal of the Neurological Sciences 368, pages 35-40.
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René Günther, Nicole Richter, Anna Sauerbier, Kallol Ray Chaudhuri, Pablo Martinez-Martin, Alexander Storch & Andreas Hermann. (2016) Non-Motor Symptoms in Patients Suffering from Motor Neuron Diseases. Frontiers in Neurology 7.
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Moon Sook HwangMi Kyung LeeJong Rye Song. (2016) Survey on Self Care, Respiratory Difficulty, Sleep Impediment, Anxiety and Depression among Patients with Neuromuscular Disease dependent on Home Mechanical Ventilator. Korean Journal of Adult Nursing 28:5, pages 595.
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Marie-Christine RousseauKarine Baumstarck, Thierry Billette de Villemeur & Pascal Auquier. (2016) Evaluation of quality of life in individuals with severe chronic motor disability: A major challenge. Intractable & Rare Diseases Research 5:2, pages 83-89.
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Sheelah Connolly, Miriam Galvin & Orla Hardiman. (2015) End-of-life management in patients with amyotrophic lateral sclerosis. The Lancet Neurology 14:4, pages 435-442.
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Giulio E. Lancioni, Gabriele Ferlisi, Valeria Zullo, Manuela F. Settembre, Mark F. O'Reilly, Nirbhay N. Singh & Jeff Sigafoos. (2014) Two Men with Advanced Amyotrophic Lateral Sclerosis Operate a Computer-Aided Television System through Mouth or Throat Microswitches. Perceptual and Motor Skills 118:3, pages 883-889.
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Hyun Sook Heo & Smi Choi-Kwon. (2013) Quality of Life in Patients with Amyotrophic Lateral Sclerosis. The Korean Journal of Rehabilitation Nursing 16:2, pages 122-132.
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G. Paris, O. Martinaud, A. Petit, A. Cuvelier, D. Hannequin, P. Roppeneck & E. Verin. (2012) Oropharyngeal dysphagia in amyotrophic lateral sclerosis alters quality of life. Journal of Oral Rehabilitation 40:3, pages 199-204.
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