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Journal of Intellectual & Developmental Disability Volume 36, 2011 - Issue 2
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Article

Healthcare and guidelines: A population-based survey of recorded medical problems and health surveillance for people with Down syndrome

Tuomo Määttä Service Centre of Kuusanmäki, FinlandCorrespondence[email protected]
,
Joonas Määttä Medical Faculty, University of Oulu, Finland
,
Tuula Tervo-Määttä Department of Teacher Education, University of Oulu, Kajaani, Finland
,
Anja Taanila
,
Markus Kaski Rinnekoti Research Centre, Espoo, Finland
&
Matti Iivanainen
Pages 118-126 | Published online: 19 Apr 2011

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De-Lawrence Lamptey. (2022) Navigating the Ghanaian health system: stories from families of children with intellectual and developmental disabilities. International Journal of Developmental Disabilities 68:5, pages 641-650.
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Neera Ghaziuddin, Armin Nassiri & Judith H Miles. (2015) Catatonia in Down syndrome; a treatable cause of regression. Neuropsychiatric Disease and Treatment 11, pages 941-949.
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Mariarosa Mallardo, Monica Cuskelly, Paul White & Anne Jobling. (2014) Mental Health Problems in Adults With Down Syndrome and Their Association With Life Circumstances. Journal of Mental Health Research in Intellectual Disabilities 7:3, pages 229-245.
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Vee P. Prasher, Sheila Glenn, Cliff Cunningham, Humaira Arshad, Patricia Glenholmes & Adam Kirby. (2014) Health morbidity and access to services by young adults with Down syndrome. International Journal of Developmental Disabilities 60:1, pages 26-34.
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Articles from other publishers (52)

Lisette M. Verstraten‐Oudshoorn, Antonia M. Coppus, Mieke de Klein & Esther J. Bakker‐van Gijssel. (2023) Parents' perspectives on provided health care for adults with Down syndrome : A qualitative interview study . Journal of Applied Research in Intellectual Disabilities.
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Yolanda Martin-Perez, Guadalupe Gonzalez-Montero, Angel L. Gutierrez-Hernandez, Vanesa Blázquez-Sánchez & Celia Sánchez-Ramos. (2023) Vision Impairments in Young Adults with Down Syndrome. Vision 7:3, pages 60.
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Francis Hickey, Kristine Wolter‐Warmerdam, Patricia Winders, Samantha Holland, Karen Kelminson & Dee Daniels. (2023) Ten‐year impact of a Down syndrome pediatric clinic. Journal of Policy and Practice in Intellectual Disabilities.
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John D. McLennan, Casey Fulford, Sophia Hrycko, Virginie Cobigo & Munazza Tahir. (2023) Service Use Patterns by Children With Down Syndrome in a Canadian Region. Intellectual and Developmental Disabilities 61:1, pages 79-88.
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R. Asaad Baksh, Andre Strydom, Sarah E. Pape, Li F. Chan & Martin C. Gulliford. (2022) Susceptibility to COVID-19 Diagnosis in People with Down Syndrome Compared to the General Population: Matched-Cohort Study Using Primary Care Electronic Records in the UK. Journal of General Internal Medicine 37:8, pages 2009-2015.
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Nafisa Nawal Islam, Ahmed Faisal Sumit, Md. Mottakin Chowdhury, Md. Asad Ullah, Yusha Araf, Bishajit Sarkar & David Gozal. (2022) Age and gender-related differences in quality of life of Bangladeshi patients with Down Syndrome: A cross-sectional study. Heliyon 8:1, pages e08777.
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George Capone & Brian Chicoine. 2022. The Neurobiology of Aging and Alzheimer Disease in Down Syndrome. The Neurobiology of Aging and Alzheimer Disease in Down Syndrome 209 231 .
Peiwen Liao, Claire Vajdic, Julian Trollor & Simone Reppermund. (2021) Prevalence and incidence of physical health conditions in people with intellectual disability – a systematic review. PLOS ONE 16:8, pages e0256294.
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Aubrey Milunsky & Jeff M. MilunskyAubrey Milunsky & Jeff M. Milunsky. 2021. Genetic Disorders and the Fetus. Genetic Disorders and the Fetus 1 101 .
Sandra Giménez, Miren Altuna, Esther Blessing, Ricardo M. Osorio & Juan Fortea. (2021) Sleep Disorders in Adults with Down Syndrome. Journal of Clinical Medicine 10:14, pages 3012.
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Miren Altuna, Sandra Giménez & Juan Fortea. (2021) Epilepsy in Down Syndrome: A Highly Prevalent Comorbidity. Journal of Clinical Medicine 10:13, pages 2776.
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Kayla SmithAbigail L. HoganElizabeth WillJane E. Roberts. (2021) Attention Bias and Prodromal Anxiety Symptoms in Toddlers With Fragile X Syndrome and Down Syndrome. American Journal on Intellectual and Developmental Disabilities 126:2, pages 167-181.
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Kristin M. Jensen, Elizabeth J. Campagna, Elizabeth Juarez-Colunga, Allan V. Prochazka & Desmond K. Runyan. (2021) Low Rates of Preventive Healthcare Service Utilization Among Adolescents and Adults With Down Syndrome. American Journal of Preventive Medicine 60:1, pages 1-12.
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Stephanie L. Santoro, Brian Chicoine, Joan M. Jasien, Judy Lu Kim, Mary Stephens, Peter Bulova & George Capone. (2020) Pneumonia and respiratory infections in Down syndrome: A scoping review of the literature. American Journal of Medical Genetics Part A 185:1, pages 286-299.
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G. Ahlström, A. Axmon, M. Sandberg & E. Flygare Wallén. (2020) Health care utilisation among older people with Down syndrome compared to specific medical guidelines for health surveillance: a Swedish national register study. BMC Health Services Research 20:1.
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Carla M. Startin, Hana D’Souza, George Ball, Sarah Hamburg, Rosalyn Hithersay, Kate M. O. Hughes, Esha Massand, Annette Karmiloff-Smith, Michael S. C. Thomas & Andre Strydom. (2020) Health comorbidities and cognitive abilities across the lifespan in Down syndrome. Journal of Neurodevelopmental Disorders 12:1.
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George Capone, Mary Stephens, Stephanie Santoro, Brian Chicoine, Peter Bulova, Moya Peterson, Joan Jasien & Anna Jo Smith. (2020) Co‐occurring medical conditions in adults with Down syndrome: A systematic review toward the development of health care guidelines. Part II . American Journal of Medical Genetics Part A 182:7, pages 1832-1845.
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Sujatha Raj, Mandy Stanley, Shylie Mackintosh & Caroline Fryer. (2020) Scope of occupational therapy practice for adults with both Down syndrome and dementia: A cross‐sectional survey. Australian Occupational Therapy Journal 67:3, pages 218-228.
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Matthew D. Muller, Angela M. Capp, James Hill, Alan Hoffer, James R. Otworth, Patrick M. McQuillan & Anthony S. Bonavia. (2020) Anesthetic Management of Elderly Patients With Down Syndrome: A Case Report. Journal of PeriAnesthesia Nursing 35:3, pages 243-249.
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Jonathan D. SantoroSarah LeeMichael MlynashElizabeth W. MayneMichael S. RafiiBrian G. Skotko. (2020) Diminished Blood Pressure Profiles in Children With Down Syndrome. Hypertension 75:3, pages 819-825.
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Silvana E. Mengoni & Sandra Redman. (2019) Health monitoring of young children with Down syndrome: A parent‐report study. British Journal of Learning Disabilities 48:1, pages 10-18.
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J. Chenbhanich, A. Wu, T. Phupitakphol, A. Atsawarungruangkit & T. Treadwell. (2018) Hospitalisation of adults with Down syndrome: lesson from a 10‐year experience from a community hospital. Journal of Intellectual Disability Research 63:3, pages 266-276.
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Ira T. Lott & Elizabeth Head. (2019) Dementia in Down syndrome: unique insights for Alzheimer disease research. Nature Reviews Neurology 15:3, pages 135-147.
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Michelle CornacchiaJanis SethnessPhilip AlapatYu-Hsiang LinCynthia Peacock. (2019) The Prevalence of OSA Among an Adult Population With Down Syndrome Referred to a Medical Clinic. American Journal on Intellectual and Developmental Disabilities 124:1, pages 4-10.
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Keisha Livingstone-Sinclair, Charmaine Scott & Helen Trotman. (2018) Adherence to health management guidelines for children with Down’s syndrome at the Bustamante Hospital for Children, Jamaica. Tropical Doctor 48:4, pages 301-305.
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Meghan E. O'NeillAlexandra RyanSoyang KwonHelen J. Binns. (2018) Evaluation of Pediatrician Adherence to the American Academy of Pediatrics Health Supervision Guidelines for Down Syndrome. American Journal on Intellectual and Developmental Disabilities 123:5, pages 387-398.
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A. Belton, M. O'Dwyer, J. Peklar, P. McCallion, M. McCarron & M. C. Henman. (2018) Medication Use and Health Screening in an Ageing Adult Population With Down Syndrome in Ireland: A Descriptive Study. Journal of Policy and Practice in Intellectual Disabilities 15:2, pages 145-154.
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George T. Capone, Brian Chicoine, Peter Bulova, Mary Stephens, Sarah Hart, Blythe Crissman, Andrea Videlefsky, Katherine Myers, Nancy Roizen, Anna Esbensen, Moya Peterson, Stephanie Santoro, Jason Woodward, Barry Martin & David Smith. (2018) Co-occurring medical conditions in adults with Down syndrome: A systematic review toward the development of health care guidelines. American Journal of Medical Genetics Part A 176:1, pages 116-133.
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Katie Williams, David Wargowski, Jens Eickhoff & Ellen Wald. (2017) Disparities in Health Supervision for Children With Down Syndrome. Clinical Pediatrics 56:14, pages 1319-1327.
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Ramazan Akdoğan. (2016) A Holistic Approach to Cope with Depression and Hopelessness for Parents of Special Needs Children. International Journal of Early Childhood Special Education 8:2, pages 134-134.
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Marc J. Tassé, Patricia Navas Macho, Susan M. Havercamp, Betsey A. Benson, Dawn C. Allain, Kandamurugu Manickam & Suzanne Davis. (2016) Psychiatric Conditions Prevalent Among Adults With Down Syndrome. Journal of Policy and Practice in Intellectual Disabilities 13:2, pages 173-180.
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Kristin M. Jensen & Peter D. Bulova. 2016. Care of Adults with Chronic Childhood Conditions. Care of Adults with Chronic Childhood Conditions 149 166 .
Sarah Bent, Lynzee McShea & Siobhan Brennan. (2015) The importance of hearing: a review of the literature on hearing loss for older people with learning disabilities. British Journal of Learning Disabilities 43:4, pages 277-284.
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Aubrey Milunsky & Jeff M. Milunsky. 2015. Genetic Disorders and the Fetus. Genetic Disorders and the Fetus 1 67 .
Cathi Phillips & Margaret Boyd. (2015) Relationship-Based Care for Newborns with Down Syndrome and Endocardial Cushion Defect. Nursing for Women's Health 19:5, pages 410-421.
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Christine Moriconi, Cheryl Schlamb & Barbara Harrison. (2015) Down Syndrome and Dementia: Guide to Identification, Screening, and Management. The Journal for Nurse Practitioners 11:8, pages 812-818.
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Raphaele Tsao, Cecile Kindelberger, Benedicte Fréminville, Renaud Touraine & Gerald Bussy. (2015) Variability of the Aging Process in Dementia-Free Adults With Down Syndrome. American Journal on Intellectual and Developmental Disabilities 120:1, pages 3-15.
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Ruud HJ Verstegen, Roeland WNM van Hout & Esther de Vries. (2014) Epidemiology of respiratory symptoms in children with Down syndrome: a nationwide prospective web-based parent-reported study. BMC Pediatrics 14:1.
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Terri J. Pikora, Jenny Bourke, Katherine Bathgate, Kitty-Rose Foley, Nicholas Lennox & Helen Leonard. (2014) Health Conditions and Their Impact among Adolescents and Young Adults with Down Syndrome. PLoS ONE 9:5, pages e96868.
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E. J. Glasson, D. E. Dye & A. H. Bittles. (2014) The triple challenges associated with age-related comorbidities in Down syndrome. Journal of Intellectual Disability Research 58:4, pages 393-398.
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M.A.A. Kusters, N.C.C. Manders, B.A.W. de Jong, R.W.N.M. van Hout, G.T. Rijkers & E. de Vries. (2013) Functionality of the pneumococcal antibody response in down syndrome subjects. Vaccine 31:52, pages 6261-6265.
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Claudio Straccia, Marc J. Tassé, Paolo Ghisletta & Koviljka Barisnikov. (2013) The French version of the Reiss Screen for Maladaptive Behavior: Factor structure, point prevalence and associated factors. Research in Developmental Disabilities 34:11, pages 4052-4061.
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Warren B. Zigman. (2013) Atypical aging in down syndrome. Developmental Disabilities Research Reviews 18:1, pages 51-67.
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J. Jansen, W. Rozeboom, C. Penning & H. M. Evenhuis. (2012) Prevalence and incidence of myocardial infarction and cerebrovascular accident in ageing persons with intellectual disability. Journal of Intellectual Disability Research 57:7, pages 681-685.
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K. M. Jensen, L. C. Taylor & M. M. Davis. (2012) Primary care for adults with Down syndrome: adherence to preventive healthcare recommendations. Journal of Intellectual Disability Research 57:5, pages 409-421.
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Brian G. Skotko, Emily Jean Davidson & Gil S. Weintraub. (2013) Contributions of a specialty clinic for children and adolescents with Down syndrome. American Journal of Medical Genetics Part A 161:3, pages 430-437.
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