Citations (15)
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Eleonora Volpato, Paolo Banfi, Valentina Poletti & Francesco Pagnini. (2023) Living beyond loss: a qualitative investigation of caregivers’ experiences after the death of their relatives with amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 0:0, pages 1-13.
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Christopher Poppe, Luzia M. Iseli, Martine Verwey & Tenzin Wangmo. (2022) Bereavement and Support Experiences of Informal Caregivers of Persons with Amyotrophic Lateral Sclerosis: A Qualitative Study. Journal of Social Work in End-of-Life & Palliative Care 18:1, pages 63-79.
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Articles from other publishers (13)
Kun Yang, Hongxia Xue, Li Li & Shan Tang. (2023) Caregivers of ALS Patients: Their Experiences and Needs. Neuroethics 17:1.
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Heather M. Young, Tina R. Kilaberia, Robin Whitney, Benjamin M. Link, Janice F. Bell, Orly Tonkikh, Jessica Famula & Björn Oskarsson. (2023)
Needs of persons living with
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at home and their family caregivers: A scoping review
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Paul Cafarella, Tanja Effing & Anna Chur-Hansen. (2022) Interventions targeting psychological well-being for motor neuron disease carers: A systematic review. Palliative and Supportive Care 21:2, pages 320-336.
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Éilís Conroy, Polly Kennedy, Mark Heverin, Orla Hardiman & Miriam Galvin. (2023) Care, burden and self-described positive aspects of caring in amyotrophic lateral sclerosis: an exploratory, longitudinal, mixed-methods study. BMJ Open 13:1, pages e064254.
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Lindsay Prizer & Peter Hudson. 2023. Neuropalliative Care, Part II. Neuropalliative Care, Part II
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Louise Häger Tibell, Anette Alvariza, Ulrika Kreicbergs, Viktoria Wallin, Gunnar Steineck & Maja Holm. (2022) Web-based support for spouses of patients with life-threatening illness cared for in specialized home care – A feasibility study. Palliative and Supportive Care, pages 1-9.
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Emily E. Joyce, Juan González-Hijón, Charilaos Chourpiliadis, Anikó Lovik, Christina Seitz, Can Cui, Jiangwei Sun, Yihan Hu, Lu Pan & John Andersson. (2022) Lou Gehrig’s Disease: Amyotrophic Lateral Sclerosis. Frontiers for Young Minds 10.
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Christopher Poppe, Martine Verwey & Tenzin Wangmo. (2021) “Walking a tightrope”: A grounded theory approach to informal caregiving for amyotrophic lateral sclerosis. Health & Social Care in the Community 30:5.
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Camille Paynter, Susan Mathers, Heidi Gregory, Adam P. Vogel & Madeline Cruice. (2022) Using the Concept of Health Literacy to Understand How People Living with Motor Neurone Disease and Carers Engage in Healthcare: A Longitudinal Qualitative Study. Healthcare 10:8, pages 1371.
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David John-Tom Marco, Kristina Thomas, Serra Ivynian, Helen Wilding, Deborah Parker, Jennifer Tieman & Peter Hudson. (2022) Family carer needs in advanced disease: systematic review of reviews. BMJ Supportive & Palliative Care 12:2, pages 132-141.
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Katharina Linse, Elisa Aust, René Günther & Andreas Hermann. (2022) Caregivers’ View of Socio-Medical Care in the Terminal Phase of Amyotrophic Lateral Sclerosis—How Can We Improve Holistic Care in ALS?. Journal of Clinical Medicine 11:1, pages 254.
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Christopher Poppe, Kathi Schweikert, Tanja Krones & Tenzin Wangmo. (2022) Supportive needs of informal caregivers of people with amyotrophic lateral sclerosis in Switzerland: a qualitative study. Palliative Care and Social Practice 16, pages 263235242210777.
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D. Parker, P. Hudson, J. Tieman, K. Thomas, D. Saward & S. Ivynian. (2021) Evaluation of an online toolkit for carers of people with a life-limiting illness at the end-of-life: health professionals’ perspectives. Australian Journal of Primary Health 27:6, pages 473-478.
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