Citations (58)
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Torsten Hammann, Jakob Valič, Gašper Slapničar & Mitja Luštrek. (2022) The missing piece. Physiological data as a factor for identifying emotions of people with profound intellectual and multiple disabilities. International Journal of Developmental Disabilities 0:0, pages 1-17.
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Samantha Noyek, Caryn Vowles, Beata Batorowicz, Claire Davies & Nora Fayed. (2022) Direct assessment of emotional well-being from children with severe motor and communication impairment: a systematic review. Disability and Rehabilitation: Assistive Technology 17:5, pages 501-514.
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Sien Vandesande, Guy Bosmans, Paula Sterkenburg, Carlo Schuengel, Wim Van Den Noortgate & Bea Maes. (2020) Comfort provided by parents versus strangers after eliciting stress in children with severe or profound intellectual disabilities: does it make a difference?. Attachment & Human Development 22:4, pages 425-447.
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Hilary Johnson. (2020) A voice for research and a voice for life. Providing participant communication supports. Commentary on “Social researchers and participants with intellectual disabilities and complex communication (access) needs. Whose capacity? Whose competence?” (Dee-Price, 2020). Research and Practice in Intellectual and Developmental Disabilities 7:2, pages 144-151.
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Appolonia M. Nieuwenhuijse, Dick L. Willems & Erik Olsman. (2020) Physicians’ perceptions on Quality of Life of persons with profound intellectual and multiple disabilities: A qualitative study. Journal of Intellectual & Developmental Disability 45:2, pages 176-183.
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Appolonia M. Nieuwenhuijse, Dick L. Willems, Johannes B. van Goudoever, Michael A. Echteld & Erik Olsman. (2019) Quality of life of persons with profound intellectual and multiple disabilities: A narrative literature review of concepts, assessment methods and assessors. Journal of Intellectual & Developmental Disability 44:3, pages 261-271.
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Marco O. Bertelli, Annamaria Bianco, Andrea Rossi, Michele Mancini, Giampaolo La Malfa & Ivan Brown. (2019) Impact of severe intellectual disability on proxy instrumental assessment of quality of life. Journal of Intellectual & Developmental Disability 44:3, pages 272-281.
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Ine Hostyn & Bea Maes. (2013) Interaction with a person with profound intellectual and multiple disabilities: A case study in dialogue with an experienced staff member. Journal of Intellectual & Developmental Disability 38:3, pages 189-204.
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Andrea Lesperance, Stefanie Blain & Tom Chau. (2011) An Integrated Approach to Detecting Communicative Intent Amid Hyperkinetic Movements in Children. Augmentative and Alternative Communication 27:3, pages 150-162.
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Bea Maes, Pieter Vos & Anneleen Penne. (2010) Analysis of Daytime Activities for Children with Profound Intellectual and Multiple Disabilities in Specific Settings. The British Journal of Development Disabilities 56:111, pages 123-136.
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Articles from other publishers (48)
Edina Hanley, Anne-Marie Martin, Caroline Dalton & Elaine Lehane. (2022) Communication partners experiences of communicating with adults with severe/profound intellectual disability through augmentative and alternative communication: A mixed methods systematic review. Journal of Intellectual Disabilities 27:4, pages 1107-1134.
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Liesbeth Geuze, Samuel Schrevel & Anne Goossensen. (2023) “It is important that we also remain a person ourselves”: A qualitative study about the role of healthcare and social welfare services by Dutch parents caring for a child with profound intellectual and multiple disabilities at home. SSM - Qualitative Research in Health 4, pages 100326.
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Catherine De Blasio, Juliane Dind & Geneviève Petitpierre. (2023) Odor hedonic responses in children and young people with profound intellectual and multiple disabilities. Frontiers in Psychiatry 14.
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A.M. Nieuwenhuijse, D.L. Willems, J.B. van Goudoever & E. Olsman. (2023) Parent perspectives on the assessment of quality of life of their children with profound intellectual and multiple disabilities in the Netherlands. Research in Developmental Disabilities 139, pages 104536.
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A.‐M. Martin, T. Andrews, J. Goldbart & M. Landers. (2022) Reconciling communication repertoires: navigating interactions involving persons with severe/profound intellectual disability, a classic grounded theory study. Journal of Intellectual Disability Research 66:4, pages 332-352.
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Julie Calveley. (2022) Understanding and managing trauma in people with severe and profound learning disabilities. Learning Disability Practice 25:1, pages 14-20.
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Simone Zorzi, Eva Marangone, Fabrizio Giorgeschi & Laura Berteotti. (2022) Promoting Choice Using Switches in People With Severe Disabilities: A Case Report. SAGE Open 12:1, pages 215824402210821.
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Erik Olsman, Appolonia M. Nieuwenhuijse & Dick L. Willems. (2021) Witnessing Quality of Life of Persons with Profound Intellectual and Multiple Disabilities. A practical-Philosophical Approach. Health Care Analysis 29:2, pages 144-153.
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Natalie Campbell. (2019) The intellectual ableism of leisure research: Original considerations towards understanding well-being with and for people with intellectual disabilities. Journal of Intellectual Disabilities 25:1, pages 82-97.
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Bea Maes, Sara Nijs, Sien Vandesande, Ines Van keer, Michael Arthur‐Kelly, Juliane Dind, Juliet Goldbart, Geneviève Petitpierre & Annette Van der Putten. (2020) Looking back, looking forward: Methodological challenges and future directions in research on persons with profound intellectual and multiple disabilities. Journal of Applied Research in Intellectual Disabilities 34:1, pages 250-262.
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Chris Walton, Charles Antaki & W.M.L Finlay. (2020) Orienting to affect in services for people with severe or profound intellectual disabilities: A UK‐based investigation. Journal of Applied Research in Intellectual Disabilities 33:5, pages 876-886.
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Meike Engelhardt, Michał Kosiedowski & Irena Duszyńska. (2020) Assistive technology for people with PIMD in challenging scenarios. Journal of Enabling Technologies 14:2, pages 87-97.
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Lauren Breslin, Nichole GuerraLori GanzDavid Ervin. (2020) Clinical Utility of Multisensory Environments for People With Intellectual and Developmental Disabilities: A Scoping Review. The American Journal of Occupational Therapy 74:1, pages 7401205060p1-7401205060p12.
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Gustavo Eduardo Constain Moreno, César A. Collazos, Habib M. Fardoun & Daniyal M. Alghazzawi. 2020. HCI International 2020 – Late Breaking Papers: Universal Access and Inclusive Design. HCI International 2020 – Late Breaking Papers: Universal Access and Inclusive Design
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Joanne Watson, Hille Voss & Melissa J. Bloomer. (2019) Placing the Preferences of People with Profound Intellectual and Multiple Disabilities At the Center of End-of-Life Decision Making Through Storytelling. Research and Practice for Persons with Severe Disabilities 44:4, pages 267-279.
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Petri J. C. M. Embregts, Annemarieke Negenman, Jolanda M. Habraken, Marike E. de Boer, Brenda J. M. Frederiks & Cees M. P. M. Hertogh. (2018) Restraint interventions in people with moderate to profound intellectual disabilities: Perspectives of support staff and family members. Journal of Applied Research in Intellectual Disabilities 32:1, pages 172-183.
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Miriam Roemer, Ellen Verheul & Frank Velthausz. (2018) Identifying perception behaviours in people with profound intellectual and multiple disabilities. Journal of Applied Research in Intellectual Disabilities 31:5, pages 820-832.
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Kirsten A van den Bosch, Tjeerd C Andringa, Wendy J Post, Wied AJJM Ruijssenaars & Carla Vlaskamp. (2018) The relationship between soundscapes and challenging behavior: A small-scale intervention study in a healthcare organization for individuals with severe or profound intellectual disabilities. Building Acoustics 25:2, pages 123-135.
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Gustavo Eduardo Constain Moreno, César Alberto Collazos, Habib M. Fardoun & Daniyal M. Alghazzawi. 2018. Learning and Collaboration Technologies. Design, Development and Technological Innovation. Learning and Collaboration Technologies. Design, Development and Technological Innovation
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Giuliana Galli Carminati, Federico Carminati, Rachel Lehotkay, Erica Nora Lorincz, Viviane Subirade-Jacopit, Elisa Rondini & Marco O. Bertelli. (2017) Residential placement and quality of life for adults with severe autism spectrum disorders and severe-to-profound intellectual disabilities. Advances in Autism 3:4, pages 187-205.
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Elizabeth A. Lyons, Diana E. Jones, Veronica M. Swallow & Colin Chandler. (2017) An Exploration of Comfort and Discomfort Amongst Children and Young People with Intellectual Disabilities Who Depend on Postural Management Equipment. Journal of Applied Research in Intellectual Disabilities 30:4, pages 727-742.
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A. ten Brug, A. A. J. Van der Putten, A. Penne, B. Maes & C. Vlaskamp. (2016) Making a difference? A comparison between multi-sensory and regular storytelling for persons with profound intellectual and multiple disabilities. Journal of Intellectual Disability Research 60:11, pages 1043-1053.
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Heleen Neerinckx & Bea Maes. (2016) Joint attention behaviours in people with profound intellectual and multiple disabilities: the influence of the context. Journal of Applied Research in Intellectual Disabilities 29:6, pages 574-584.
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Ji Young Na, Krista Wilkinson, Meredith Karny, Sarah Blackstone & Cynthia Stifter. (2016) A Synthesis of Relevant Literature on the Development of Emotional Competence: Implications for Design of Augmentative and Alternative Communication Systems. American Journal of Speech-Language Pathology 25:3, pages 441-452.
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V. Munde, C. Vlaskamp & A. ter Haar. (2016) Social-emotional instability in individuals with Rett syndrome: parents' experiences with second stage behaviour. Journal of Intellectual Disability Research 60:1, pages 43-53.
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Joseph A. Darling & Deborah K. Circo. (2015) Measuring happiness in individuals with profound multiple disabilities. Research in Developmental Disabilities 47, pages 117-125.
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V. Munde & C. Vlaskamp. (2015) Initiation of activities and alertness in individuals with profound intellectual and multiple disabilities. Journal of Intellectual Disability Research 59:3, pages 284-292.
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Mélissa Chard & Jean-Luc Roulin. (2016) Vers une meilleure compréhension du fonctionnement cognitif des personnes polyhandicapées. Revue francophone de la déficience intellectuelle 26, pages 29-44.
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Sarah Helps. 2015. Comorbid Conditions in Individuals with Intellectual Disabilities. Comorbid Conditions in Individuals with Intellectual Disabilities
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Juliet Goldbart, Darren Chadwick & Susan Buell. (2014) Speech and language therapists’ approaches to communication intervention with children and adults with profound and multiple learning disability. International Journal of Language & Communication Disorders 49:6, pages 687-701.
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Melissa Chard, Jean-Luc Roulin & Martine Bouvard. (2014) Visual Habituation Paradigm With Adults With Profound Intellectual and Multiple Disabilities: A New Way for Cognitive Assessment?. Journal of Applied Research in Intellectual Disabilities 27:5, pages 481-488.
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H. Neerinckx, P. Vos, W. Van Den Noortgate & B. Maes. (2014) Temporal analysis of attentional processes in spontaneous interactions between people with profound intellectual and multiple disabilities and their support workers. Journal of Intellectual Disability Research 58:8, pages 721-733.
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V. S. Munde, C. Vlaskamp, B. Maes & A. J. J. M. Ruijssenaars. (2014) Catch the wave! Time-window sequential analysis of alertness stimulation in individuals with profound intellectual and multiple disabilities. Child: Care, Health and Development 40:1, pages 95-105.
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Eric Emerson, David Felce & Roger J. Stancliffe. (2013) Issues Concerning Self-Report Data and Population-Based Data Sets Involving People With Intellectual Disabilities. Intellectual and Developmental Disabilities 51:5, pages 333-348.
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P. Vos, P. De Cock, K. Petry, W. Van Den Noortgate & B. Maes. (2013) See me, feel me. Using physiology to validate behavioural observations of emotions of people with severe or profound intellectual disability. Journal of Intellectual Disability Research 57:5, pages 452-461.
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P. Vos, P. De Cock, K. Petry, W. Van Den Noortgate & B. Maes. (2013) Investigating the relationship between observed mood and emotions in people with severe and profound intellectual disabilities. Journal of Intellectual Disability Research 57:5, pages 440-451.
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M. Lima, K. Silva, I. Amaral, A. Magalhães & L. de Sousa. (2011) Beyond behavioural observations: a deeper view through the sensory reactions of children with profound intellectual and multiple disabilities. Child: Care, Health and Development 39:3, pages 422-431.
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Chunxiao Li, Emily W. S. Tsoi, Antony L. Zhang, Shihui Chen & C. K. John Wang. (2012) Psychometric Properties of Self-reported Quality of Life Measures for People with Intellectual Disabilities: A Systematic Review. Journal of Developmental and Physical Disabilities 25:2, pages 253-270.
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Mikae Fukasawa, Yurika Inoue & Kazunori Takeda. (2013) Evaluation of Stress Related to Medical Care in Schools for Special Needs Education Using a Salivary Biomarker in Students With Profound and Multiple Learning Disabilities. Journal of Special Education Research 2:1, pages 11-16.
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K. Bunning, C. Smith, P. Kennedy & C. Greenham. (2011) Examination of the communication interface between students with severe to profound and multiple intellectual disability and educational staff during structured teaching sessions. Journal of Intellectual Disability Research 57:1, pages 39-52.
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Vera Munde, Carla Vlaskamp, Pieter Vos, Bea Maes & Wied Ruijssenaars. (2012) Physiological Measurements as Validation of Alertness Observations: An Exploratory Case Study of Three Individuals with Profound Intellectual and Multiple Disabilities. Intellectual and Developmental Disabilities 50:4, pages 300-310.
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Pieter Vos, Paul De Cock, Vera Munde, Katja Petry, Wim Van Den Noortgate & Bea Maes. (2012) The tell-tale: What do heart rate; skin temperature and skin conductance reveal about emotions of people with severe and profound intellectual disabilities?. Research in Developmental Disabilities 33:4, pages 1117-1127.
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Vera Munde, C. Vlaskamp, W. J. Post, A. J. J. M. Ruijssenaars, B. Maes & H. Nakken. (2012) Observing and Influencing Alertness in Individuals With Profound Intellectual and Multiple Disabilities in Multisensory Environments. Journal of Cognitive Education and Psychology 11:1, pages 5-19.
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Hostyn Ine, Neerinckx Heleen & Maes Bea. (2011) Attentional processes in interactions between people with profound intellectual and multiple disabilities and direct support staff. Research in Developmental Disabilities 32:2, pages 491-503.
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Pieter Vos, Paul De Cock, Katja Petry, Wim Van Den Noortgate & Bea Maes. (2010) What makes them feel like they do? Investigating the subjective well-being in people with severe and profound disabilities. Research in Developmental Disabilities 31:6, pages 1623-1632.
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Pieter Vos, Paul De Cock, Katja Petry, Wim Van Den Noortgate & Bea Maes. (2010) Do You Know What I Feel? A First Step Towards a Physiological Measure of the Subjective Well‐Being of Persons With Profound Intellectual and Multiple Disabilities. Journal of Applied Research in Intellectual Disabilities 23:4, pages 366-378.
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J. A. McGillivray, A. L. D. Lau, R. A. Cummins & G. Davey. (2009) The Utility of the Personal Wellbeing Index Intellectual Disability Scale in an Australian Sample. Journal of Applied Research in Intellectual Disabilities 22:3, pages 276-286.
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Bea Maes & Katja Petry. (2006) Kwaliteit van Leven bij Personen met Verstandelijke Beperkingen. gedrag en gezondheid 34:4, pages 192-201.
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