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Jennifer B. McCormick, Margaret Hopkins, Erik B. Lehman & Michael J. Green. (2022) Mining the Data: Exploring Rural Patients’ Attitudes about the Use of Their Personal Information in Research. AJOB Empirical Bioethics 13:2, pages 89-106.
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Corinna C.A. Clark & Felicity K. Boardman. (2022) Expanding the notion of “benefit”: comparing public, parent, and professional attitudes towards whole genome sequencing in newborns. New Genetics and Society 41:2, pages 96-115.
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Janneke M.L. Kuiper, Pascal Borry, Danya F. Vears & Ine Van Hoyweghen. (2021) The social shaping of a diagnosis in Next Generation Sequencing. New Genetics and Society 40:4, pages 425-448.
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Articles from other publishers (65)
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Krishani Jayasinghe, W. A. S. Chamika, Kaushalya Jayaweera, Kalpani Abhayasinghe, Lasith Dissanayake, Athula Sumathipala & Jonathan Ives. (2023) All you Need it Trust? Public Perspectives on Consenting to Participate in Genomic Research in the Sri Lankan District of Colombo. Asian Bioethics Review.
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Roberta Biasiotto, Jennifer Viberg Johansson, Melaku Birhanu Alemu, Virginia Romano, Heidi Beate Bentzen, Jane Kaye, Mirko Ancillotti, Johanna Maria Catharina Blom, Gauthier Chassang, Dara Hallinan, Guðbjörg Andrea Jónsdóttir, Aníbal Monasterio Astobiza, Emmanuelle Rial-Sebbag, David Rodríguez-Arias, Nisha Shah, Lea Skovgaard, Ciara Staunton, Katharina Tschigg, Jorien Veldwijk & Deborah Mascalzoni. (2023) Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European Countries. Journal of Medical Internet Research 25, pages e47066.
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Urs Alexander Fichtner, Lukas Maximilian Horstmeier, Boris Alexander Brühmann, Manuel Watter, Harald Binder & Jochen Knaus. (2022) The role of data sharing in survey dropout: a study among scientists as respondents. Journal of Documentation 79:4, pages 864-879.
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Lauren Maxwell, Jackeline Bravo Chamorro, Luz Marina Leegstra, Harold Suazo Laguna & María Consuelo Miranda Montoya. (2023) "How about me giving blood for the COVID vaccine and not being able to get vaccinated?" A cognitive interview study on understanding of and agreement with broad consent for future use of data and samples in Colombia and Nicaragua. PLOS Global Public Health 3:5, pages e0001253.
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Vanessa Warren, Christine Critchley, Rebekah McWhirter, Jarrod Walshe & Dianne Nicol. (2023) Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public. BMC Medical Genomics 15:S3.
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