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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
Volume 25, 2024 - Issue 3-4
Research Article
What, how and when do families communicate about ALS? A qualitative exploration of parents’ and children’s perceptions
Marion Sommers-Spijkerman1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, andCorrespondence[email protected]
https://orcid.org/0000-0003-0648-8708View further author information
https://orcid.org/0000-0003-0648-8708View further author information, , Melinda S. Kavanaugh3 Helen Bader School of Social Welfare, University of Wisconsin-Milwaukee, Milwaukee, WI, USAhttps://orcid.org/0000-0001-7858-9909View further author information
https://orcid.org/0000-0001-7858-9909View further author information, Marjolijn Ketelaar1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, andhttps://orcid.org/0000-0002-8324-518XView further author information
https://orcid.org/0000-0002-8324-518XView further author information, Johanna M. A. Visser-Meily1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, andhttps://orcid.org/0000-0002-5955-8012View further author information
https://orcid.org/0000-0002-5955-8012View further author information & Anita Beelen1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, andhttps://orcid.org/0000-0002-1269-0710View further author information
https://orcid.org/0000-0002-1269-0710View further author information