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Original Research

Economic burden of common variable immunodeficiency: annual cost of disease

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Zahra Adnani Sadati, Hossein Motedayyen, Roya Sherkat, Vajihe Ostadi & Nahid Eskandari. (2019) Comparison of the Percentage of Regulatory T cells and their p-STAT5 Expression in Allergic and Non-Allergic Common Variable Immunodeficiency Patients. Immunological Investigations 48:1, pages 52-63.
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Bahar Ataeinia, Ali Montazeri, Marzieh Tavakol, Gholamreza Azizi, Fatemeh Kiaee, Naiimeh Tavakolinia, Babak Negahdari, Javad Mohammadi, Hassan Abolhassani, Nima Rezaei & Asghar Aghamohammadi. (2017) Measurement of Health-Related Quality of Life in Primary Antibody-Deficient Patients. Immunological Investigations 46:4, pages 329-340.
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Gholamreza Azizi, Hassan Abolhassani, Mohammad Hosein Asgardoon, Tina Alinia, Reza Yazdani, Javad Mohammadi, Nima Rezaei, Hans D. Ochs & Asghar Aghamohammadi. (2017) Autoimmunity in common variable immunodeficiency: epidemiology, pathophysiology and management. Expert Review of Clinical Immunology 13:2, pages 101-115.
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Zahra Aryan, Asghar Aghamohammadi & Nima Rezaei. (2016) Toward the stratification and personalization of common variable immunodeficiency treatment. Expert Opinion on Orphan Drugs 4:8, pages 823-830.
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Frederik V. Ilkjær, Isik S. Johansen, Raquel Martin-Iguacel, Lena Westh, Terese L. Katzenstein, Ann-Brit E. Hansen, Thyge L. Nielsen, Carsten S. Larsen & Line D. Rasmussen. (2023) Evaluating Drug Prescription Patterns in Undiagnosed Common Variable Immunodeficiency Patients. Journal of Clinical Immunology 43:8, pages 2181-2191.
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Marianne A. Messelink, Paco M. J. Welsing, Giovanna Devercelli, Jan Willem N. Marsden & Helen L. Leavis. (2023) Clinical Validation of a Primary Antibody Deficiency Screening Algorithm for Primary Care. Journal of Clinical Immunology 43:8, pages 2022-2032.
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Stefania Nicola, Francesco Cinetto, Stefano Della Mura, Luca Lo Sardo, Elena Saracco, Ilaria Vitali, Riccardo Scarpa, Helena Buso, Vera Bonato, Claudia Discardi, Giovanni Rolla, Carla Felice, Marcello Rattazzi & Luisa Brussino. (2023) The Importance of Endoscopy with Biopsy: Real-World Evidence of Gastrointestinal Involvement in Primary Immunodeficiency in Two Main Northern Italian Centres. Biomedicines 11:1, pages 170.
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Moaath K Mustafa Ali, Abdallah Y Naser, Amal AbuAlhommos, Tamara Al-Daghastani, Hamzeh Alrawashdeh, Saja Mustafa Ali, Hassan Alwafi, Mohammed Mansour Alqurashi, Abdulaziz H Basha Ahmed & Hussein Albarqi. (2022) Hospital Admissions Secondary to Diseases of the Blood, Blood-Forming Organs, and Immune System in England and Wales. Cureus.
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John T. Anderson, Juthaporn Cowan, Antonio Condino-Neto, Donald Levy & Subhransu Prusty. (2022) Health-related quality of life in primary immunodeficiencies: Impact of delayed diagnosis and treatment burden. Clinical Immunology 236, pages 108931.
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Bharat Kumar, Samuel Zetumer, Melissa Swee, Ellen L Keyser Endelman, Manish Suneja & Benjamin Davis. (2022) Reducing Delays in Diagnosing Primary Immunodeficiency Through the Development and Implementation of a Clinical Decision Support Tool: Protocol for a Quality Improvement Project. JMIR Research Protocols 11:1, pages e32635.
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Lidia García-Pérez, Renata Linertová, Cristina Valcárcel-Nazco, Manuel Posada, Inigo Gorostiza & Pedro Serrano-Aguilar. (2021) Cost-of-illness studies in rare diseases: a scoping review. Orphanet Journal of Rare Diseases 16:1.
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Emanuele Vivarelli, Andrea Matucci, Susanna Bormioli, Paola Parronchi, Francesco Liotta, Lorenzo Cosmi, Fabio Almerigogna & Alessandra Vultaggio. (2021) Effectiveness of low-dose intravenous immunoglobulin therapy in minor primary antibody deficiencies: A 2-year real-life experience. Clinical and Experimental Immunology 205:3, pages 346-353.
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Nicholas L. Rider, Gina Cahill, Tina Motazedi, Lei Wei, Ashok Kurian, Lenora M. Noroski, Filiz O. Seeborg, Ivan K. Chinn & Kirk Roberts. (2021) PI Prob: A risk prediction and clinical guidance system for evaluating patients with recurrent infections. PLOS ONE 16:2, pages e0237285.
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Grant Pickett, Tina Motazedi, Carleigh Kutac, Gina Cahill, Charlotte Cunnigham-Rundles, Ramsay L. Fuleihan, Kathleen E. Sullivan & Nicholas L. Rider. (2020) Infection Phenotypes Among Patients with Primary Antibody Deficiency Mined from a US Patient Registry. Journal of Clinical Immunology 41:2, pages 374-381.
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Aarti Pandya, Emily Burgen, G. John Chen, Jessica Hobson, Mary Nguyen, Arman Pirzad & Sadia Hayat Khan. (2021) Comparison of management options for specific antibody deficiency. Allergy and Asthma Proceedings 42:1, pages 87-92.
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Lisa M. Meckley, Yanyu Wu, Diane Ito, Todd Berner, Barbara McCoy & Leman Yel. (2020) Patient experience with subcutaneous immunoglobulin 20%, Ig20Gly, for primary immunodeficiency diseases: a prespecified post hoc analysis of combined data from 2 pivotal trials. BMC Immunology 21:1.
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Ewa Więsik-Szewczyk & Karina Jahnz-Różyk. (2020) From infections to autoimmunity: Diagnostic challenges in common variable immunodeficiency. World Journal of Clinical Cases 8:18, pages 3942-3955.
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Marcin Ziętkiewicz, Ewa Więsik-Szewczyk, Aleksandra Matyja-Bednarczyk, Katarzyna Napiórkowska-Baran, Zbigniew Zdrojewski & Karina Jahnz-Różyk. (2020) Shorter Diagnostic Delay in Polish Adult Patients With Common Variable Immunodeficiency and Symptom Onset After 1999. Frontiers in Immunology 11.
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Saida Ridao-Manonellas, Anna Fábregas-Bofill, Gloria Núñez-Rueda, Míriam González-Amores, Marina García-Prat, Laura López-Seguer, Jacques G. Rivière, Andrea Martín-Nalda, Natalia Mendoza-Palomar, Susana Melendo-Pérez & Pere Soler-Palacín. (2020) Health-Related Quality of Life and Multidimensional Fatigue Scale in Children with Primary Immunodeficiencies. Journal of Clinical Immunology 40:4, pages 602-609.
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Kim Elsink, Joris M. van Montfrans, Mariëlle E. van Gijn, Maartje Blom, P. Martin van Hagen, T.W. Kuijpers & Geert W.J. Frederix. (2020) Cost and impact of early diagnosis in primary immunodeficiency disease: A literature review. Clinical Immunology 213, pages 108359.
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Jed J. Lye, Anthony Williams & Diana Baralle. (2019) Exploring the RNA Gap for Improving Diagnostic Yield in Primary Immunodeficiencies. Frontiers in Genetics 10.
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Susan Bauer, Michael Fadeyi & Sheryl Chan. (2019) A Study of Tolerability, Satisfaction, and Cost Reduction Using a 10% Immunoglobulin Product at Higher Administration Rates. Journal of Infusion Nursing 42:6, pages 297-302.
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Frederik V. Ilkjær, Line D. Rasmussen, Raquel Martin-Iguacel, Lena Westh, Terese L. Katzenstein, Ann-Brit E. Hansen, Thyge L. Nielsen, Carsten S. Larsen & Isik S. Johansen. (2019) How to Identify Common Variable Immunodeficiency Patients Earlier: General Practice Patterns. Journal of Clinical Immunology 39:7, pages 641-652.
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Ana Luisa Abrahão Dias, Raquel Gomes da Silva, Fernanda Gonçalves Pereira Cunha, André Moreno Morcillo, Irene Lorand‐Metze, Maria Marluce dos Santos Vilela & Adriana Gut Lopes Riccetto. (2019) Managing costs in primary immunodeficiency: minimal immunophenotyping and three national references. APMIS 127:4, pages 228-235.
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Enver BOZDEMİR & Meltem TAŞLI. (2018) Hastalık Maliyet Analizinin Bibliyometrik ve Doküman Açısından İncelemesiInvestigation Terms of Biliometric and Document of Disease Cost Analysis. Konuralp Tıp Dergisi 10:3, pages 408-419.
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Jocelyn R. Farmer, Mei-Sing Ong, Sara Barmettler, Lael M. Yonker, Ramsay Fuleihan, Kathleen E. Sullivan, Charlotte Cunningham-Rundles & Jolan E. Walter. (2018) Common Variable Immunodeficiency Non-Infectious Disease Endotypes Redefined Using Unbiased Network Clustering in Large Electronic Datasets. Frontiers in Immunology 8.
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Stella Hartono, Megan S. Motosue, Shakila Khan, Vilmarie Rodriguez, Vivek N. Iyer, Rohit Divekar & Avni Y. Joshi. (2017) Predictors of granulomatous lymphocytic interstitial lung disease in common variable immunodeficiency. Annals of Allergy, Asthma & Immunology 118:5, pages 614-620.
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