1,925
Views
33
CrossRef citations to date
0
Altmetric
Research Article

“If I Knew Then What I Know Now”: Parents’ Reflections on Raising a Child with Cerebral Palsy

, , , , , & show all
Pages 169-183 | Published online: 29 Dec 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (10)

Shin Ying Chu, Adlina Binti Mohamed Rafi, Jaehoon Lee, Veronica Fierro, Chun Hong Gan, Susheel Joginder Singh, Deborah Hersh & Ling-Yi Lin. (2023) The relationship between affiliate stigma, stress, and quality of life for parents of individuals with cerebral palsy in Malaysia. Disability and Rehabilitation 45:24, pages 4035-4047.
Read now
Eric Smart, Emily Nalder, Barry Trentham & Gillian King. (2023) “What their expectations could be”: a narrative study of mothers and service providers in paediatric rehabilitation. Disability and Rehabilitation 45:20, pages 3238-3251.
Read now
Anastasia Liasidou & Anastasia Hadjiyiannakou. (2019) Disabling discourses and some implications for parent leadership in special education policy and practice. European Journal of Special Needs Education 34:3, pages 342-354.
Read now
Eric Smart, Emily Nalder, Patty Rigby & Gillian King. (2019) Generating Expectations: What Pediatric Rehabilitation Can Learn From Mental Health Literature. Physical & Occupational Therapy In Pediatrics 39:2, pages 217-235.
Read now
Maria Borgestig, Patrik Rytterström & Helena Hemmingsson. (2017) Gaze-based assistive technology used in daily life by children with severe physical impairments – parents’ experiences. Developmental Neurorehabilitation 20:5, pages 301-308.
Read now
Natalie V. Scime, Doreen J. Bartlett, Laura K. Brunton & Robert J. Palisano. (2017) Parents’ Experiences and Perceptions when Classifying their Children with Cerebral Palsy: Recommendations for Service Providers. Physical & Occupational Therapy In Pediatrics 37:3, pages 252-267.
Read now
Terry K. Crowe, Susanne W. Duvall & Julie A. Gutierrez. (2016) Occupational performance goals of mothers of adolescents with disabilities and mothers of adolescents with typical development. Journal of Occupational Science 23:3, pages 370-381.
Read now
Helen Bourke-Taylor, Claire Cotter & Rebecca Stephan. (2015) Complementary, Alternative, and Mainstream Service use Among Families with Young Children with Multiple Disabilities: Family Costs to Access Choices. Physical & Occupational Therapy In Pediatrics 35:3, pages 311-325.
Read now
Nancy L. Hutchinson, Angela Pyle, Michelle Villeneuve, Jennifer Dods, C.J. Dalton & Patricia Minnes. (2014) Understanding parent advocacy during the transition to school of children with developmental disabilities: three Canadian cases. Early Years 34:4, pages 348-363.
Read now
Necdet Karasu. (2014) Guidance and research centers of Turkey: from the perspective of parents. European Journal of Special Needs Education 29:3, pages 358-369.
Read now

Articles from other publishers (23)

Garey Noritz, Lynn Davidson, Katherine Steingass, Garey Noritz, Rishi Agrawal, Kathryn A. Ellerbeck, Jessica E. A. Foster, Ellen Fremion, Sheryl Frierson, Mary O’Connor Leppert, Barbara S Saunders, Christopher Stille, Jilda Vargus-Adams, Katharine Zuckerman, Lynn Davidson, Kenneth NorwoodJrJr, Larry Yin, Dennis Z. Kuo, Allysa Ware, Marie Y Mann, Matthew Sadof, Jennifer Poon, Marshalyn Yeargin-Allsopp, Alexandra Kuznetsov, Joline E. Brandenburg, Laurie J. Glader, M. Wade Shrader & Tamara Wagester. (2022) Providing a Primary Care Medical Home for Children and Youth With Cerebral Palsy. Pediatrics 150:6.
Crossref
Nancy J. Wise & Patricia A. Gellasch. (2022) Identification to Intervention. Nursing Research 71:6, pages 441-449.
Crossref
Kirsten R. Prest, Aleksandra J. Borek & Anne‐Marie R. Boylan. (2022) Play‐based groups for children with cerebral palsy and their parents: A qualitative interview study about the impact on mothers' well‐being. Child: Care, Health and Development 48:4, pages 578-587.
Crossref
Meg Smith & Julie Blamires. (2022) Mothers' experience of having a child with cerebral palsy. A systematic review. Journal of Pediatric Nursing 64, pages 64-73.
Crossref
Christine Taylor, Ariana C. Kong, Jann Foster, Nadia Badawi & Iona Novak. (2021) Caregivers’ Feeding Experiences and Support of Their Child with Cerebral Palsy. Journal of Child and Family Studies 31:3, pages 819-830.
Crossref
K.A. Kim & R.V. Kadirov. (2022) Parental Stress and Bringing up a Child with Cerebral Palsy: A Foreign Studies Review. Clinical Psychology and Special Education Клиническая и специальная психология 11:4, pages 1-29.
Crossref
Lynn F. Davidson & Maya H. Doyle. (2021) Health-care Transition: A Vital Part of Care, Growth, and Change for Pediatric Patients. Pediatrics In Review 42:12, pages 684-693.
Crossref
Catherine Morgan, Linda Fetters, Lars Adde, Nadia Badawi, Ada Bancale, Roslyn N. Boyd, Olena Chorna, Giovanni Cioni, Diane L. Damiano, Johanna Darrah, Linda S. de Vries, Stacey Dusing, Christa Einspieler, Ann-Christin Eliasson, Donna Ferriero, Darcy Fehlings, Hans Forssberg, Andrew M. Gordon, Susan Greaves, Andrea Guzzetta, Mijna Hadders-Algra, Regina Harbourne, Petra Karlsson, Lena Krumlinde-Sundholm, Beatrice Latal, Alison Loughran-Fowlds, Catherine Mak, Nathalie Maitre, Sarah McIntyre, Cristina Mei, Angela Morgan, Angelina Kakooza-Mwesige, Domenico M. Romeo, Katherine Sanchez, Alicia Spittle, Roberta Shepherd, Marelle Thornton, Jane Valentine, Roslyn Ward, Koa Whittingham, Alieh Zamany & Iona Novak. (2021) Early Intervention for Children Aged 0 to 2 Years With or at High Risk of Cerebral Palsy. JAMA Pediatrics 175:8, pages 846.
Crossref
I. Novak, C. Morgan, L. McNamara & A. te Velde. (2021) Republication de : recommandations de bonnes pratiques pour annoncer un diagnostic de handicap aux parents. Motricité Cérébrale 42:2, pages 48-56.
Crossref
I. Novak, C. Morgan, L. McNamara & A. te Velde. (2019) Best practice guidelines for communicating to parents the diagnosis of disability. Early Human Development 139, pages 104841.
Crossref
Susan A Comerford. (2018) An autoethnography of a neurotypical adoptive mother’s journey through adoption into the world(s) of intellectual variety in the early years of the U.S. Education System. Qualitative Social Work 18:5, pages 772-786.
Crossref
Jim Reeder & Jane Morris. (2018) The importance of the therapeutic relationship when providing information to parents of children with long-term disabilities: The views and experiences of UK paediatric therapists. Journal of Child Health Care 22:3, pages 371-381.
Crossref
Barbara Piškur, Anna J. H. M. Beurskens, Marjolijn Ketelaar, Marian J. Jongmans, Barbara M. Casparie & Rob J. E. M. Smeets. (2017) Daily actions, challenges, and needs among Dutch parents while supporting the participation of their child with a physical disability at home, at school, and in the community: a qualitative diary study. BMC Pediatrics 17:1.
Crossref
Tracy Douglas, Bernice Redley & Goetz Ottmann. (2017) The need to know: The information needs of parents of infants with an intellectual disability-a qualitative study. Journal of Advanced Nursing 73:11, pages 2600-2608.
Crossref
Marjolijn Ketelaar, Aline Bogossian, Michael Saini, Anne Visser-Meily & Lucyna Lach. (2017) Assessment of the family environment in pediatric neurodisability: a state-of-the-art review. Developmental Medicine & Child Neurology 59:3, pages 259-269.
Crossref
Heidrun Becker & Gabriele Eckhardt. 2016. Körperlernen. Körperlernen 295 316 .
Emily Hayles, Desley Harvey, David Plummer & Anne Jones. (2015) Parents’ Experiences of Health Care for Their Children With Cerebral Palsy. Qualitative Health Research 25:8, pages 1139-1154.
Crossref
Emily Hayles, Anne Jones, Desley Harvey, David Plummer & Sally Ruston. (2015) Delivering healthcare services to children with cerebral palsy and their families: a narrative review. Health & Social Care in the Community 23:3, pages 242-251.
Crossref
Henry G. Chambers & Jill A. Chambers. (2015) Effects of Caregiving on the Families of Children and Adults with Disabilities. Physical Medicine and Rehabilitation Clinics of North America 26:1, pages 1-19.
Crossref
Louise Dunn, Lívia C. Magalhaes & Marisa Cotta Mancini. (2014) Internal Structure of the Children Helping Out: Responsibilities, Expectations, and Supports (CHORES) Measure. The American Journal of Occupational Therapy 68:3, pages 286-295.
Crossref
Louise Dunn & James Gardner. (2013) Household Task Participation of Children With and Without Physical Disability. The American Journal of Occupational Therapy 67:5, pages e100-e105.
Crossref
Barbara Piškur, Anna JHM Beurskens, Marian J Jongmans, Marjolijn Ketelaar, Meghan Norton, Christina A Frings, Helena Hemmingsson & Rob JEM Smeets. (2012) Parents’ actions, challenges, and needs while enabling participation of children with a physical disability: a scoping review. BMC Pediatrics 12:1.
Crossref
Iona Novak, Monique Hines, Shona Goldsmith & Richard Barclay. (2012) Clinical Prognostic Messages From a Systematic Review on Cerebral Palsy. Pediatrics 130:5, pages e1285-e1312.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.