Citations (53)
Keep up to date with the latest research on this topic with citation updates for this article.
Read on this site (11)
Sarah Elizabeth Patricia Munce, Fiona Webster, Jennifer Christian, Laura E. Gonzalez-Lara, Adrian M. Owen & Charles Weijer. (2021) Experiences of family of individuals in a locked in, minimally conscious state, or vegetative state with the health care system. Brain Injury 35:1, pages 8-14.
Read now
Read now
Huaihui Zhang, Zhilei Shang, Lili Wu, Zhuoer Sun, Fan Zhang, Luna Sun, Yaoguang Zhou, Yan Wang & Weizhi Liu. (2020) Prolonged grief disorder in Chinese Shidu parents who have lost their only child. European Journal of Psychotraumatology 11:1.
Read now
Read now
Marianne Løvstad, Kari Nyheim Solbrække, Marit Kirkevold, Anne Geard, Solveig Lægreid Hauger & Anne-Kristine Schanke. (2018) “It gets better. It can´t be worse than what we have been through.” Family accounts of the minimally conscious state. Brain Injury 32:13-14, pages 1659-1669.
Read now
Read now
Sonja M. Soeterik, Sarah Connolly & Afsane Riazi. (2018) “Neither a wife nor a widow”: an interpretative phenomenological analysis of the experiences of female family caregivers in disorders of consciousness. Neuropsychological Rehabilitation 28:8, pages 1392-1407.
Read now
Read now
P. Moretta, O. Masotta, E. Crispino, G. Castronovo, S. Ruvolo, C. Montalbano, V. Loreto, L. Trojano & A. Estraneo. (2017) Psychological distress is associated with altered cognitive functioning in family caregivers of patients with disorders of consciousness. Brain Injury 31:8, pages 1088-1093.
Read now
Read now
Jason M. Holland, Stacy Graves, Kara L. Klingspon & Vincent Rozalski. (2016) Prolonged grief symptoms related to loss of physical functioning: examining unique associations with medical service utilization. Disability and Rehabilitation 38:3, pages 205-210.
Read now
Read now
Julie Latchem, Jenny Kitzinger & Celia Kitzinger. (2016) Physiotherapy for vegetative and minimally conscious state patients: family perceptions and experiences. Disability and Rehabilitation 38:1, pages 22-29.
Read now
Read now
A. M. Giovannetti, M. Černiauskaitė, M. Leonardi, D. Sattin & V. Covelli. (2015) Informal caregivers of patients with disorders of consciousness: Experience of ambiguous loss. Brain Injury 29:4, pages 473-480.
Read now
Read now
Sabrina Cipolletta, Erminio Gius & Alessia Bastianelli. (2014) How the burden of caring for a patient in a vegetative state changes in relation to different coping strategies. Brain Injury 28:1, pages 92-96.
Read now
Read now
J. A. Cruzado & M. J. Elvira de la Morena. (2013) Coping and distress in caregivers of patients with disorders of consciousness. Brain Injury 27:7-8, pages 793-798.
Read now
Read now
M. Leonardi, A. M. Giovannetti, M. Pagani, A. Raggi, D. Sattin & on behalf of the National Consortium Functioning and Disability in Vegetative and in Minimal Conscious State Patients. (2012) Burden and needs of 487 caregivers of patients in vegetative state and in minimally conscious state: Results from a national study. Brain Injury 26:10, pages 1201-1210.
Read now
Read now
Articles from other publishers (42)
Ognjen Arandjelović. (2023) Resolving the ethical quagmire of the persistent vegetative state. Journal of Evaluation in Clinical Practice.
Crossref
Crossref
Jes Sebastian Völker, Ioana V. Micluția & Adela-Melania Hanga. (2023) Response Shift as a Possible Obstacle in Assessing Perceived Quality
of Life and Burden of Care in Informal Caregivers of Individuals
with Schizophrenia: A Narrative Review. Current Psychiatry Research and Reviews 19:1, pages 3-10.
Crossref
Crossref
Ehsan Alimohammadi, Atefeh Arast, Zeljko Vlaisavljevic, Alireza Abdi & Haider Ramadhan. (2023) The experiences of the caregivers caring for the patients in persistent vegetative state due to traumatic brain injury. SAGE Open Medicine 11, pages 205031212311775.
Crossref
Crossref
Karoline Boegle, Marta Bassi, Angela Comanducci, Katja Kuehlmeyer, Philipp Oehl, Theresa Raiser, Martin Rosenfelder, Jaco Diego Sitt, Chiara Valota, Lina Willacker, Andreas Bender & Eva Grill. (2022) Informal Caregivers of Patients with Disorders of Consciousness: a Qualitative Study of Communication Experiences and Information Needs with Physicians. Neuroethics 15:3.
Crossref
Crossref
Anne Boissel, Florian Leblond, Stéphanie Pinel-Jacquemin, Philippe Petit, François Tasseau & Éric Vérin. (2022) Caregivers of people with disorders of consciousness: Relationship continuity and rupture. L'Évolution Psychiatrique 87:3, pages e1-e18.
Crossref
Crossref
Christina Yeni Kustanti, Hsin Chu, Xiao Linda Kang, Li-Chung Pien, Ruey Chen, Hsiu-Ting Tsai & Kuei-Ru Chou. (2022) Anticipatory grief prevalence among caregivers of persons with a life-threatening illness: A meta-analysis. BMJ Supportive & Palliative Care, pages bmjspcare-2021-003338.
Crossref
Crossref
Juyoung Park, Hannah Levine & James E. Galvin. (2022) Factor structure of Pre‐Loss Grief‐12 in caregivers of people living with dementia. Alzheimer's & Dementia: Translational Research & Clinical Interventions 8:1.
Crossref
Crossref
Juyoung Park & James E. Galvin. (2021) Pre-Loss Grief in Caregivers of Older Adults with Dementia with Lewy Bodies. Journal of Alzheimer's Disease 82:4, pages 1847-1859.
Crossref
Crossref
Anne Boissel, Florian Leblond, Stéphanie Pinel-Jacquemin, Philippe Petit, François Tasseau & Éric Vérin. (2021) Les proches aidants des personnes en état de conscience altérée : ruptures et continuité dans les relations. L'Évolution Psychiatrique 86:1, pages 25-46.
Crossref
Crossref
Jufang Li, Yun Li & Ping Li. (2019) Perceived Grief Among Caregivers of Patients With Dementia in China. Clinical Nursing Research 30:1, pages 70-81.
Crossref
Crossref
Francesca G. Magnani, Matilde Leonardi & Davide Sattin. (2020) Caregivers of people with disorders of consciousness: which burden predictors?. Neurological Sciences 41:10, pages 2773-2779.
Crossref
Crossref
Zahra Imani-Goghary & Mahnaz Ghaljeh. (2020) The experience of family caregivers caring for a patient with chronic disorders of consciousness: a qualitative content analysis. International Journal of Palliative Nursing 26:6, pages 301-309.
Crossref
Crossref
Lauren J Breen, Samar M Aoun, Moira O’Connor, Andrew R Johnson & Denise Howting. (2019) Effect of caregiving at end of life on grief, quality of life and general health: A prospective, longitudinal, comparative study. Palliative Medicine 34:1, pages 145-154.
Crossref
Crossref
Dinelia Rosa & Milton A. Fuentes. 2020. Caring for Latinxs with Dementia in a Globalized World. Caring for Latinxs with Dementia in a Globalized World
247
264
.
NAZAN TORUN. (2019) UZUN SÜRELİ YOĞUN BAKIM HASTASI OLAN AİLELERİN DENEYİMLERİ: NİTEL BİR ÇALIŞMA. Düzce Üniversitesi Sağlık Bilimleri Enstitüsü Dergisi.
Crossref
Crossref
Yael Zaksh, Einat Yehene, Maya Elyashiv & Arie Altman. (2018) Partially dead, partially separated: establishing the mechanism between ambiguous loss and grief reaction among caregivers of patients with prolonged disorders of consciousness. Clinical Rehabilitation 33:2, pages 345-356.
Crossref
Crossref
Benzi M. Kluger, Jo Shattuck, Julie Berk, Kelly Sebring, Wallace Jones, Fabian Brunetti, Isabel Fairmont, Daniel W. Bowles, Stefan Sillau & David B. Bekelman. (2018) Defining Palliative Care Needs in Parkinson's Disease. Movement Disorders Clinical Practice 6:2, pages 125-131.
Crossref
Crossref
Inga Steppacher & Johanna Kissler. (2018) A problem shared is a problem halved? Comparing burdens arising for family caregivers of patients with disorders of consciousness in institutionalized versus at home care. BMC Psychology 6:1.
Crossref
Crossref
Conny A. M. F. H. Span-Sluyter, Jan C. M. Lavrijsen, Evert van Leeuwen & Raymond T. C. M. Koopmans. (2018) Moral dilemmas and conflicts concerning patients in a vegetative state/unresponsive wakefulness syndrome: shared or non-shared decision making? A qualitative study of the professional perspective in two moral case deliberations. BMC Medical Ethics 19:1.
Crossref
Crossref
Fateme Goudarzi, Heidarali Abedi, Kourosh Zarea, Fazlollah Ahmadi & Seyedeh Zahra Hosseinigolafshani. (2018) The Resilient Care of Patients with Vegetative State at Home: a Grounded Theory. Journal of Caring Sciences 7:3, pages 163-175.
Crossref
Crossref
Matilde Leonardi, Davide Sattin & Venusia Covelli. 2018. Coma and Disorders of Consciousness. Coma and Disorders of Consciousness
97
118
.
Sonja M Soeterik, Sarah Connolly, E Diane Playford, Sophie Duport & Afsane Riazi. (2017) The psychological impact of prolonged disorders of consciousness on caregivers: a systematic review of quantitative studies. Clinical Rehabilitation 31:10, pages 1374-1385.
Crossref
Crossref
Alexandra Coelho, Cláudia Silva & António Barbosa. (2017) Portuguese validation of the Prolonged Grief Disorder Questionnaire–Predeath (PG–12): Psychometric properties and correlates. Palliative and Supportive Care 15:5, pages 544-553.
Crossref
Crossref
Young-Mi Yang & Jeung-Im Kim. (2017) Lived Experience of the Mother's Caring of Adult Children with Persistent Vegetative State. Korean Journal of Women Health Nursing 23:4, pages 287.
Crossref
Crossref
V. Covelli, D. Sattin, A. M. Giovannetti, C. Scaratti, M. Willems & M. Leonardi. (2016) Caregiver's burden in disorders of consciousness: a longitudinal study. Acta Neurologica Scandinavica 134:5, pages 352-359.
Crossref
Crossref
Sabrina Cipolletta, Margherita Pasi & Renato Avesani. (2014)
Vita tua, mors mea
: The experience of family caregivers of patients in a vegetative state
. Journal of Health Psychology 21:7, pages 1197-1206.
Crossref
Crossref
Alessia Bastianelli, Erminio Gius & Sabrina Cipolletta. (2014) Changes over time in the quality of life, prolonged grief and family strain of family caregivers of patients in vegetative state: A pilot study. Journal of Health Psychology 21:5, pages 844-852.
Crossref
Crossref
Esmat Noohi, Hamid Peyrovi, Zahra Imani Goghary & Majid Kazemi. (2016) Perception of social support among family caregivers of vegetative patients: A qualitative study. Consciousness and Cognition 41, pages 150-158.
Crossref
Crossref
Carlo Lai, Massimiliano Luciani, Federico Galli, Emanuela Morelli, Roberta Cappelluti, Italo Penco, Paola Aceto & Luigi Lombardo. (2014) Attachment Style Dimensions Can Affect Prolonged Grief Risk in Caregivers of Terminally Ill Patients With Cancer. American Journal of Hospice and Palliative Medicine® 32:8, pages 855-860.
Crossref
Crossref
Fateme Goudarzi, Heidarali Abedi, Kourosh Zarea & Fazlollah Ahmadi. (2015) Multiple Victims: The Result of Caring Patients in Vegetative State. Iranian Red Crescent Medical Journal 17:6.
Crossref
Crossref
Michelle Willems, Davide Sattin, Ad Vingerhoets & Matilde Leonardi. (2015) Longitudinal Changes in Functioning and Disability in Patients with Disorders of Consciousness: The Importance of Environmental Factors. International Journal of Environmental Research and Public Health 12:4, pages 3707-3730.
Crossref
Crossref
Esther L Davis, Frank P. Deane & Geoffrey C.B. Lyons. (2014) Acceptance and valued living as critical appraisal and coping strengths for caregivers dealing with terminal illness and bereavement. Palliative and Supportive Care 13:2, pages 359-368.
Crossref
Crossref
Serena Passoni, Alessio Toraldo, Barbara Villa & Gabriella Bottini. (2014) Prolonged grief in caregivers of community-dwelling dementia patients. American Journal of Alzheimer's Disease & Other Dementiasr 30:2, pages 192-200.
Crossref
Crossref
Ralf J. Jox, Katja Kuehlmeyer, Anke-Maria Klein, Jürgen Herzog, Matthias Schaupp, Dennis A. Nowak, Eberhard Koenig, Friedemann Müller & Andreas Bender. (2015) Diagnosis and Decision Making for Patients With Disorders of Consciousness: A Survey Among Family Members. Archives of Physical Medicine and Rehabilitation 96:2, pages 323-330.
Crossref
Crossref
Charles Weijer, Andrew Peterson, Fiona Webster, Mackenzie Graham, Damian Cruse, Davinia Fernández-Espejo, Teneille Gofton, Laura E Gonzalez-Lara, Andrea Lazosky, Lorina Naci, Loretta Norton, Kathy Speechley, Bryan Young & Adrian M Owen. (2014) Ethics of neuroimaging after serious brain injury. BMC Medical Ethics 15:1.
Crossref
Crossref
Andrea C. Walker & David E. Balk. (2013) The Stories Students Tell: TAT Stories of Bereaved and Non-Bereaved College Students in a Christian Evangelical University. Journal of Psychology and Theology 41:4, pages 340-354.
Crossref
Crossref
M. J. Elvira de la Morena & J. A. Cruzado. (2013) Caregivers of patients with disorders of consciousness: coping and prolonged grief. Acta Neurologica Scandinavica 127:6, pages 413-418.
Crossref
Crossref
Deborah Waldrop & Jean S. Kutner. 2013. Evidence-Based Practice in Palliative Medicine. Evidence-Based Practice in Palliative Medicine
436
442
.
Ralf J Jox, James L Bernat, Steven Laureys & Eric Racine. (2012) Disorders of consciousness: responding to requests for novel diagnostic and therapeutic interventions. The Lancet Neurology 11:8, pages 732-738.
Crossref
Crossref
Chiara Guarnerio, Antonio Prunas, Irene Della Fontana & Paola Chiambretto. (2011) Prevalence and Comorbidity of Prolonged Grief Disorder in a Sample of Caregivers of Patients in a Vegetative State. Psychiatric Quarterly 83:1, pages 65-73.
Crossref
Crossref
A. M. Giovannetti, M. Pagani, D. Sattin, V. Covelli, A. Raggi, S. Strazzer, E. Castelli, A. Trabacca, A. Martinuzzi & M. Leonardi. (2012) Children in Vegetative State and Minimally Conscious State: Patients’ Condition and Caregivers’ Burden. The Scientific World Journal 2012, pages 1-7.
Crossref
Crossref
Joel Gutiérrez, Calixto Machado, Mario Estévez, Ana Olivares, Héctor Hernández, Jesus Perez, Carlos Beltrán & Gerry Leisman. (2010) Heart rate variability changes induced by auditory stimulation in persistent vegetative state. International Journal on Disability and Human Development 9:4.
Crossref
Crossref