Citations (33)
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Esther V. Hobson, Wendy O. Baird, Rebecca Partridge, Cindy L. Cooper, Susan Mawson, Ann Quinn, Pamela J. Shaw, Theresa Walsh, Daniel Wolstenholme & Christopher J. Mcdermott. (2018) The TiM system: developing a novel telehealth service to improve access to specialist care in motor neurone disease using user-centered design. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:5-6, pages 351-361.
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Esther V. Hobson, Wendy O. Baird, Cindy L. Cooper, Sue Mawson, Pamela J. Shaw & Christopher J. Mcdermott. (2016) Using technology to improve access to specialist care in amyotrophic lateral sclerosis: A systematic review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 17:5-6, pages 313-324.
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Dikaios Sakellariou, Gail Boniface & Paul Brown. (2013) Experiences of living with motor neurone disease: a review of qualitative research. Disability and Rehabilitation 35:21, pages 1765-1773.
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Anne Hogden, David Greenfield, Peter Nugus & Matthew C Kiernan. (2012) What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives. Patient Preference and Adherence 6, pages 829-838.
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Anne Hogden, David Greenfield, Peter Nugus & Matthew C Kiernan. (2012) Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: the views of health professionals. Patient Preference and Adherence 6, pages 691-701.
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Geraldine Foley, Virpi Timonen & Orla Hardiman. (2012) Patients’ perceptions of services and preferences for care in amyotrophic lateral sclerosis: A review. Amyotrophic Lateral Sclerosis 13:1, pages 11-24.
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Julia Cupp, Zachary Simmons, Arthur Berg, Stephanie H. Felgoise, Susan M. Walsh & Helen E. Stephens. (2011) Psychological health in patients with ALS is maintained as physical function declines. Amyotrophic Lateral Sclerosis 12:4, pages 290-296.
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Articles from other publishers (25)
Sean White, Alicia O'Cathain, Vanessa Halliday, Liz Croot & Christopher J. McDermott. (2023) Factors influencing decisions people with motor neuron disease make about gastrostomy placement and ventilation: A qualitative evidence synthesis. Health Expectations 26:4, pages 1418-1435.
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Denise A. Harris, Kirsten Jack & Christopher Wibberley. (2023) The need to consider ‘temporality’ in person‐centred care of people with motor neurone disease. Journal of Evaluation in Clinical Practice.
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Filipe Gonçalves, Margarida I. Teixeira & Bruno Magalhães. (2022) The role of spirituality in people with amyotrophic lateral sclerosis and their caregivers: Scoping review. Palliative and Supportive Care, pages 1-11.
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Helen Brewah, Kevin Borrett, Nuno Tavares & Nikki Jarrett. (2022) Perceptions of people with motor neurone disease, families and HSCPs: a literature review. British Journal of Community Nursing 27:4, pages 188-198.
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Georgiana Soares Leandro, Mário Emílio Teixeira Dourado Júnior, Glauciane Costa Santana & Luan Samy Xavier Dantas. (2021) Coping strategies among amyotrophic lateral sclerosis (ALS) patients: an integrative review. Journal of Neurology 269:2, pages 693-702.
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Cathryn Pinto, Adam W A Geraghty, Lucy Yardley & Laura Dennison. (2021) Emotional distress and well-being among people with motor neurone disease (MND) and their family caregivers: a qualitative interview study. BMJ Open 11:8, pages e044724.
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Esther V Hobson, Wendy O Baird, Mike Bradburn, Cindy Cooper, Susan Mawson, Ann Quinn, Pamela J Shaw, Theresa Walsh & Christopher J McDermott. (2019) Using telehealth in motor neuron disease to increase access to specialist multidisciplinary care: a UK-based pilot and feasibility study. BMJ Open 9:10, pages e028525.
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Clarissa Giebel, Gillian Medley, Sandra Smith, Maria Thornton, Moira Furlong, Michelle Ennis & Carolyn Young. (2019) Communicating psychosocial well-being in motor neurone disease to staff: results from a World Café approach. Quality of Life Research 28:9, pages 2579-2584.
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Hikari Ando, Rosanna Cousins & Carolyn A Young. (2019) Exploring and Addressing ‘Concerns’ for Significant Others to Extend the Understanding of Quality of Life With Amyotrophic Lateral Sclerosis: A Qualitative Study. Journal of Central Nervous System Disease 11, pages 117957351985936.
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Melanie Harris, Geoff Thomas, Mary Thomas, Paul Cafarella, Allegra Stocks, Julia Greig & R. Doug McEvoy. (2017) Supporting wellbeing in motor neurone disease for patients, carers, social networks, and health professionals: A scoping review and synthesis. Palliative and Supportive Care 16:2, pages 228-237.
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Rebecca Davies, Felicity A Baker, Jeanette Tamplin, Eleanor Bajo, Karen Bolger, Nicole Sheers & David Berlowitz. (2016) Music-assisted relaxation during transition to non-invasive ventilation in people with motor neuron disease: A qualitative case series. British Journal of Music Therapy 30:2, pages 74-82.
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Marie-Christine RousseauKarine Baumstarck, Thierry Billette de Villemeur & Pascal Auquier. (2016) Evaluation of quality of life in individuals with severe chronic motor disability: A major challenge. Intractable & Rare Diseases Research 5:2, pages 83-89.
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Mary R. O'brien & David Clark. (2015) Spirituality and/or religious faith: A means for coping with the effects of amyotrophic lateral sclerosis/motor neuron disease?. Palliative and Supportive Care 13:6, pages 1603-1614.
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Andrew Soundy & Nicola Condon. (2015) Patients experiences of maintaining mental well-being and hope within motor neuron disease: a thematic synthesis. Frontiers in Psychology 6.
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Brenda Bentley, Moira O'Connor, Robert Kane & Lauren J. Breen. (2014) Feasibility, Acceptability, and Potential Effectiveness of Dignity Therapy for People with Motor Neurone Disease. PLoS ONE 9:5, pages e96888.
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Huub CreemersJan H. VeldinkHepke GrupstraFrans NolletAnita BeelenLeonard H. van den Berg. (2014) Cluster RCT of case management on patients' quality of life and caregiver strain in ALS. Neurology 82:1, pages 23-31.
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Dorothée Lulé, Benedikt Ehlich, Dirk Lang, Sonja Sorg, Johanna Heimrath, Andrea Kübler, Niels Birbaumer & Albert C. Ludolph. (2013) Quality of life in fatal disease: the flawed judgement of the social environment. Journal of Neurology 260:11, pages 2836-2843.
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Anneli O Ozanne, Ulla H Graneheim & Susann Strang. (2013) Finding meaning despite anxiety over life and death in amyotrophic lateral sclerosis patients. Journal of Clinical Nursing 22:15-16, pages 2141-2149.
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Brenda Bentley, Samar M Aoun, Moira O’Connor, Lauren J Breen & Harvey Max Chochinov. (2012) Is dignity therapy feasible to enhance the end of life experience for people with motor neurone disease and their family carers?. BMC Palliative Care 11:1.
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Anneli Olsson Ozanne, Ulla H Graneheim, Lennart Persson & Susann Strang. (2012) Factors that facilitate and hinder the manageability of living with amyotrophic lateral sclerosis in both patients and next of kin. Journal of Clinical Nursing 21:9-10, pages 1364-1373.
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Mary R O’Brien, Bridget Whitehead, Philip N Murphy, J Douglas Mitchell & Barbara A Jack. (2011) Social services homecare for people with motor neurone disease/amyotrophic lateral sclerosis: Why are such services used or refused?. Palliative Medicine 26:2, pages 123-131.
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Kori A. LaDonna. (2011) A Literature Review of Studies Using Qualitative Research to Explore Chronic Neuromuscular Disease. Journal of Neuroscience Nursing 43:3, pages 172-182.
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Josée Lemoignan & Carolyn Ells. (2010) Amyotrophic lateral sclerosis and assisted ventilation: How patients decide. Palliative and Supportive Care 8:2, pages 207-213.
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Mark B. Bromberg. (2008) Quality of Life in Amyotrophic Lateral Sclerosis. Physical Medicine and Rehabilitation Clinics of North America 19:3, pages 591-605.
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