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Articles

Caring for an individual with autism disorder: A qualitative analysis

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Pages 27-35 | Published online: 10 Jul 2009

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Read on this site (10)

Michelle Cleary, Sancia West & Loyola Mclean. (2023) From ‘Refrigerator Mothers’ to Empowered Advocates: The Evolution of the Autism Parent. Issues in Mental Health Nursing 44:1, pages 64-70.
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Sarah E. Russin & Emily L. Ferrell. (2020) Information Needs of Informal Caregivers in Posttraumatic Stress Disorder. Journal of Aggression, Maltreatment & Trauma 29:4, pages 400-420.
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Jessica Rogerson, Marita Falkmer, Belinda Cuomo, Torbjorn Falkmer, Andrew J. O Whitehouse, Joanna Granich & Sharmila Vaz. (2019) Parental experiences using the Therapy Outcomes by You (TOBY) application to deliver early intervention to their child with autism. Developmental Neurorehabilitation 22:4, pages 219-227.
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Christine Wigston, Marita Falkmer, Sharmila Vaz, Richard Parsons & Torbjörn Falkmer. (2017) Participation in extracurricular activities for children with and without siblings with autism spectrum disorder. Developmental Neurorehabilitation 20:1, pages 25-39.
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Kartini Ilias, Jeanette Hui Jean Liaw, Kim Cornish, Miriam Sang-Ah Park & Karen Jennifer Golden. (2017) Wellbeing of mothers of children with “A-U-T-I-S-M” in Malaysia: An interpretative phenomenological analysis study. Journal of Intellectual & Developmental Disability 42:1, pages 74-89.
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Karenne Hills, Jayne Clapton & Pat Dorsett. (2016) Towards an Understanding of Spirituality in the Context of Nonverbal Autism: A Scoping Review. Journal of Disability & Religion 20:4, pages 265-290.
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Rachel Jellett, Catherine E. Wood, Rebecca Giallo & Monique Seymour. (2015) Family functioning and behaviour problems in children with Autism Spectrum Disorders: The mediating role of parent mental health. Clinical Psychologist 19:1, pages 39-48.
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SusanL. Neely-Barnes, HeatherR. Hall, RuthJ. Roberts & J. Carolyn Graff. (2011) Parenting a Child With an Autism Spectrum Disorder: Public Perceptions and Parental Conceptualizations. Journal of Family Social Work 14:3, pages 208-225.
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Articles from other publishers (45)

Sophia Dückert, Petia Gewohn, Hannah König, Daniel Schöttle, Alexander Konnopka, Pascal Rahlff, Kai Vogeley, Holger Schulz, Nicole David & Judith Peth. (2023) Multidimensional Burden on Family Caregivers of Adults with Autism Spectrum Disorder: a Scoping Review. Review Journal of Autism and Developmental Disorders.
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Christina N. Marsack-Topolewski, Preethy Sarah Samuel & Mark D. Peterson. (2023) Perceptions of Caregiver Burden and Living Arrangements of Adult Children With Autism. Families in Society: The Journal of Contemporary Social Services, pages 104438942311704.
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Marie Brien-Bérard & Catherine des Rivières-Pigeon. (2022) Coping Strategies and the Marital Relationship Among Parents Raising Children with ASD. Journal of Child and Family Studies 32:3, pages 908-925.
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Gemma Davy, Katy L Unwin, Josephine Barbaro & Cheryl Dissanayake. (2022) Leisure, employment, community participation and quality of life in caregivers of autistic children: A scoping review. Autism 26:8, pages 1916-1930.
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Jason C. Bishop, Chad Nichols, Sibylle Kranz, Julia K. Lukacs & Martin E. Block. (2022) Determinants of physical activity of transitioning adult children with Autism Spectrum Disorder. Heliyon 8:8, pages e10150.
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Jing Xuan Goh, Ramkumar Aishworiya, Roger Chun Man Ho, Wenru Wang & Hong‐Gu He. (2021) A qualitative study exploring experiences and support needs of parents of children with autism spectrum disorder in Singapore. Journal of Clinical Nursing 30:21-22, pages 3268-3280.
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Heather Morris, Elaine Hyshka, Petra Schulz, Emily Jenkins & Rebecca J. Haines-Saah. (2021) “It’s a Bit of a Double-Edged Sword”: Motivation and Personal Impact of Bereaved Mothers’ Advocacy for Drug Policy Reform. Qualitative Health Research 31:10, pages 1812-1822.
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Lauren J. Taylor, Sze Y.L. Luk, Kathy Leadbitter, Heather L. Moore & Tony Charman. (2021) Are child autism symptoms, developmental level and adaptive function associated with caregiver feelings of wellbeing and efficacy in the parenting role?. Research in Autism Spectrum Disorders 83, pages 101738.
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Kellie St.Cyr Brisini & Denise Haunani Solomon. (2020) Distinguishing relational turbulence, marital satisfaction, and parenting stress as predictors of ineffective Arguing among parents of children with autism. Journal of Social and Personal Relationships 38:1, pages 65-83.
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Kellie St.Cyr Brisini & Denise Haunani Solomon. (2020) Relational Uncertainty and Taking Conflict Personally: Comparing Parents of Children with and Without Autism Spectrum Disorder. Journal of Autism and Developmental Disorders 50:12, pages 4401-4411.
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Hadi Samadi & Sayyed Ali Samadi. (2020) Understanding Different Aspects of Caregiving for Individuals with Autism Spectrum Disorders (ASDs) a Narrative Review of the Literature. Brain Sciences 10:8, pages 557.
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Xiaoli Liao & Yamin Li. (2019) Economic burdens on parents of children with autism: a literature review. CNS Spectrums 25:4, pages 468-474.
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Brian Lovell & Mark A. Wetherell. (2019) Exploring the Moderating Role of Benefit Finding on the Relationship Between Child Problematic Behaviours and Psychological Distress in Caregivers of Children with ASD. Journal of Autism and Developmental Disorders 50:2, pages 617-624.
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Marie Brien-Bérard1 & Catherine des Rivières-Pigeon. (2021) COMPRENDRE LES DÉFIS CONJUGAUX DES PARENTS D’ENFANTS AYANT UN TSA : PROPOSITION D’UN MODÈLE ÉCOSYSTÉMIQUE. Revue québécoise de psychologie 41:3, pages 131-156.
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Naomi Downes & Émilie Cappe. 2019. Familles et trouble du spectre de l'autisme. Familles et trouble du spectre de l'autisme 211 226 .
Jamal M Al Khateeb, Louise Kaczmarek & Muna S Al Hadidi. (2019) Parents’ perceptions of raising children with autism spectrum disorders in the United States and Arab countries: A comparative review. Autism 23:7, pages 1645-1654.
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Emily L. Ferrell, Sarah E. Russin & Rachel M. Hardy. (2018) Informal caregiving experiences in posttraumatic stress disorder: A content analysis of an online community. Journal of Community Psychology 47:4, pages 757-771.
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Angela Sim, Reinie Cordier, Sharmila Vaz & Torbjörn Falkmer. (2019) “We are in this together”: Experiences of relationship satisfaction in couples raising a child with autism spectrum disorder. Research in Autism Spectrum Disorders 58, pages 39-51.
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Miranda Willet, Diana Dorstyn, Clemence Due & Wenjing Li. (2018) Applying Andersen’s Model to Explain Service Use and Quality of Life Among Australian Caregivers of Children with Autism Spectrum Disorder. Journal of Developmental and Physical Disabilities 30:3, pages 339-354.
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Sarah S. Mire, Tammy D. Tolar, Christie M. Brewton, Natalie S. Raff & Shannon L. McKee. (2017) Validating the Revised Illness Perception Questionnaire as a Measure of Parent Perceptions of Autism Spectrum Disorder. Journal of Autism and Developmental Disorders 48:5, pages 1761-1779.
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Christy Haakonsen Smith, Erin Turbitt, John Muschelli, Lori Leonard, Katie L. Lewis, Brian Freedman, Michelle Muratori & Barbara B. Biesecker. (2017) Feasibility of Coping Effectiveness Training for Caregivers of Children with Autism Spectrum Disorder: a Genetic Counseling Intervention. Journal of Genetic Counseling 27:1, pages 252-262.
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K. Boshoff, D. Gibbs, R. L. Phillips, L. Wiles & L. Porter. (2018) Parents' voices: “Our process of advocating for our child with autism.” A meta-synthesis of parents' perspectives. Child: Care, Health and Development 44:1, pages 147-160.
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Christina N. Marsack & Preethy S. Samuel. (2017) Mediating Effects of Social Support on Quality of Life for Parents of Adults with Autism. Journal of Autism and Developmental Disorders 47:8, pages 2378-2389.
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Janice Goldschmidt. (2016) What Happened to Paul? Manifestation of Abnormal Pain Response for Individuals With Autism Spectrum Disorder. Qualitative Health Research 27:8, pages 1133-1145.
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Sudha Thomas, N. Krishna Reddy & K. John Vijay Sagar. (2016) Review on Psychosocial Interventions for Siblings of Children with Autism Spectrum Disorder (ASD). Journal of Psychosocial Rehabilitation and Mental Health 3:2, pages 101-107.
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K. Boshoff, D. Gibbs, R. L. Phillips, L. Wiles & L. Porter. (2016) Parents' voices: ‘why and how we advocate’. A meta-synthesis of parents' experiences of advocating for their child with autism spectrum disorder. Child: Care, Health and Development 42:6, pages 784-797.
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Jocelyn Bessette Gorlin, Cynthia Peden McAlpine, Ann Garwick & Elizabeth Wieling. (2016) Severe Childhood Autism: The Family Lived Experience. Journal of Pediatric Nursing 31:6, pages 580-597.
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Phil Reed, Lucy Picton, Nicole Grainger & Lisa Osborne. (2016) Impact of Diagnostic Practices on the Self-Reported Health of Mothers of Recently Diagnosed Children with ASD. International Journal of Environmental Research and Public Health 13:9, pages 888.
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Ami Tint & Jonathan A Weiss. (2015) Family wellbeing of individuals with autism spectrum disorder: A scoping review. Autism 20:3, pages 262-275.
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Jacqueline Corcoran, Amber Berry & Stephanie Hill. (2015) The lived experience of US parents of children with autism spectrum disorders. Journal of Intellectual Disabilities 19:4, pages 356-366.
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Yvonne Swinth, George Tomlin & Marge Luthman. (2015) Content Analysis of Qualitative Research on Children and Youth With Autism, 1993–2011: Considerations for Occupational Therapy Services. The American Journal of Occupational Therapy 69:5, pages 6905185030p1-6905185030p9.
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Michael Saini, Kevin P. Stoddart, Margaret Gibson, Rae Morris, Deborah Barrett, Barbara Muskat, David Nicholas, Glenn Rampton & Lonnie Zwaigenbaum. (2015) Couple relationships among parents of children and adolescents with Autism Spectrum Disorder: Findings from a scoping review of the literature. Research in Autism Spectrum Disorders 17, pages 142-157.
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Nicolás Ruiz-Robledillo, Patricia Sariñana-González, Josefa Pérez-Blasco, Esperanza González-Bono & Luis Moya-Albiol. (2014) A Mindfulness-Based Program Improves Health in Caregivers of People with Autism Spectrum Disorder: a Pilot Study. Mindfulness 6:4, pages 767-777.
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Carmel S. Sivaratnam, Louise K. Newman, Bruce J. Tonge & Nicole J. Rinehart. (2015) Attachment and Emotion Processing in Children with Autism Spectrum Disorders: Neurobiological, Neuroendocrine, and Neurocognitive Considerations. Review Journal of Autism and Developmental Disorders 2:2, pages 222-242.
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Vu Song Ha, Andrea Whittaker, Maxine Whittaker & Sylvia Rodger. (2014) Living with autism spectrum disorder in Hanoi, Vietnam. Social Science & Medicine 120, pages 278-285.
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Chiara Horlin, Marita Falkmer, Richard Parsons, Matthew A. Albrecht & Torbjorn Falkmer. (2014) The Cost of Autism Spectrum Disorders. PLoS ONE 9:9, pages e106552.
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Martine D Lappé. (2014) Taking care: Anticipation, extraction and the politics of temporality in autism science. BioSocieties 9:3, pages 304-328.
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Julie L. Ramisch, Esther Onaga & Su Min Oh. (2013) Keeping a Sound Marriage: How Couples with Children with Autism Spectrum Disorders Maintain Their Marriages. Journal of Child and Family Studies 23:6, pages 975-988.
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Heather J. Williamson & Elizabeth A. Perkins. (2014) Family Caregivers of Adults With Intellectual and Developmental Disabilities: Outcomes Associated With U.S. Services and Supports. Intellectual and Developmental Disabilities 52:2, pages 147-159.
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Elizabeth K Cridland, Sandra C Jones, Christopher A Magee & Peter Caputi. (2013) Family-focused autism spectrum disorder research: A review of the utility of family systems approaches. Autism 18:3, pages 213-222.
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Phil Reed & Lisa A. Osborne. 2014. Comprehensive Guide to Autism. Comprehensive Guide to Autism 185 206 .
Sandra Hodgetts, David Nicholas & Lonnie Zwaigenbaum. (2013) Home Sweet Home? Families’ Experiences With Aggression in Children With Autism Spectrum Disorders. Focus on Autism and Other Developmental Disabilities 28:3, pages 166-174.
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S. Hellemans, J. De Mol, A. Buysse, I. Eisler, K. Demyttenaere & G.M.D. Lemmens. (2011) Therapeutic processes in multi-family groups for major depression: Results of an interpretative phenomenological study. Journal of Affective Disorders 134:1-3, pages 226-234.
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Alisha S. Richmond. (2011) Autism Spectrum Disorder: A Global Perspective. Perspectives on Global Issues in Communication Sciences and Related Disorders 1:2, pages 39-46.
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Miyako Kimura, Yoshihiko Yamazaki, Mieko Mochizuki & Tomoko Omiya. (2010) Can I have a second child? dilemmas of mothers of children with pervasive developmental disorder: a qualitative study. BMC Pregnancy and Childbirth 10:1.
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