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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 19, 2018 - Issue 7-8
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Research Article

Caregiver burden and quality of life of patients with amyotrophic lateral sclerosis in India

Priya Treesa ThomasDepartment of Psychiatric Social Work, Correspondence[email protected]
,
Manjusha G. WarrierDepartment of Psychiatric Social Work,
,
Arun SadasivanDepartment of Psychiatric Social Work,
,
Bhuvaneshwari BalasubramaniumDepartment of Psychiatric Social Work,
,
Veeramani Preethish-kumarDepartment of Neurology, and ;Department of Clinical NeurosciencesNational Institute of Mental Health and Neuro Sciences, Bangalore, IndiaORCID Iconhttp://orcid.org/0000-0003-1158-0971
ORCID Icon,
Saraswati NashiDepartment of Neurology, and
,
Kiran PolavarapuDepartment of Neurology, and ;Department of Clinical NeurosciencesNational Institute of Mental Health and Neuro Sciences, Bangalore, India
,
Gopalkrishna KrishnaDepartment of Neurology, and
,
Seena VengalilDepartment of Neurology, and
,
Prakashi RajaramDepartment of Psychiatric Social Work,
&
Atchayaram NaliniDepartment of Neurology, and
show all
Pages 606-610 | Received 24 Jan 2018, Accepted 21 May 2018, Published online: 24 Jul 2018

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Zeliha Tülek, Aylin Özakgül, Naile Alankaya, Aynur Dik, Alper Kaya, Pemra C. Ünalan, Ayşe Nilüfer Özaydin & Halil Atilla İdrisoğlu. (2023) Care burden and related factors among informal caregivers of patients with amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:1-2, pages 125-132.
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Andrea Carboni-Jiménez, Danielle B. Rice, Brooke Levis, Mara Cañedo-Ayala, Mahrukh Imran, Matthew Chiovitti, Andrea Benedetti & Brett D. Thombs. (2022) Intensity of care and perceived burden among informal caregivers to persons with chronic medical conditions: a systematic review and meta-analysis. Disability and Rehabilitation 44:21, pages 6230-6246.
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Manjusha G. Warrier, Priya Treesa Thomas, Arun Sadasivan, Bhuvaneshwari Balasubramaniam, Seena Vengalil, Saraswati Nashi, Veeramani Preethish-Kumar, Kiran Polavarapu, Niranjan Prakash Mahajan, Pradeep Chandra Reddy Chevula & Atchayaram Nalini. (2019) Family Caregivers’ Experiences with Dying and Bereavement of Individuals with Motor Neuron Disease in India. Journal of Social Work in End-of-Life & Palliative Care 15:2-3, pages 111-125.
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Articles from other publishers (14)

Kun Yang, Hongxia Xue, Li Li & Shan Tang. (2023) Caregivers of ALS Patients: Their Experiences and Needs. Neuroethics 17:1.
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Tina Thorborg, Jeanette Finderup, Dorte Skriver Winther, Charlotte Kirkegaard Lorenzen & Pia Dreyer. (2023) The experiences of patients with amyotrophic lateral sclerosis of their decision‐making processes to invasive home mechanical ventilation—A qualitative study. Nursing Open 10:8, pages 5139-5148.
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Priya Treesa Thomas, Manjusha G Warrier, S Arun, B Bhuvaneshwari, Seena Vengalil, Saraswati Nashi, Veeramani Preethish-Kumar, Kiran Polavarapu, Prakashi Rajaram & Atchayaram Nalini. (2022) An individualised psychosocial intervention program for persons with MND/ALS and their families in low resource settings. Chronic Illness 19:2, pages 458-471.
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Pauli Van der Mescht, Salome Geertsema, Mia le Roux, Marien A. Graham & Ensa Johnson. (2023) The potential burden experienced by South African caregivers of children with severe intellectual disability. South African Journal of Childhood Education 13:1.
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Elisa Aust, Katharina Linse, Sven-Thomas Graupner, Markus Joos, Daniel Liebscher, Julian Grosskreutz, Johannes Prudlo, Thomas Meyer, René Günther, Sebastian Pannasch & Andreas Hermann. (2022) Quality of life and mental health in the locked-in-state—differences between patients with amyotrophic lateral sclerosis and their next of kin. Journal of Neurology 269:11, pages 5910-5925.
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Maksude Yildirim, Emriye Hilal Yayan, Yeliz Suna Dağ, Ayşe Sülün & Arzu Akyay. (2022) The relationship between the care burden and quality of life of parents who have children with hematological problems and their perceived social support. Journal of Pediatric Nursing 63, pages e107-e112.
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Beth Langford, Yiling Zhou & Janis M. Miyasaki. (2021) Multiple System Atrophy Caregivers’ Experience: A Mixed Methods Study. Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques, pages 1-11.
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Shan Tang, Li Li, Hongxia Xue, Shuyan Cao, Chao Li, Kunjing Han & Binquan Wang. (2021) Caregiver burden and associated factors among primary caregivers of patients with ALS in home care: a cross-sectional survey study. BMJ Open 11:9, pages e050185.
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Anna Zinkevich, Johanna Sophie Lubasch, Sarah Anna Katharina Uthoff, Jens Boenisch, Stefanie Kalén Sachse, Tobias Bernasconi & Lena Ansmann. (2021) Caregiver burden and proxy-reported outcomes of people without natural speech: a cross-sectional survey study. BMJ Open 11:8, pages e048789.
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Merve Deniz PAK GÜRE & Cemre PAK. (2021) NADİR HASTALIĞI OLAN ÇOCUKLARIN AİLELERİNDE BAKIM YÜKÜNÜN İNCELENMESİEXAMINING THE CAREGIVER BURDEN IN THE FAMILIES OF CHILDREN WITH RARE DISEASES. Turkish Journal of Family Medicine and Primary Care 15:2, pages 269-277.
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Anna Markella Antoniadi, Miriam Galvin, Mark Heverin, Orla Hardiman & Catherine Mooney. (2021) Prediction of caregiver quality of life in amyotrophic lateral sclerosis using explainable machine learning. Scientific Reports 11:1.
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Meng‐Mei Yuan, Xi Peng, Tie‐Ying Zeng, Mei‐Li‐Yang Wu, Ye Chen, Ke Zhang & Xue‐Jun Wang. (2021) The illness experience for people with amyotrophic lateral sclerosis: A qualitative study. Journal of Clinical Nursing 30:9-10, pages 1455-1463.
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ManjushaG Warrier, Arun Sadasivan, Kiran Polavarapu, VeeramaniPreethish Kumar, NiranjanPrakash Mahajan, ChevulaPradeep Chandra Reddy, Seena Vengalil, Saraswati Nashi, Atchayaram Nalini & PriyaTreesa Thomas. (2020) Lived experience of spouses of persons with motor neuron disease: Preliminary findings through interpretative phenomenological analysis. Indian Journal of Palliative Care 26:1, pages 60.
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Jashelle Caga, Sharpley Hsieh, Patricia Lillo, Kaitlin Dudley & Eneida Mioshi. (2019) The Impact of Cognitive and Behavioral Symptoms on ALS Patients and Their Caregivers. Frontiers in Neurology 10.
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