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Patient Related Outcome Measures Volume 2, 2011 - Issue
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Original Research

Patients’ and caregivers’ experiences of the impact of Parkinson’s disease on health status

Horacio Chiong-Rivero1 Department of Neurology, Los Angeles County and University of South California Medical Center, Los Angeles, CA, USACorrespondence[email protected]
,
Gery W Ryan2 RAND Corporation, Santa Monica, CA, USA
,
Charles Flippen3 Department of Neurology, David Geffen School of Medicine at University of California Los Angeles, Los Angeles, CA, USA
,
Yvette Bordelon3 Department of Neurology, David Geffen School of Medicine at University of California Los Angeles, Los Angeles, CA, USA
,
Nicholas R Szumski4 Department of Neurology, Cedars-Sinai Medical Center, Los Angeles, CA, USA
,
Theresa A Zesiewicz5 Department of Neurology, University of South Florida, Tampa, FL, USA
,
Stefanie Vassar3 Department of Neurology, David Geffen School of Medicine at University of California Los Angeles, Los Angeles, CA, USA;6 VA Greater Los Angeles Healthcare System, Parkinson’s Disease Research, Education, and Clinical Center, Los Angeles, CA, USA
,
Beverly Weidmer2 RAND Corporation, Santa Monica, CA, USA
,
Rosa Elena García2 RAND Corporation, Santa Monica, CA, USA
,
Melissa Bradley2 RAND Corporation, Santa Monica, CA, USA
&
Barbara G Vickrey2 RAND Corporation, Santa Monica, CA, USA;3 Department of Neurology, David Geffen School of Medicine at University of California Los Angeles, Los Angeles, CA, USA;6 VA Greater Los Angeles Healthcare System, Parkinson’s Disease Research, Education, and Clinical Center, Los Angeles, CA, USA
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Pages 57-70 | Published online: 09 Mar 2011

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Marion Sommers-Spijkerman, Melinda S. Kavanaugh, Esther Kruitwagen-Van Reenen, Aimée Zwarts-Engelbert, Johanna M. A. Visser-Meily & Anita Beelen. (2023) Stigma experienced by ALS/PMA patients and their caregivers: a mixed-methods study. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:3-4, pages 327-338.
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Michaela Karlstedt, Seyed-Mohammad Fereshtehnejad, Dag Aarsland & Johan Lökk. (2020) Mediating effect of mutuality on caregiver burden in Parkinson’s disease partners. Aging & Mental Health 24:9, pages 1421-1428.
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Jacquelyn H. Flaskerud. (2017) Distribution, Risks, and Responses to Parkinson's Disease. Issues in Mental Health Nursing 38:8, pages 678-681.
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Francisco Nunes & Geraldine Fitzpatrick. (2015) Self-Care Technologies and Collaboration. International Journal of Human–Computer Interaction 31:12, pages 869-881.
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Mickeal Pugh, Paul B. Perrin, Jack D. Watson, Duygu Kuzu, Carmen Tyler, Teresita Villaseñor, Sarah K. Lageman & Oswaldo A. Moreno. (2023) Psychometric investigation of the affiliate stigma scale in Mexican Parkinson’s disease caregivers: Development of a short form. NeuroRehabilitation 52:1, pages 71-81.
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Jennifer Corcoran, Andrew H. Huang, Janis M. Miyasaki & Christopher G. Tarolli. 2023. Neuropalliative Care, Part II. Neuropalliative Care, Part II 107 128 .
Araceli Alonso-Canovas, Jos Voeten, Omotola Thomas, Larry Gifford, Jon A. Stamford & Bastiaan R. Bloem. (2022) The silver linings of Parkinson’s disease. npj Parkinson's Disease 8:1.
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Susanne Iwarsson, Nilla Andersson, Björn Slaug & Maria H. Nilsson. (2022) People with Parkinson's disease and housing issues: A scoping review. Health Science Reports 5:2.
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Anne-Marie Hanff, Anja K. Leist, Joëlle V. Fritz, Claire Pauly, Rejko Krüger & Margareta Halek. (2022) Determinants of Self-Stigma in People with Parkinson’s Disease: A Mixed Methods Scoping Review. Journal of Parkinson's Disease 12:2, pages 509-522.
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Yiping Chen, Wentao Zhou, Liyuan Hou, Xianhui Zhang, Qiaohong Wang, Jing Gu, Ru Zhang & Hui Yang. (2021) The subjective experience of family caregivers of people living with Parkinson’s disease: a meta-ethnography of qualitative literature. Aging Clinical and Experimental Research 34:5, pages 959-970.
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Richard S. Henry, Paul B. Perrin, Sarah K. Lageman, Teresita Villaseñor, Annahir N. Cariello, Mickeal Pugh, Erin R. Smith, Monica Arroyo, Alejandra Zarate, Judith Avila & Jose A. Soto-Escageda. (2021) Parkinson’s Symptoms and Caregiver Affiliate Stigma: A Multinational Study. Current Alzheimer Research 18:3, pages 222-231.
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Hanan AboJabel, Einat Argavan, Sharon Hassin-Baer, Rivka Inzelberg & Perla Werner. (2021) Exploring the perceptions and stigmatizing experiences of Israeli family caregivers of people with Parkinson's disease. Journal of Aging Studies 56, pages 100910.
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Yolanda María Chacón Gámez & Nikola Biller-Andorno. (2021) Living with Parkinson’s disease and connected to the duodopa pump: A qualitative study. Qualitative Research in Medicine and Healthcare 4:3.
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Sonja Rutten, Odile A. van den Heuvel, Anja (J.) T.C.M. de Kruif, Linda J. Schoonmade, Eva I.M. Schumacher, Kees Vermunt, Rob Hagen, Erwin E.H. van Wegen & Koen Rutten. (2021) The Subjective Experience of Living with Parkinson’s Disease: A Meta-Ethnography of Qualitative Literature. Journal of Parkinson's Disease 11:1, pages 139-151.
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Maria H. Nilsson, Frank Oswald, Sebastian Palmqvist & Björn Slaug. (2020) Coping Styles among People with Parkinson’s Disease: A Three-Year Follow-Up Study. Behavioral Sciences 10:12, pages 190.
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MoonKi Choi, JuHee Lee, Eui Geum Oh, Sang Hui Chu, Young H. Sohn & Chang Gi Park. (2018) Factors Associated With Uncertainty in Illness Among People With Parkinson’s Disease. Clinical Nursing Research 29:7, pages 469-478.
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Duygu KURT GÖK, Murat GÜLTEKİN & Ayten EKİNCİ. (2020) Demanslı Parkinson Hastalarının Bakım Verenlerinde Cinsiyete Göre Yalnızlık, Ağrı ve Anksiyete Düzeylerinin Psikometrik DeğerlendirilmesiPsychometric Properties of Loneliness, Pain and Anxiety Levels According to Gender Among Caregivers of the Parkinson’s Disease Dementia. Harran Üniversitesi Tıp Fakültesi Dergisi 17:1, pages 37-41.
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John T.H. Tsiang & Benjamin K.P. Woo. 2020. Diagnosis and Management in Parkinson's Disease. Diagnosis and Management in Parkinson's Disease 283 294 .
Sabina Vatter & Iracema Leroi. 2019. Geriatric Medicine and Gerontology. Geriatric Medicine and Gerontology.
Josefa Domingos, Danique Radder, Sara Riggare, Catarina Godinho, John Dean, Mariella Graziano, Nienke M. de Vries, Joaquim Ferreira & Bastiaan R. Bloem. (2019) Implementation of a Community-Based Exercise Program for Parkinson Patients: Using Boxing as an Example. Journal of Parkinson's Disease 9:3, pages 615-623.
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Julio Angulo, Vanessa Fleury, Julie Anne Péron, Louise Penzenstadler, Daniele Zullino & Paul Krack. (2019) Shame in Parkinson’S Disease: A Review. Journal of Parkinson's Disease 9:3, pages 489-499.
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Marina Maffoni, Antonia Pierobon, Giuseppe Frazzitta, Simona Callegari & Anna Giardini. (2019) Living with Parkinson's—past, present and future: a qualitative study of the subjective perspective. British Journal of Nursing 28:12, pages 764-771.
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Sara Houston & Ashley McGill. 2019. Dance and the Quality of Life. Dance and the Quality of Life 281 291 .
Maya KatzYuika GotoBenzi M. KlugerNicholas B. GalifianakisJanis M. MiyasakiJean S. KutnerChristopher A. JonesSteve Z. Pantilat. (2018) Top Ten Tips Palliative Care Clinicians Should Know About Parkinson's Disease and Related Disorders. Journal of Palliative Medicine 21:10, pages 1507-1517.
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JuHee Lee, Yonju Yoo, Sangwoo Ahn & MoonKi Choi. (2018) Issues on Health Care for People With Parkinson's Disease in Korea. Topics in Geriatric Rehabilitation 34:2, pages 131-137.
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Rachael A. Lawson, Daniel Collerton, John-Paul Taylor, David J. Burn & Katie R. Brittain. (2018) Coping with Cognitive Impairment in People with Parkinson’s Disease and Their Carers: A Qualitative Study. Parkinson's Disease 2018, pages 1-10.
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Marina Maffoni, Anna Giardini, Antonia Pierobon, Davide Ferrazzoli & Giuseppe Frazzitta. (2017) Stigma Experienced by Parkinson’s Disease Patients: A Descriptive Review of Qualitative Studies. Parkinson's Disease 2017, pages 1-7.
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Sarah D. Gunnery, Barbara Habermann, Marie Saint-Hilaire, Cathi A. Thomas & Linda Tickle-Degnen. (2016) The Relationship between the Experience of Hypomimia and Social Wellbeing in People with Parkinson’s Disease and their Care Partners. Journal of Parkinson's Disease 6:3, pages 625-630.
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Joanne Shanahan, Orfhlaith Ní Bhriain, Meg E. Morris, Daniele Volpe & Amanda M. Clifford. (2016) Irish set dancing classes for people with Parkinson's disease: The needs of participants and dance teachers. Complementary Therapies in Medicine 27, pages 12-17.
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KAITLYN P. ROLAND & NEENA L. CHAPPELL. (2014) A typology of care-giving across neurodegenerative diseases presenting with dementia. Ageing and Society 35:9, pages 1905-1927.
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Maria João Forjaz, Alba Ayala, Pablo Martinez-Martin, Kathy Dujardin, Gregory M. Pontone, Sergio E. Starkstein, Daniel Weintraub & Albert F. G. Leentjens. (2015) Is the Parkinson anxiety scale comparable across raters?. Movement Disorders 30:4, pages 545-551.
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Maryann Abendroth. (2015) Development and Initial Validation of a Parkinson’s Disease Caregiver Strain Risk Screen. Journal of Nursing Measurement 23:1, pages 4-21.
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Sion Williams & John Keady. (2012) Centre Stage Diagramming: Late-stage Parkinson’s disease and Alzheimer’s disease. Journal of Aging Studies 26:2, pages 204-213.
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