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POLICY ANALYSIS PAPER

Beset by obstacles: A review of Australian policy development to support ageing in place for people with intellectual disability

Pages 76-86 | Published online: 10 Jul 2009

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (12)

Jill Wilson, Cheryl Tilse, Ben White & Linda Rosenman. (2021) What is “fair and reasonable”? Norms and strategies guiding the distribution of assets by testators who have an adult child with intellectual disability. Journal of Intellectual & Developmental Disability 46:2, pages 175-185.
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Kyung Mee Kim, Yu-Ri Shin & Sekwang Hwang. (2020) Psychosocial experiences of the ageing of middle-aged people with intellectual disabilities in South Korea. International Journal of Developmental Disabilities 66:3, pages 196-203.
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Rafat Hussain, Matthew P. Janicki, Marie Knox, Stuart Wark & Trevor Parmenter. (2019) Perspectives about support challenges facing health workers assisting older adults with and without intellectual disability in rural versus urban settings in Australia. Journal of Intellectual & Developmental Disability 44:2, pages 174-183.
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David Treanor. (2018) Does the Australian National Disability Insurance Scheme enhance personal quality of life?. Research and Practice in Intellectual and Developmental Disabilities 5:1, pages 58-69.
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Carol Thomas & Christine Milligan. (2018) Dementia, disability rights and disablism: understanding the social position of people living with dementia. Disability & Society 33:1, pages 115-131.
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Andrea Petriwskyj, Jill Franz & Barbara Adkins. (2016) Parents, services and system: an exploration of power dynamics in future planning among parent carers for people with disability. Disability & Society 31:8, pages 1081-1097.
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Stuart Wark. (2015) Ageing, end-of-life care, and the National Disability Insurance Scheme: What can we learn from overseas?. Journal of Intellectual & Developmental Disability 40:1, pages 92-98.
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Louisa Willoughby. (2014) Unpacking barriers to quality care for Deaf people in residential aged care facilities. Disability & Society 29:2, pages 173-183.
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Vivienne C. Riches, Anthony D. Harman, Deb Keen, Donna Pennell, Jane H. Harley & Michelle Walker. (2011) Transforming staff practice through active support. Journal of Intellectual & Developmental Disability 36:3, pages 156-166.
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Caroline Ellison, Amy White & Libby Chapman. (2011) Avoiding institutional outcomes for older adults living with disability: The use of community-based aged care supports. Journal of Intellectual & Developmental Disability 36:3, pages 175-183.
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Michelle Rowbotham, Monica Cuskelly & Annemaree Carroll. (2011) Sustainable Caregiving? Demands Upon and Resources of Female Carers of Adults with Intellectual Disability. Journal of Women & Aging 23:2, pages 129-148.
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Christine Bigby & Marie Knox. (2009) “I Want to See the Queen”: Experiences of Service Use by Ageing People with an Intellectual Disability. Australian Social Work 62:2, pages 216-231.
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Articles from other publishers (43)

Michael Börner. 2023. Leben und Altern mit ›geistiger Behinderung‹. Leben und Altern mit ›geistiger Behinderung‹.
Hannah Casey, Áine Trayer, Deirdre Desmond & Laura Coffey. (2023) Experiences and perceptions of everyday decision-making in the lives of adults with intellectual disabilities, their care partners and direct care support workers. Journal of Intellectual Disabilities.
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Paula Jacobs, Karen Watchman, Heather Wilkinson, Louise Hoyle & Laura McGenily. (2022) Experiences of people with intellectual disability and dementia: A systematic review. Journal of Applied Research in Intellectual Disabilities 36:2, pages 241-258.
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Katie Rose, Desirée Kozlowski & Louise Horstmanshof. (2022) Experiences of ageing in place in Australia and New Zealand: A scoping review. Journal of Community & Applied Social Psychology.
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Caroline Egan, Helen Mulcahy & Corina Naughton. (2021) Transitioning to long-term care for older adults with intellectual disabilities: A concept analysis. Journal of Intellectual Disabilities 26:4, pages 1015-1032.
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Polly Yeung & Mary Breheny. 2021. The Palgrave Handbook of Global Social Problems. The Palgrave Handbook of Global Social Problems 1 18 .
Elizabeth P. Howard, Lynn Martin, George A. Heckman & John N. Morris. (2021) Does the Person-Centered Care Model Support the Needs of Long-Term Care Residents With Serious Mental Illness and Intellectual and Developmental Disabilities?. Frontiers in Psychiatry 12.
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Rafat Hussain, Trevor Parmenter, Stuart Wark, Matthew Janicki, Marie Knox & Nicola Hayhoe. (2021) Mitigating the impact of the ‘silos’ between the disability and aged‐care sectors in Australia: Development of a Best Practice Framework. Journal of Applied Research in Intellectual Disabilities 34:6, pages 1477-1488.
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Maria Truesdale, Laurence Taggart, Assumpta Ryan & Roy McConkey. (2021) Experiences of Reciprocal Caring Among Adults With an Intellectual Disability Caring for an Older Family Member. Journal of Policy and Practice in Intellectual Disabilities 18:3, pages 240-248.
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Feija D. Schaap, Geke J. Dijkstra, Sijmen A. Reijneveld & Evelyn J. Finnema. (2020) Use of dementia care mapping in the care for older people with intellectual disabilities: A mixed‐method study. Journal of Applied Research in Intellectual Disabilities 34:1, pages 149-163.
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Christine Linehan. 2021. Mental Health, Intellectual and Developmental Disabilities and the Ageing Process. Mental Health, Intellectual and Developmental Disabilities and the Ageing Process 303 320 .
Emily Joan Nalder, Tyler M. Saumur, Zinnia Batliwalla, Luis Salvador-Carulla, Michelle Putnam, Andria Spindel, Erica Lenton & Hamdi Hussein. (2020) A scoping review to characterize bridging tasks in the literature on aging with disability. BMC Health Services Research 20:1.
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Damien Brennan, Darren McCausland, Mary Ann O’Donovan, Jessica Eustace‐Cook, Philip McCallion & Mary McCarron. (2020) Approaches to and outcomes of future planning for family carers of adults with an intellectual disability: A systematic review. Journal of Applied Research in Intellectual Disabilities 33:6, pages 1221-1233.
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Marie Lourdes Charles. (2020) Communication experiences of family caregivers of hospitalized adults with intellectual and developmental disabilities—A qualitative study. Nursing Open 7:6, pages 1725-1734.
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Wendy A Rogers, Widya A Ramadhani & Maurita T Harris. (2020) Defining Aging in Place: The Intersectionality of Space, Person, and Time. Innovation in Aging 4:4.
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Hila Avieli, Tova Band-Winterstein & Tal Araten Bergman. (2019) Sibling Relationships Over the Life Course: Growing Up With a Disability. Qualitative Health Research 29:12, pages 1739-1750.
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Darren McCausland, Damien Brennan, Philip McCallion & Mary McCarron. (2019) Balancing personal wishes and caring capacity in future planning for adults with an intellectual disability living with family carers. Journal of Intellectual Disabilities 23:3, pages 413-431.
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BRIDGET GARNHAM, LIA BRYANT, PAUL RAMCHARAN, NILAN YU & VALERIE ADAMS. (2017) Policy, plans and pathways: the ‘crisis’ transition to post-parental care for people ageing with intellectual disabilities in rural Australian carescapes. Ageing and Society 39:4, pages 836-850.
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Jennifer Baumbusch, Elaine Moody, Rachelle Hole, Nancy Jokinen & Tim Stainton. (2019) Using Healthcare Services: Perspectives of Community-Dwelling Aging Adults With Intellectual Disabilities and Family Members. Journal of Policy and Practice in Intellectual Disabilities 16:1, pages 4-12.
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Portia Ho, Caroline Bulsara, Shane Patman, Max Bulsara, Jenny Downs & Anne-Marie Hill. (2018) Investigating falls in adults with intellectual disability living in community settings and their experiences of post-fall care services: protocol for a prospective observational cohort study. BMC Geriatrics 18:1.
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Chung eun Lee & Meghan M. Burke. (2018) Caregiving Roles of Siblings of Adults With Intellectual and Developmental Disabilities: A Systematic Review. Journal of Policy and Practice in Intellectual Disabilities 15:3, pages 237-246.
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Damien Brennan, Rebecca Murphy, Philip McCallion & Mary McCarron. (2018) “What's going to happen when we're gone?” Family caregiving capacity for older people with an intellectual disability in Ireland. Journal of Applied Research in Intellectual Disabilities 31:2, pages 226-235.
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Ann Leahy. (2018) Too many ‘false dichotomies’? Investigating the division between ageing and disability in social care services in Ireland: A study with statutory and non-statutory organisations. Journal of Aging Studies 44, pages 34-44.
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Lynn Martin, Hélène Ouellette-Kuntz & Katherine McKenzie. (2017) The Power of Population Health Data on Aging and Intellectual and Developmental Disabilities: Reactions of Knowledge Users. Journal of Policy and Practice in Intellectual Disabilities 14:4, pages 268-278.
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Ruth Northway, Robert Jenkins & Daniella Holland-Hart. (2017) Training of Residential Social Care Staff to Meet the Needs of Older People with Intellectual Disabilities who Develop Age-Related Health Problems: An Exploratory Study. Journal of Applied Research in Intellectual Disabilities 30:5, pages 911-921.
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Shahin Shooshtari, Brenda M. Stoesz, Leslie Udell, Leanne Fenez, Natalia Dik, Charles Burchill, Elizabeth Sachs & Verena Menec. (2017) Aging with intellectual and developmental disabilities and dementia in Manitoba. Advances in Mental Health and Intellectual Disabilities 11:4, pages 134-144.
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Ruth Northway, Daniella Holland-Hart & Robert Jenkins. (2017) Meeting the health needs of older people with intellectual disabilities: exploring the experiences of residential social care staff. Health & Social Care in the Community 25:3, pages 923-931.
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Stuart Wark, Rafat Hussain & Helen Edwards. (2016) The main signs of ageing in people with intellectual disability. Australian Journal of Rural Health 24:6, pages 357-362.
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Shin, Yu-Ri, KyungMee Kim & Cheong-Seok Kim. (2016) On the Cross of Disability and Old Age. Korean Journal of Social Welfare 68:4, pages 143-167.
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강승원 & 이해경. (2016) Factors Affecting the Happiness of Older people with Disabilities: Comparison of Rural and Urban areas. Locality and Globality: Korean Journal of Social Sciences 40:2, pages 31-56.
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Simone Reppermund & Julian N. Trollor. (2016) Successful ageing for people with an intellectual disability. Current Opinion in Psychiatry 29:2, pages 149-154.
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Stuart Wark, Miranda Canon‐Vanry, Peta Ryan, Rafat Hussain, Marie Knox, Meaghan Edwards, Marie Parmenter, Trevor Parmenter, Matthew Janicki & Chez Leggatt‐Cook. (2015) Ageing‐related experiences of adults with learning disability resident in rural areas: one Australian perspective. British Journal of Learning Disabilities 43:4, pages 293-301.
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Stuart Wark, Rafat Hussain & Helen Edwards. (2015) Assisting individuals ageing with learning disability: support worker perspectives. Tizard Learning Disability Review 20:4, pages 213-222.
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IDA KÅHLIN, ANETTE KJELLBERG, CATHARINA NORD & JAN-ERIK HAGBERG. (2013) Lived experiences of ageing and later life in older people with intellectual disabilities. Ageing and Society 35:3, pages 602-628.
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Pierre Pariseau-Legault & Dave Holmes. (2015) Intellectual Disability: A Critical Concept Analysis. Research and Theory for Nursing Practice 29:4, pages 249-265.
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Stuart Wark, Rafat Hussain & Helen Edwards. (2014) Impediments to community-based care for people ageing with intellectual disability in rural New South Wales. Health & Social Care in the Community 22:6, pages 623-633.
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Stuart Wark, Rafat Hussain & Helen Edwards. (2014) The Training Needs of Staff Supporting Individuals Ageing with Intellectual Disability. Journal of Applied Research in Intellectual Disabilities 27:3, pages 273-288.
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L. E. Wee, G. C-H. Koh, L. S. Auyong, A. Cheong, T. T. Myo, J. Lin, E. Lim, S. Tan, S. Sundaramurthy, C. W. Koh, P. Ramakrishnan, R. Aariyapillai-Rajagopal, H. Vaidynathan-Selvamuthu & K. Ma-Ma. (2014) Screening for cardiovascular disease risk factors at baseline and post intervention among adults with intellectual disabilities in an urbanised Asian society. Journal of Intellectual Disability Research 58:3, pages 255-268.
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Shannon McDermott & Robyn Edwards. (2012) Enabling Self‐determination for Older Workers with Intellectual Disabilities in Supported Employment in Australia. Journal of Applied Research in Intellectual Disabilities 25:5, pages 423-432.
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Anthea Innes, Louise McCabe & Karen Watchman. (2012) Caring for older people with an intellectual disability: A systematic review. Maturitas 72:4, pages 286-295.
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Carmel Laragy & Goetz Ottmann. (2011) Towards a Framework for Implementing Individual Funding Based on an Australian Case Study. Journal of Policy and Practice in Intellectual Disabilities 8:1, pages 18-27.
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Joe Judge, Robert Walley, Bethany Anderson & Ruth Young. (2010) Activity, Aging, and Retirement: The Views of a Group of Scottish People With Intellectual Disabilities. Journal of Policy and Practice in Intellectual Disabilities 7:4, pages 295-301.
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Christine Bigby. (2010) A Five‐Country Comparative Review of Accommodation Support Policies for Older People With Intellectual Disability. Journal of Policy and Practice in Intellectual Disabilities 7:1, pages 3-15.
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