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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 20, 2019 - Issue 3-4
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Research Article

Lunasin does not slow ALS progression: results of an open-label, single-center, hybrid-virtual 12-month trial

R.S. BedlackDepartment of Neurology, Duke University, Durham, NC, USA, Correspondence[email protected]
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Paul WicksPatientsLikeMe, Cambridge, MA, USA, ORCID Iconhttp://orcid.org/0000-0002-2293-9284View further author information
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Timothy VaughanPatientsLikeMe, Cambridge, MA, USA, View further author information
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Alicia OpiePatientsLikeMe, Cambridge, MA, USA, View further author information
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Rebecca BlumPatientsLikeMe, Cambridge, MA, USA, View further author information
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Amanda DiosNeuroEpigenetics Laboratory, MassGeneral Institute for Neurodegenerative Disease, Charlestown, MA, USAView further author information
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Ghazaleh Sadri-VakiliNeuroEpigenetics Laboratory, MassGeneral Institute for Neurodegenerative Disease, Charlestown, MA, USAView further author information
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Pages 285-293 | Received 24 Sep 2018, Accepted 27 Nov 2018, Published online: 21 Jan 2019

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James D. Berry, Richard Bedlack, Debra Mathews, Wendy Agnese & Stephen Apple. (2021) Engaging ALS patients and caregivers (the ALS research ambassadors) to help design the REFINE-ALS biomarker study. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:1-2, pages 147-150.
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Michael A. Van Es, Ruben P.A. Van Eijk, Tommy M. Bunte & Leonard H. Van Den Berg. (2020) A placebo-controlled trial to investigate the safety and efficacy of Penicillin G/Hydrocortisone in patients with ALS (PHALS trial). Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:7-8, pages 584-592.
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. (2020) ALSUntangled 56: “ten red flags”-things to be wary of in alternative or off-label products. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:7-8, pages 642-647.
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Richard Bedlack, Allison Pogemiller, Jeremy Shefner, Merit Cudkowicz & Terri Heiman-Patterson. (2020) ALS clinical research learning institutes (ALS-CRLI): empowering people with ALS to be research ambassadors. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:3-4, pages 216-221.
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Christina N. Fournier. (2022) Considerations for Amyotrophic Lateral Sclerosis (ALS) Clinical Trial Design. Neurotherapeutics 19:4, pages 1180-1192.
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Christopher J. McDermott. (2019) Clinical trials in amyotrophic lateral sclerosis. Current Opinion in Neurology 32:5, pages 758-763.
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