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Research Article

The burden of apathy for caregivers of patients with amyotrophic lateral sclerosis

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Pages 599-605 | Received 18 Jan 2018, Accepted 10 Jun 2018, Published online: 29 Oct 2018

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Mansur A. Kutlubaev, Jashelle Caga, Ying Xu, Daria K. Areprintseva, Ekaterina V. Pervushina & Matthew C. Kiernan. (2023) Apathy in amyotrophic lateral sclerosis: systematic review and meta-analysis of frequency, correlates, and outcomes. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:1-2, pages 14-23.
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Jashelle Caga, Margaret C. Zoing, David Foxe, Eleanor Ramsey, Mirelle D’Mello, Eneida Mioshi, Rebekah M. Ahmed, Matthew C. Kiernan & Olivier Piguet. (2021) Problem-focused coping underlying lower caregiver burden in ALS-FTD: implications for caregiver intervention. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:5-6, pages 434-441.
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Qian-Qian Wei, Yuan Guo, Shirong Li, Tianmi Yang, Yanbing Hou, Ruwei Ou, Junyu Lin, Qirui Jiang & Huifang Shang. (2023) Prevalence and associated factors of apathy in Chinese ALS patients. Frontiers in Psychology 14.
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Jashelle Caga, Matthew C. Kiernan & Olivier Piguet. (2021) A Systematic Review of Caregiver Coping Strategies in Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Journal of Geriatric Psychiatry and Neurology 35:6, pages 763-777.
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Stephen A Goutman, Orla Hardiman, Ammar Al-Chalabi, Adriano Chió, Masha G Savelieff, Matthew C Kiernan & Eva L Feldman. (2022) Recent advances in the diagnosis and prognosis of amyotrophic lateral sclerosis. The Lancet Neurology 21:5, pages 480-493.
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Jashelle Caga, Sicong Tu, Thanuja Dharmadasa, Nga Y. Tse, Margaret C. Zoing, William Huynh, Colin Mahoney, Rebekah M. Ahmed & Matthew C. Kiernan. (2021) Apathy is associated with parietal cortical-subcortical dysfunction in ALS. Cortex 145, pages 341-349.
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Emma M. Devenney, Kate McErlean, Nga Yan Tse, Jashelle Caga, Thanuja Dharmadasa, William Huynh, Colin J. Mahoney, Margaret Zoing, Srestha Mazumder, Carol Dobson-Stone, John B. Kwok, Glenda M. Halliday, John R. Hodges, Olivier Piguet, Rebekah M. Ahmed & Matthew C. Kiernan. (2021) Factors That Influence Non-Motor Impairment Across the ALS-FTD Spectrum: Impact of Phenotype, Sex, Age, Onset and Disease Stage. Frontiers in Neurology 12.
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Hóngyi Zhào, Yu Liu, Zhenxi Xia, Hongyang Xie & Yonghua Huang. (2021) Diagnosis and Assessment of Apathy in Elderly Chinese Patients With Cerebral Small Vessel Disease. Frontiers in Psychiatry 12.
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Mana HigashiharaNathan PaveyMehdi van den Bos, Parvathi MenonMatthew C. KiernanSteve Vucic. (2021) Association of Cortical Hyperexcitability and Cognitive Impairment in Patients With Amyotrophic Lateral Sclerosis. Neurology 96:16.
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Dongchao Shen, Bo Cui, Mingsheng Liu, Jing Gao, Caiyan Liu, Xiaoguang Li & Liying Cui. (2020) Strategy for screening cognitive impairment in Chinese patients with amyotrophic lateral sclerosis. Journal of Clinical Neuroscience 81, pages 105-110.
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Masoud Hatefi, Aliakbar Vaisi-Raygani, Milad Borji & Asma Tarjoman. (2019) Investigating the Relationship between Religious Beliefs with Care Burden, Stress, Anxiety, and Depression in Caregivers of Patients with Spinal Cord Injuries. Journal of Religion and Health 59:4, pages 1754-1765.
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Anne Hogden, Camille Paynter & Karen Hutchinson. (2020) How can we improve patient-centered care of motor neuron disease?. Neurodegenerative Disease Management 10:2, pages 91-97.
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Mark B. Bromberg. (2019) What Is in the Literature. Journal of Clinical Neuromuscular Disease 21:2, pages 84-89.
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