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Original Article

Cryopyrin-associated periodic syndromes: development of a patient-reported outcomes instrument to assess the pattern and severity of clinical disease activity

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Pages 2531-2543 | Accepted 25 Jun 2008, Published online: 28 Jul 2008

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Read on this site (2)

Emmanuelle C. Landmann & Ulrich A. Walker. (2017) Pharmacological treatment options for cryopyrin-associated periodic syndromes. Expert Review of Clinical Pharmacology 10:8, pages 855-864.
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Hal M Hoffman. (2009) Rilonacept for the treatment of cryopyrin-associated periodic syndromes (CAPS). Expert Opinion on Biological Therapy 9:4, pages 519-531.
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Articles from other publishers (16)

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Micol Romano, Z Serap Arici, David Piskin, Sara Alehashemi, Daniel Aletaha, Karyl S Barron, Susanne Benseler, Roberta Berard, Lori Broderick, Fatma Dedeoglu, Michelle Diebold, Karen L Durrant, Polly Ferguson, Dirk Foell, Jonathan Hausmann, Olcay Y Jones, Daniel L Kastner, Helen J Lachmann, Ronald M Laxer, Dorelia Rivera, Nicolino Ruperto, Anna Simon, Marinka Twilt, Joost Frenkel, Hal Hoffman, Adriana A de Jesus, Jasmin Beate Kuemmerle-Deschner, Seza Ozen, Marco Gattorno, Raphaela Goldbach-Mansky & Erkan Demirkaya. (2022) The 2021 EULAR/American College of Rheumatology points to consider for diagnosis, management and monitoring of the interleukin-1 mediated autoinflammatory diseases: cryopyrin-associated periodic syndromes, tumour necrosis factor receptor-associated periodic syndrome, mevalonate kinase deficiency, and deficiency of the interleukin-1 receptor antagonist. Annals of the Rheumatic Diseases 81:7, pages 907-921.
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Micol Romano, Z. Serap Arici, David Piskin, Sara Alehashemi, Daniel Aletaha, Karyl Barron, Susanne Benseler, Roberta A. Berard, Lori Broderick, Fatma Dedeoglu, Michelle Diebold, Karen Durrant, Polly Ferguson, Dirk Foell, Jonathan S. Hausmann, Olcay Y. Jones, Daniel Kastner, Helen J. Lachmann, Ronald M. Laxer, Dorelia Rivera, Nicolino Ruperto, Anna Simon, Marinka Twilt, Joost Frenkel, Hal M. Hoffman, Adriana A. de Jesus, Jasmin B. Kuemmerle‐Deschner, Seza Ozen, Marco Gattorno, Raphaela Goldbach‐Mansky & Erkan Demirkaya. (2022) The 2021 EULAR/American College of Rheumatology Points to Consider for Diagnosis, Management and Monitoring of the Interleukin‐1 Mediated Autoinflammatory Diseases: Cryopyrin‐Associated Periodic Syndromes, Tumour Necrosis Factor Receptor‐Associated Periodic Syndrome, Mevalonate Kinase Deficiency, and Deficiency of the Interleukin‐1 Receptor Antagonist. Arthritis & Rheumatology 74:7, pages 1102-1121.
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Cong-Qiu Chu. (2022) Schnitzler syndrome and Schnitzler-like syndromes. Chinese Medical Journal 135:10, pages 1190-1202.
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Jörg Scheffel, Niklas A. Mahnke, Zonne L. M. Hofman, Steven de Maat, Jim Wu, Hanna Bonnekoh, Reuben J. Pengelly, Sarah Ennis, John W. Holloway, Marieluise Kirchner, Philipp Mertins, Martin K. Church, Marcus Maurer, Coen Maas & Karoline Krause. (2020) Cold-induced urticarial autoinflammatory syndrome related to factor XII activation. Nature Communications 11:1.
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Alexander P. Headley, Frank Cordingley, Phillip N. Hawkins & D. Sean Riminton. (2013) Muckle–Wells Cryopyrinopathy: Complex Phenotyping and Response to Therapy in a New Multiplex Kindred. Inflammation 37:2, pages 396-401.
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Karoline Krause, Aos Mahamed, Karsten Weller, Martin Metz, Torsten Zuberbier & Marcus Maurer. (2013) Efficacy and safety of canakinumab in urticarial vasculitis: An open-label study. Journal of Allergy and Clinical Immunology 132:3, pages 751-754.e5.
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Hal M. Hoffman, Martin L. Throne, Niran J. Amar, Robert C. Cartwright, Alan J. Kivitz, Yuhwen Soo & Steven P. Weinstein. (2012) Long-Term Efficacy and Safety Profile of Rilonacept in the Treatment of Cryopryin-Associated Periodic Syndromes: Results of a 72-Week Open-Label Extension Study. Clinical Therapeutics 34:10, pages 2091-2103.
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K. Krause, K. Weller, R. Stefaniak, H. Wittkowski, S. Altrichter, F. Siebenhaar, T. Zuberbier & M. Maurer. (2012) Efficacy and safety of the interleukin‐1 antagonist rilonacept in S chnitzler syndrome: an open‐label study . Allergy 67:7, pages 943-950.
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L. Cantarini, O.M. Lucherini, B. Frediani, M.G. Brizi, B. Bartolomei, R. Cimaz, M. Galeazzi & D. Rigante. (2011) Bridging the Gap between the Clinician and the Patient with Cryopyrin-Associated Periodic Syndromes. International Journal of Immunopathology and Pharmacology 24:4, pages 827-836.
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Justin R. Yu & Kieron S. Leslie. (2010) Cryopyrin-Associated Periodic Syndrome: An Update on Diagnosis and Treatment Response. Current Allergy and Asthma Reports 11:1, pages 12-20.
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Neil Stahl, Allen Radin & Scott Mellis. (2009) Rilonacept-CAPS and Beyond. Annals of the New York Academy of Sciences 1182:1, pages 124-134.
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Hal M. Hoffman. (2009) Therapy of autoinflammatory syndromes. Journal of Allergy and Clinical Immunology 124:6, pages 1129-1138.
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B. Manger, M. Gaubitz & H. Michels. (2009) Empfehlungen zur Therapie mit Interleukin-1β-blockierenden WirkstoffenRecommendations on therapy using interleukin-1β-blocking agents. Zeitschrift für Rheumatologie 68:9, pages 766-771.
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