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AJOB Empirical Bioethics Volume 7, 2016 - Issue 4
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Articles

Adolescent engagement during assent for exome sequencing

Allison Werner-LinSchool of Social Policy & Practice, University of PennsylvaniaCorrespondence[email protected]
,
Ashley TomlinsonPerelman School of Medicine, University of Pennsylvania
,
Victoria MillerThe Children's Hospital of Philadelphia
&
Barbara A. BernhardtPerelman School of Medicine, University of Pennsylvania
Pages 275-284 | Published online: 01 Jul 2016

Citations (12)

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Rowan Forbes Shepherd, Allison Werner-Lin, Louise A. Keogh, Martin B. Delatycki & Laura E. Forrest. (2021) “I need to know if I’m going to die young”: Adolescent and young adult experiences of genetic testing for Li–Fraumeni syndrome. Journal of Psychosocial Oncology 39:1, pages 54-73.
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Articles from other publishers (11)

Amanda M. Gutierrez, Jill O. RobinsonRobin Raesz-MartinezIsabel CanfieldMary A. MajumderSarah ScollonLauren R. DesrosiersRebecca L. Hsu, Wendy Allen-RhoadesD. Williams ParsonsSharon E. PlonAmy L. McGuireJanet Malek. (2023) Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research. Journal of Adolescent and Young Adult Oncology 12:5, pages 773-781.
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Anne E. Berset, Melanie F. Myers, Cynthia A. Prows & William B. Brinkman. (2023) Adolescent Decision-Making Involvement in the Receipt of Genomic Testing Results. The Journal of Pediatrics 259, pages 113492.
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T. J. Kasperbauer & Colin Halverson. (2021) Adolescent Assent and Reconsent for Biobanking: Recent Developments and Emerging Ethical Issues. Frontiers in Medicine 8.
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Melanie F. Myers, Lisa J. Martin & Cynthia A. Prows. (2020) Adolescents' and Parents' Genomic Testing Decisions: Associations With Age, Race, and Sex. Journal of Adolescent Health 66:3, pages 288-295.
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Rachel H. Gore, John F. P. Bridges, Julie S. Cohen & Barbara B. Biesecker. (2019) Challenges to informed consent for exome sequencing: A best–worst scaling experiment. Journal of Genetic Counseling 28:6, pages 1189-1197.
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Allison Werner‐Lin, Maya H. Doyle, Shana Merrill & Sarah Gehlert. 2019. Handbook of Health Social Work. Handbook of Health Social Work 499 534 .
Josie Pervola, Melanie F. Myers, Michelle L. McGowan & Cynthia A. Prows. (2018) Giving adolescents a voice: the types of genetic information adolescents choose to learn and why. Genetics in Medicine 21:4, pages 965-971.
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Barbara A. Bernhardt. 2019. Clinical Genome Sequencing. Clinical Genome Sequencing 125 142 .
Rowan Forbes ShepherdAlexandra LewisLouise A. KeoghAllison Werner-LinMartin B. DelatyckiLaura E. Forrest. (2018) A Systematic Review of How Young People Live with Inherited Disease: What Can We Learn for Li-Fraumeni Syndrome?. Journal of Adolescent and Young Adult Oncology 7:5, pages 525-545.
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Allison Werner‐Lin, Lori Zaspel, Mae Carlson, Rebecca Mueller, Sarah A. Walser, Ria Desai & Barbara A. Bernhardt. (2018) Gratitude, protective buffering, and cognitive dissonance: How families respond to pediatric whole exome sequencing in the absence of actionable results. American Journal of Medical Genetics Part A 176:3, pages 578-588.
Crossref
Sarah A Walser, Allison Werner-Lin, Rebecca Mueller, Victoria A Miller, Sawona Biswas & Barbara A Bernhardt. (2017) How do providers discuss the results of pediatric exome sequencing with families?. Personalized Medicine 14:5, pages 409-422.
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