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Theme: Demyelinating Diseases - Review

Participatory medicine and patient empowerment towards personalized healthcare in multiple sclerosis

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Pages 343-352 | Published online: 09 Jan 2014

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Read on this site (5)

Efrat Neter, Lea Glass-Marmor, Loren Haiien & Ariel Miller. (2021) Concordance Between Persons with Multiple Sclerosis and Treating Physician on Medication Effects and Health Status. Patient Preference and Adherence 15, pages 939-943.
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Michelle M Holmes, Sabina Stanescu & Felicity L Bishop. (2019) The Use of Measurement Systems to Support Patient Self-Management of Long-Term Conditions: An Overview of Opportunities and Challenges. Patient Related Outcome Measures 10, pages 385-394.
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Martina Borghi, Silvia Bonino, Federica Graziano & Emanuela Calandri. (2018) Exploring change in a group-based psychological intervention for multiple sclerosis patients. Disability and Rehabilitation 40:14, pages 1671-1678.
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Alessandra Lugaresi, Maria di Ioia, Daniela Travaglini, Erika Pietrolongo, Eugenio Pucci & Marco Onofrj. (2013) Risk-benefit considerations in the treatment of relapsing-remitting multiple sclerosis. Neuropsychiatric Disease and Treatment 9, pages 893-914.
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C Heesen, S Köpke, J Kasper, J Poettgen, A Tallner, DC Mohr & SM Gold. (2012) Behavioral interventions in multiple sclerosis: a biopsychosocial perspective. Expert Review of Neurotherapeutics 12:9, pages 1089-1100.
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Articles from other publishers (31)

Dina Babushkina. (2022) Are we justified attributing a mistake in diagnosis to an AI diagnostic system?. AI and Ethics 3:2, pages 567-584.
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Barnabas Bessing, Cynthia A. Honan, Ingrid van der Mei, Bruce V. Taylor & Suzi B. Claflin. (2022) Measurement Properties of the Health Literacy Questionnaire in the Understanding Multiple Sclerosis Massive Open Online Course Cohort: A Rasch Analysis. HLRP: Health Literacy Research and Practice 6:3.
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Sofia Straudi, Gianluca De Marco, Carlotta Martinuzzi, Andrea Baroni, Nicola Lamberti, Laura Brondi, Marco Da Roit, Laura Di Marco Pizzongolo, Nino Basaglia & Fabio Manfredini. (2022) Combining a supervised and home-based task-oriented circuit training improves walking endurance in patients with multiple sclerosis. The MS_TOCT randomized-controlled trial. Multiple Sclerosis and Related Disorders 60, pages 103721.
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Stijn Denissen, Oliver Y. Chén, Johan De Mey, Maarten De Vos, Jeroen Van Schependom, Diana Maria Sima & Guy Nagels. (2021) Towards Multimodal Machine Learning Prediction of Individual Cognitive Evolution in Multiple Sclerosis. Journal of Personalized Medicine 11:12, pages 1349.
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Efrat Neter, Lea Glass-Marmor, Anat Wolkowitz, Idit Lavi & Ariel Miller. (2021) Beliefs about medication as predictors of medication adherence in a prospective cohort study among persons with multiple sclerosis. BMC Neurology 21:1.
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Michela Franchini, Sabrina Molinaro, Michelangelo Caiolfa, Massimiliano Salvatori & Stefania Pieroni. (2021) Facing the National Recovery and Resilience Plan: Sources of Data, Indicators, and Participatory Strategies in Healthcare and Social Fields. International Journal of Environmental Research and Public Health 18:19, pages 10457.
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Valeria PRADA, Andrea TACCHINO, Jessica PODDA, Ludovico PEDULLÀ, Giovanna KONRAD, Mario A. BATTAGLIA, Giampaolo BRICHETTO & Margherita MONTI BRAGADIN. (2021) MAM-36 and ABILHAND as outcome measures of multiple sclerosis hand disability: an observational study. European Journal of Physical and Rehabilitation Medicine 57:4.
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Nick Bansback*, Judy A Chiu*, Rebecca Metcalfe, Emmanuelle Lapointe, Alice Schabas, Marilyn Lenzen, Anthony Traboulsee, Larry D Lynd* & Robert Carruthers. (2021) Preliminary testing of a patient decision aid for patients with relapsing-remitting multiple sclerosis. Multiple Sclerosis Journal - Experimental, Translational and Clinical 7:3, pages 205521732110299.
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Daniel Golan, Smadar Sagiv, Lea Glass-Marmor & Ariel Miller. (2021) Mobile-phone-based e-diary derived patient reported outcomes: Association with clinical disease activity, psychological status and quality of life of patients with multiple sclerosis. PLOS ONE 16:5, pages e0250647.
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Michela Franchini, Stefania Pieroni, Nicola Martini, Andrea Ripoli, Dante Chiappino, Francesca Denoth, Michael Norman Liebman, Sabrina Molinaro & Daniele Della Latta. (2020) Shifting the Paradigm: The Dress-COV Telegram Bot as a Tool for Participatory Medicine. International Journal of Environmental Research and Public Health 17:23, pages 8786.
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Piatnytsia-Horpynchenko N.K.. (2020) Personalized medicine as a basis for occupational diseases prevention. Environment & Health:2 (95), pages 64-70.
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Rachel L. Harrington, Maya L. Hanna, Elisabeth M. Oehrlein, Rob Camp, Russell Wheeler, Clarissa Cooblall, Theresa Tesoro, Amie M. Scott, Rainald von Gizycki, Francis Nguyen, Asha Hareendran, Donald L. Patrick & Eleanor M. Perfetto. (2020) Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient-Centered Special Interest Group. Value in Health 23:6, pages 677-688.
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Efrat Neter, Anat Wolkowitz, Lea Glass-Marmor, Idit Lavi, Sharonne Ratzabi, Izabella Leibkovitz & Ariel Miller. (2020) Multiple modality approach to assess adherence to medications across time in Multiple Sclerosis. Multiple Sclerosis and Related Disorders 40, pages 101951.
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Peter Joseph Jongen, Gezien ter Veen, Wim Lemmens, Rogier Donders, Esther van Noort & Esther Zeinstra. (2020) The Interactive Web-Based Program MSmonitor for Self-Management and Multidisciplinary Care in Persons With Multiple Sclerosis: Quasi-Experimental Study of Short-Term Effects on Patient Empowerment. Journal of Medical Internet Research 22:3, pages e14297.
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Giampaolo Brichetto, Margherita Monti Bragadin, Samuele Fiorini, Mario Alberto Battaglia, Giovanna Konrad, Michela Ponzio, Ludovico Pedullà, Alessandro Verri, Annalisa Barla & Andrea Tacchino. (2019) The hidden information in patient-reported outcomes and clinician-assessed outcomes: multiple sclerosis as a proof of concept of a machine learning approach. Neurological Sciences 41:2, pages 459-462.
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Izabella Lejbkowicz. 2020. Impacts of Information Technology on Patient Care and Empowerment. Impacts of Information Technology on Patient Care and Empowerment 19 33 .
Nick Bansback, Judy A. Chiu, Robert Carruthers, Rebecca Metcalfe, Emmanuelle Lapointe, Alice Schabas, Marilyn Lenzen, Larry D. Lynd & Anthony Traboulsee. (2019) Development and usability testing of a patient decision aid for newly diagnosed relapsing multiple sclerosis patients. BMC Neurology 19:1.
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Kathleen T. Hickey, Suzanne Bakken, Mary W. Byrne, Donald (Chip) E. Bailey, George Demiris, Sharron L. Docherty, Susan G. Dorsey, Barbara J. Guthrie, Margaret M. Heitkemper, Cynthia S. Jacelon, Teresa J. Kelechi, Shirley M. Moore, Nancy S. Redeker, Cynthia L. Renn, Barbara Resnick, Angela Starkweather, Hilaire Thompson, Teresa M. Ward, Donna Jo McCloskey, Joan K. Austin & Patricia A. Grady. (2019) Precision health: Advancing symptom and self-management science. Nursing Outlook 67:4, pages 462-475.
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Sandra L. Neate, Keryn L. Taylor, George A. Jelinek, Alysha M. De Livera, Chelsea R. Brown & Tracey J. Weiland. (2019) Taking active steps: Changes made by partners of people with multiple sclerosis who undertake lifestyle modification. PLOS ONE 14:2, pages e0212422.
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L. Lavorgna, M. De Stefano, M. Sparaco, M. Moccia, G. Abbadessa, P. Montella, D. Buonanno, S. Esposito, M. Clerico, C. Cenci, F. Trojsi, R. Lanzillo, L. Rosa, V. Brescia Morra, D. Ippolito, G. Maniscalco, A. Bisecco, G. Tedeschi & S. Bonavita. (2018) Fake news, influencers and health-related professional participation on the Web: A pilot study on a social-network of people with Multiple Sclerosis. Multiple Sclerosis and Related Disorders 25, pages 175-178.
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Alham Al-Sharman, Hanan Khalil, Mohammad Nazzal, Nihaya Al-Sheyab, Alia Alghwiri, Khalid El-Salem & Mais AlDughmi. (2018) Living with multiple sclerosis: A Jordanian perspective. Physiotherapy Research International 23:2, pages e1709.
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Mohammad Sahebalzamani, Hojjatollah Farahani, Mojgan Tabatabaee Jamarani, Seyedeh Tahereh Faezi, Kamran Moradi & Pedram Paragomi. (2017) Effects of a Continuous Care Model on Patients’ Knowledge and Health-Related Quality of Life in Systemic Lupus Erythematosus. Rehabilitation Nursing 42:6, pages E9-E18.
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Yalan Chen, Lan Yang, Hai Hu, Jiajia Chen & Bairong Shen. 2017. Healthcare and Big Data Management. Healthcare and Big Data Management 1 16 .
Daniel Golan, Elsebeth Staun-Ram & Ariel Miller. (2016) Shifting paradigms in multiple sclerosis. Current Opinion in Neurology 29:3, pages 354-361.
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A. Muñoz San José, C. Oreja-Guevara, S. Cebolla Lorenzo, L. Carrillo Notario, B. Rodríguez Vega & C. Bayón Pérez. (2016) Psychotherapeutic and psychosocial interventions for managing stress in multiple sclerosis: The contribution of mindfulness-based interventions. Neurología (English Edition) 31:2, pages 113-120.
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A. Muñoz San José, C. Oreja-Guevara, S. Cebolla Lorenzo, L. Carrillo Notario, B. Rodríguez Vega & C. Bayón Pérez. (2016) Intervenciones psicoterapéuticas y psicosociales para el manejo del estrés en esclerosis múltiple: aportación de intervenciones basadas en mindfulness. Neurología 31:2, pages 113-120.
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Georgy Kopanitsa. (2015) Evaluation Study for an ISO 13606 Archetype Based Medical Data Visualization Method. Journal of Medical Systems 39:8.
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Georgy Kopanitsa, Hasan Veseli & Vladimir Yampolsky. (2015) Development, implementation and evaluation of an information model for archetype based user responsive medical data visualization. Journal of Biomedical Informatics 55, pages 196-205.
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W. Kuchinke. (2013) Ethical concerns caused by integrative patient empowerment solutions for personalized medicine. Ethical concerns caused by integrative patient empowerment solutions for personalized medicine.
Leroy Hood & Charles Auffray. (2013) Participatory medicine: a driving force for revolutionizing healthcare. Genome Medicine 5:12, pages 110.
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Tatiana A Bodrova, Dmitry S Kostyushev, Elena N Antonova, Shimon Slavin, Dmitry A Gnatenko, Maria O Bocharova, Michael Legg, Paolo Pozzilli, Mikhail A Paltsev & Sergey V Suchkov. (2012) Introduction into PPPM as a new paradigm of public health service: an integrative view. EPMA Journal 3:1.
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